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Giant cell arteritis diagnosed 160115
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
Happy New Year. I've suffered with RA most of my life, and had cutaneous vasculitis. Now progressed to Giant Cell Arteritis in my temple area. Fisrt signs were tender scalp when hair drying and brushing. That night a sudden headache like no other. Nearest equivalent pain was a sudden bone fracture. Immediate
daphne_retired
in
PMRGCAuk
10 years ago
Narrowed esophagus
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
My Rheumy has asked me if I have difficulty swallowing. So I wonder if this is a symptom of GCA. I recently had a colonoscopy and endoscopy with a stretching of the esophagus. The gastro doctor informed me that my esophagus was very narrowed and wondered if it had been bothering me. He wondered if it
Asbeck
in
PMRGCAuk
10 years ago
You've hit a milestone! 1000 of you now have joined the PMRGCAuk HU community
Congratulations for building a true PMRGCAuk health movement in HealthUnlocked! You've built the biggest Polymyalgia Rheumatica and Giant Cell Arteritis community in the world. Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Polymyalgia
Congratulations for building a true PMRGCAuk health movement in HealthUnlocked! You've built the biggest Polymyalgia Rheumatica and Giant Cell Arteritis community in the world. Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Polymyalgia
HealthUnlocked
HealthUnlocked
in
PMRGCAuk
10 years ago
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Paperback now available via Amazon
Hi everyone, This is just to let you know that the book "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available in paperback via Amazon. The link is http://www.amazon.co.uk/Polymyalgia-Rheumatica-Giant-Cell-Arteritis/dp/1500713406/ref=sr_1_12?s=books&ie=UTF8&qid=1409228415&
Hi everyone, This is just to let you know that the book "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available in paperback via Amazon. The link is http://www.amazon.co.uk/Polymyalgia-Rheumatica-Giant-Cell-Arteritis/dp/1500713406/ref=sr_1_12?s=books&ie=UTF8&qid=1409228415&
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Holiday disaster with PSP
bound now due to PSP and falls etc. 2nd problem, she fell while being supported by my holding on to a large parasol - the base damaged my leg leg and as I an a diabetic I suffer from leg ulcers, and hey presto I get one due to the trauma. 3rd problem - due to heat and local food, she contracted Gastro
Enteritis
bound now due to PSP and falls etc. 2nd problem, she fell while being supported by my holding on to a large parasol - the base damaged my leg leg and as I an a diabetic I suffer from leg ulcers, and hey presto I get one due to the trauma. 3rd problem - due to heat and local food, she contracted Gastro
Enteritis
G1956
in
PSP Association
10 years ago
Tiredness
Please can you good folk tell me whether extreme tiredness is linked to reduction of preds. It has taken a while but I am now down to 12.5 with no problems with pain. Fluid retention is not good (maybe due somewhat to the heat) and my hot flushes are worse. But my main concern is that I keep falling
Please can you good folk tell me whether extreme tiredness is linked to reduction of preds. It has taken a while but I am now down to 12.5 with no problems with pain. Fluid retention is not good (maybe due somewhat to the heat) and my hot flushes are worse. But my main concern is that I keep falling
patdencass
in
PMRGCAuk
10 years ago
Plymouth & Cornwall Support
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Hidden
in
PMRGCAuk
10 years ago
Plymouth Cornwall & South Devon Support Meeting.
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
Hidden
in
PMRGCAuk
10 years ago
Hello everyone I have been away for 4 weeks so am catching up at the moment. I have had PMR for 7 yrs am on 10g pred, propranolol , thyroxin
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
lucky12
in
PMRGCAuk
10 years ago
Why do doctors keep refering to 'temporal' arteritis instead of using the term 'giant cell' arteritis?
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
Hidden
in
PMRGCAuk
10 years ago
colonoscopy
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
kingharold11
in
PMRGCAuk
10 years ago
I have Giant Cell Arteritis and am reducing Prednisolone. Does anyone have terrible 'hot flushes' and itchy patches on skin?
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
sookiesue
in
PMRGCAuk
10 years ago
Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
The diagnosis and classification of giant cell arteritis
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Skinnyjonny
in
PMRGCAuk
10 years ago
Book on PMR and GCA available now!
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Book on the way!
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
Nausea on a regular schedule?
My condition was triggered by a 6 week bout of gastro-
enteritis
. A colonoscopy provided entirely normal biopsies and a couple of benign polyps were removed. I was also diagnosed with diverticulosis. My condition is very mild when compared to some of the suffering I see in this community.
My condition was triggered by a 6 week bout of gastro-
enteritis
. A colonoscopy provided entirely normal biopsies and a couple of benign polyps were removed. I was also diagnosed with diverticulosis. My condition is very mild when compared to some of the suffering I see in this community.
babramson
in
IBS Network
11 years ago
New research reveals more about Giant Cell Arteritis
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
11 years ago
Please help us!
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
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