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I feel like everyone knows but me...
In March I was admitted to the hospital for crazy high blood pressure and severe
enteritis
. On my CT, they found bilateral abnormal complex adnexal cysts. Of course I have so many symptoms of ovarian cancer, but they are so vague really what woman doesn't?
In March I was admitted to the hospital for crazy high blood pressure and severe
enteritis
. On my CT, they found bilateral abnormal complex adnexal cysts. Of course I have so many symptoms of ovarian cancer, but they are so vague really what woman doesn't?
BrandiB
in
SHARE Ovarian Cancer Support
5 months ago
Lisbon, an unwanted souvenir and week 8 has to wait
Anyone else got tips for coming back after a nasty bout of gastro-
enteritis
? I expect there will be a few runners in the south west who will be interested too!
Anyone else got tips for coming back after a nasty bout of gastro-
enteritis
? I expect there will be a few runners in the south west who will be interested too!
grumpyoldgirl
Graduate
in
Couch to 5K
4 months ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Mar 2023 -
Enteritis
. May 2023 - Radiotherapy shoulders and rib. Sept 2023 - Jan 2024 - Enzalutamide. Sept 2023 - Radiotherapy C7-T4, T7-T9.
Mar 2023 -
Enteritis
. May 2023 - Radiotherapy shoulders and rib. Sept 2023 - Jan 2024 - Enzalutamide. Sept 2023 - Radiotherapy C7-T4, T7-T9.
kikinini
in
Advanced Prostate Cancer
2 months ago
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Frequent Infections
I have recently come out of hospital with gastro
enteritis
. It is very frightening how quickly I become ill. I seem to pick up every infection going despite being very careful. I feel vulnerable but don’t want to shut myself away. I would be grateful for your advice. Thank you.
I have recently come out of hospital with gastro
enteritis
. It is very frightening how quickly I become ill. I seem to pick up every infection going despite being very careful. I feel vulnerable but don’t want to shut myself away. I would be grateful for your advice. Thank you.
garden49
in
PMRGCAuk
1 year ago
Upcoming appointment with Rheumy Consultant - people's experiences/advice appreciated
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
Hi all Firstly, just wanting to explain that my user name is a reference to the nickname of the football team I support - I'm not interested in knife crime or anything like that! I might change it actually to avoid any confusion or concerns! I've got another appointment with Rheumy Consultant next
BladesLover
in
PMRGCAuk
20 days ago
Thyroid - updated bloods - advice
I was taking Esomeprazole and Pentasa (prescribed for anti inflammatory by gastroenterologist at Marsden for
enteritis
) have now stopped that medication probably 3 weeks prior to test. Just wondered if my cholesterol liver had any correlation to my thyroid? If it’s autoimmune? Many thanks!
I was taking Esomeprazole and Pentasa (prescribed for anti inflammatory by gastroenterologist at Marsden for
enteritis
) have now stopped that medication probably 3 weeks prior to test. Just wondered if my cholesterol liver had any correlation to my thyroid? If it’s autoimmune? Many thanks!
MPG15
in
Thyroid UK
8 months ago
Hello - I'm interested in other GCA experiences
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
BladesLover
in
PMRGCAuk
1 month ago
Cholesterol readings
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
Hello medically-minded people Tryimg to decide whether to take statins or not. This is my latest cholesterol test readings. I knw that the total cholesterol level is high (as it tells me) but my diet is not bad (exercise level lowish though due to PMR) but are there any/enough mitigating factors? Due
marionofnorwich
in
PMRGCAuk
2 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
3 months ago
Tocilizumab
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
I am advised that a biosimilar to tocilizumab has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months. My GP and Consultant keen to get me off Pred altogether ( currently on second attempt in 3 years)
Niblick
in
PMRGCAuk
3 months ago
Colonoscopy
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Just have a question. I was put on a 5 Day taper of 16mg of prednisolone. I took my first dose today along with a one time dose of diflucan. Will I be ok to have my colonoscopy tomorrow?
Babciboys
in
PMRGCAuk
3 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
4 months ago
Neutropenia whilst on Tocilizumab
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Hi. Just wondering if anyone has had a similar experience. Diagnosed with PMR and GCA Nov. 2021. For last 2 months I have been on weekly Tocilizumab injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked
Magsters123
in
PMRGCAuk
4 months ago
Qualifying for Tocilizumab
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency ultrasound of temporal and axillary arteries but it was three weeks after going on 40mg of pred so my consultant radiologist did say that nothing would
Golfers1
in
PMRGCAuk
4 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
5 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
5 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
6 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
6 months ago
NZ meat chickens no longer medicated
”Until recently, the antibiotic zinc bacitracin was mixed into the daily feed of most meat chickens as a preventative measure against the intestinal disease necrotic
enteritis
.” ”“With AMR increasing around the world, and few new antibiotics being developed, careful use of the antibiotics we have will
”Until recently, the antibiotic zinc bacitracin was mixed into the daily feed of most meat chickens as a preventative measure against the intestinal disease necrotic
enteritis
.” ”“With AMR increasing around the world, and few new antibiotics being developed, careful use of the antibiotics we have will
LAJ12345
in
Cure Parkinson's
10 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
7 months ago
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