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Plymouth & Cornwall Support
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Dear All Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area The next support meeting for PMR and PMRGCA for the Devon & Cornwall area will be held on the following date? The nearest meeting so far has been Taunton so we have now started
Hidden
in
PMRGCAuk
10 years ago
Plymouth Cornwall & South Devon Support Meeting.
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
The next meeting of the Plymouth, West Devon and Cornwall Support Group for Polymyalgia Rheumatica and Giant Cell Arteritis. is to be held at Community room No 7 Pendeen Close Southway Plymouth PL6 6SB on the 30th July at 2pm Wendy from PMRGCA will be coming as well to offer her support. For more details
Hidden
in
PMRGCAuk
10 years ago
Hello everyone I have been away for 4 weeks so am catching up at the moment. I have had PMR for 7 yrs am on 10g pred, propranolol , thyroxin
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
and amitriptilyne 20gs. However recently I find that if I take amitryptiline after 7 30pm I wake in the night having hallucinations which is quite disturbing. Is any one else taking this med and getting the same problem I am fine if I take it on time.Thank you all for your helpful tips in the past Kathy
lucky12
in
PMRGCAuk
10 years ago
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Why do doctors keep refering to 'temporal' arteritis instead of using the term 'giant cell' arteritis?
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
I read that giant cells can inflame any artery, causing lesions, blockages and damage to vital organs which can result in disability or death. This title is a misnomer and should be challenged! My very ignorant GP said I need only be concerned about having GCA headaches. When I said I had heart pain
Hidden
in
PMRGCAuk
10 years ago
colonoscopy
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
has anyone had a colonoscopy whilst on prednisolone, I had one 3 years ago before I was diagnosed with PMR and subsequently put on steroids. The bowel screening people have contacted me again but I don't know what to do I can't stop taking steroids and the stuff they give you to clear out your bowels
kingharold11
in
PMRGCAuk
10 years ago
I have Giant Cell Arteritis and am reducing Prednisolone. Does anyone have terrible 'hot flushes' and itchy patches on skin?
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
Can anyone provide any remedial therapies for the above and if I can get completely off Prednisolone, will the 'hot flushes' stop.
sookiesue
in
PMRGCAuk
10 years ago
Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
The diagnosis and classification of giant cell arteritis
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Skinnyjonny
in
PMRGCAuk
10 years ago
Book on PMR and GCA available now!
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Book on the way!
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Nausea on a regular schedule?
My condition was triggered by a 6 week bout of gastro-
enteritis
. A colonoscopy provided entirely normal biopsies and a couple of benign polyps were removed. I was also diagnosed with diverticulosis. My condition is very mild when compared to some of the suffering I see in this community.
My condition was triggered by a 6 week bout of gastro-
enteritis
. A colonoscopy provided entirely normal biopsies and a couple of benign polyps were removed. I was also diagnosed with diverticulosis. My condition is very mild when compared to some of the suffering I see in this community.
babramson
in
IBS Network
10 years ago
New research reveals more about Giant Cell Arteritis
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Please help us!
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
As I'm sure you know, this forum is run by volunteers from PMRGCAuk, the UK's national charity for support and awareness of Polymyalgia Rheumatica and Giant Cell Arteritis. What you might not know is that, at the moment, the whole charity is run by volunteers! That's website, forum, helpline, newsletter
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
New treatment - tocilizumab
Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of control. I'm going to be started on tocilizumab as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK
Hi. I have takayasu's arteritis and am treated at Addenbrooke's. I saw Dr Jayne yesterday and they've come to the conclusion that things are a bit out of control. I'm going to be started on tocilizumab as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK
JElsom
in
Vasculitis UK
11 years ago
Consequences of stopping the immunosuppressants?
When I was suffering from a bad dose of campylobacter
enteritis
recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now.
When I was suffering from a bad dose of campylobacter
enteritis
recently, my consultant advised me to stop taking mycophenolate mofetil. He did say to re start once I thought the infection had gone, which is now.
Ayla
Volunteer
in
Vasculitis UK
11 years ago
Gastro-enteritis or drug reaction - what to do for the best?
GP thought I had gastro-
enteritis
but not very convincing. I've not had any Naproxen since this started as I assume that's the least important drug (??) and I only took 2 Sulfa tabs on Friday (instead of usual 4) and just one yesterday evening.
GP thought I had gastro-
enteritis
but not very convincing. I've not had any Naproxen since this started as I assume that's the least important drug (??) and I only took 2 Sulfa tabs on Friday (instead of usual 4) and just one yesterday evening.
Hidden
in
NRAS
11 years ago
Advice please
I went to see the GP today - he seemed to think it was gastro-
enteritis
as I've been having diarrhoea. I'm extremely weak - I have to think about every movement plus my arthritis is a bit worse.
I went to see the GP today - he seemed to think it was gastro-
enteritis
as I've been having diarrhoea. I'm extremely weak - I have to think about every movement plus my arthritis is a bit worse.
Hidden
in
NRAS
11 years ago
New clinical trial planned in Giant Cell Arteritis (GCA)
Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis). The objective of the GCA trial is to gather data on whether using TCZ alongside pred can enable the patient
Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis). The objective of the GCA trial is to gather data on whether using TCZ alongside pred can enable the patient
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
My Coma making sense?
After examining me the ambulance crew decided that I probably had Bacterial Gastro
Enteritis
and should go to hospital to be checked. At this point there still did not seem to be any great emergency, although this is when I was starting to deteriorate rapidly and I can only remember bits.
After examining me the ambulance crew decided that I probably had Bacterial Gastro
Enteritis
and should go to hospital to be checked. At this point there still did not seem to be any great emergency, although this is when I was starting to deteriorate rapidly and I can only remember bits.
OrmesbyPaul
in
ICUsteps
11 years ago
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