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Pain, exercise and weight gain
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Hi I have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
LUPUS UK
1 year ago
Pain, exercise and weight gain
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
HiI have tried and failed with trying to be active and managing pain. I have stage 4 endo extensive. All organs are adhered to each other. I also have mixed connective tissue disease and being treated with hydroxychloroquine. I have been on zoladex and Tibilone for 2 years waiting for a hysterectomy
Awwy
in
Endometriosis UK
1 year ago
**sensitive** Pregnancy just before laparoscopy
I am supposed to be having a laparoscopy on Friday for removal of endo, cysts, bowel resection and probably both tubes. I was diagnosed in early 2021 and told I had bilateral hydrosalpinx. The doctors advised me to go down the IVF route and have surgery to remove my tubes. We did IVF in April this year
I am supposed to be having a laparoscopy on Friday for removal of endo, cysts, bowel resection and probably both tubes. I was diagnosed in early 2021 and told I had bilateral hydrosalpinx. The doctors advised me to go down the IVF route and have surgery to remove my tubes. We did IVF in April this year
HortC11
in
Endometriosis UK
1 year ago
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What can I do? Help please?
Hi, I was diagnosed with mixed connective tissue disease in March this year. In August I started taking hydroxychloroquine at 200mg. I saw my rhumotolgist about 3 months in and told her I had not noticed a difference. She told me to increase my dose to 400mg which I did. Fast forward another 2 months
Hi, I was diagnosed with mixed connective tissue disease in March this year. In August I started taking hydroxychloroquine at 200mg. I saw my rhumotolgist about 3 months in and told her I had not noticed a difference. She told me to increase my dose to 400mg which I did. Fast forward another 2 months
Awwy
in
LUPUS UK
1 year ago
Normality after Pacemaker fitted.
Hi everyone and I am sorry it's a bit long. I was fitted with a Dual chamber pacemaker for Bradycardia last year. Since then my life has gone downhill. Although I have had a few problems over my life with small bowel resection and colon removal I have been fairly active and still working in construction
Hi everyone and I am sorry it's a bit long. I was fitted with a Dual chamber pacemaker for Bradycardia last year. Since then my life has gone downhill. Although I have had a few problems over my life with small bowel resection and colon removal I have been fairly active and still working in construction
Elguajiro
in
British Heart Foundation
1 year ago
Bowel Resection
just wondering how many here have had bowel resection surgery and what the experience was like and how much difference it made. Thank you
just wondering how many here have had bowel resection surgery and what the experience was like and how much difference it made. Thank you
jackdup
in
Crohn's and Colitis Support
1 year ago
Just some advice please š
Hi allĀ Hope your all doing well just after a bit of advice really but donāt want to make this long. Ā So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . Ā I have been on waiting list since 2021 and have had 2 pre ops . Ā My last physical examination was done in February
Hi allĀ Hope your all doing well just after a bit of advice really but donāt want to make this long. Ā So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . Ā I have been on waiting list since 2021 and have had 2 pre ops . Ā My last physical examination was done in February
Faithstar
in
Endometriosis UK
2 years ago
Endometriosis & Ankylosing Spondylitis
Just wondering if anyone else has also been diagnosed with both conditions ? It took a long time to get both diagnosis and after many years of pain killers and excision surgery for DIE including bowel resection, Iām just about to start biological medication for the AS and was wondering if anyone else
Just wondering if anyone else has also been diagnosed with both conditions ? It took a long time to get both diagnosis and after many years of pain killers and excision surgery for DIE including bowel resection, Iām just about to start biological medication for the AS and was wondering if anyone else
Chezzerl
in
Endometriosis UK
2 years ago
Rectal bleeding monthly and had bowel resection?
Hi Ladies, Just wanted to know if anyone out there is suffering like i am? I have been bleeding through my bowel 15plus years. Complained for years and years. Been diagnosed with IBS, which i think is a misdiagnosis of Endometriosis. I had excision surgery in April this year privately with an Endometriosis
Hi Ladies, Just wanted to know if anyone out there is suffering like i am? I have been bleeding through my bowel 15plus years. Complained for years and years. Been diagnosed with IBS, which i think is a misdiagnosis of Endometriosis. I had excision surgery in April this year privately with an Endometriosis
Endo8701
in
Endometriosis UK
2 years ago
Bowel endometriosis, 11 years post total hysterectomy
Hello everyone, hoping to reach out. I had a total hysterectomy 11 years ago conserving my ovaries. Unfortunately my most recent mri has shown DIE present in my bowel. I am waiting to be discussed at a multi disciplinary team meeting for surgery, which looks to probably be a bowel resection & removal
Hello everyone, hoping to reach out. I had a total hysterectomy 11 years ago conserving my ovaries. Unfortunately my most recent mri has shown DIE present in my bowel. I am waiting to be discussed at a multi disciplinary team meeting for surgery, which looks to probably be a bowel resection & removal
Shellbell-
in
Endometriosis UK
2 years ago
Bowel surgery advice.
Hi everyone. Iām due for surgery in 10 days and suddenly have anxiety about it all. I had previous endo surgery in 2013 which helped but this time my consultant is bringing in a bowel surgeon as I have deep infiltrating endo on my bowel. My question is how good/bad is a bowel resection or how did you
Hi everyone. Iām due for surgery in 10 days and suddenly have anxiety about it all. I had previous endo surgery in 2013 which helped but this time my consultant is bringing in a bowel surgeon as I have deep infiltrating endo on my bowel. My question is how good/bad is a bowel resection or how did you
MAEA1419
in
Endometriosis UK
2 years ago
diverticulitis after bowel resection ?
Hi everyone. I used to be on here a lot. Iāve had a bowel resection due to diverticulitis , 3 years ago. Iliostomy for 3 months , reversal and recovery , slow but steady . Few problems , appendix removal due to scar tissue from iliostomy scar. That was nearly 2 years ago. Been ok since, few problems
Hi everyone. I used to be on here a lot. Iāve had a bowel resection due to diverticulitis , 3 years ago. Iliostomy for 3 months , reversal and recovery , slow but steady . Few problems , appendix removal due to scar tissue from iliostomy scar. That was nearly 2 years ago. Been ok since, few problems
Gardeningbuff
in
Bowel Disease Support
2 years ago
endometriosis on bowel
hi, I have had confirmed endo since 2008. Iv heās many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
hi, I have had confirmed endo since 2008. Iv heās many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
Hidden
in
Endometriosis UK
2 years ago
ļ»æpost hysterectomy and bowel resection
ļ»æHad total hysterectomy and bowel resection 5 week's ago. Still no appetite and so tired, feel stronger in myself physically but feel lifeless. Got pinky/brown discharge too. Should I still be feeling like this, is it normal? Coping with temporary stoma too. Fed up!!
ļ»æHad total hysterectomy and bowel resection 5 week's ago. Still no appetite and so tired, feel stronger in myself physically but feel lifeless. Got pinky/brown discharge too. Should I still be feeling like this, is it normal? Coping with temporary stoma too. Fed up!!
Outlander27
in
Endometriosis UK
2 years ago
Living with Crohn's over 30 years
I was diagnosed with Crohn's in 1985. I was about 16 years old and I had never heard of it before. Admitted to the hospital I was bleeding internally, had lost 30 pounds and was down to 104. I was not allowed to have food or water, Only through IV. This was a 3 month hospital stay. After I was sent
I was diagnosed with Crohn's in 1985. I was about 16 years old and I had never heard of it before. Admitted to the hospital I was bleeding internally, had lost 30 pounds and was down to 104. I was not allowed to have food or water, Only through IV. This was a 3 month hospital stay. After I was sent
shoshchana
in
Crohn's and Colitis Support
2 years ago
Stopping the mini pill for better sex?
Just looking for opinions to help me make my mind up about whether to stop taking the mini pill. Sorry its a long one! I was officially diagnosed with stage 4 deep infiltrating endo last summer after about 7 years. I am on the waiting list for excision surgery, cyst removal, possible ovary removal,
Just looking for opinions to help me make my mind up about whether to stop taking the mini pill. Sorry its a long one! I was officially diagnosed with stage 4 deep infiltrating endo last summer after about 7 years. I am on the waiting list for excision surgery, cyst removal, possible ovary removal,
Petalgirl
in
Endometriosis UK
2 years ago
Treatment choices for severe endo (had first appt with BSGE centre at last!)
Hey everyone! Hope the sun is shining where you are today š I finally had my telephone appointment with someone from my chosen endo specialist centre, after a year of waiting, several cancellations and a last minute change from face-to-face back to a telephone callā¦ I had an MRI in April to check the
Hey everyone! Hope the sun is shining where you are today š I finally had my telephone appointment with someone from my chosen endo specialist centre, after a year of waiting, several cancellations and a last minute change from face-to-face back to a telephone callā¦ I had an MRI in April to check the
Purple_Badgers
in
Endometriosis UK
2 years ago
Interval Debulking Surgery
Was was diagnosed with stage 3c ovarian cancer in Feb 2020 and I had primary debulking surgery followed by carbo/taxol chemotherapy every 3 weeks. I have been diagnosed with reoccourance april 2022 and will need an abdominal tumour removed and possibly bowel resection and stenting my ureter. They
Was was diagnosed with stage 3c ovarian cancer in Feb 2020 and I had primary debulking surgery followed by carbo/taxol chemotherapy every 3 weeks. I have been diagnosed with reoccourance april 2022 and will need an abdominal tumour removed and possibly bowel resection and stenting my ureter. They
kadabra12
in
My Ovacome
2 years ago
Advice please - Raynauds and ET
Hi everyone, I am really struggling at the moment, diagnosed with ET JAK + in 2016, currently on clopidogrel and Hydroxy, splenectomy and small bowel resection due to splenic infarct and inflammatory mass in bowel. Was admitted to hospital in November due to having a white toe which my GP thought may
Hi everyone, I am really struggling at the moment, diagnosed with ET JAK + in 2016, currently on clopidogrel and Hydroxy, splenectomy and small bowel resection due to splenic infarct and inflammatory mass in bowel. Was admitted to hospital in November due to having a white toe which my GP thought may
Janlol
in
MPN Voice
2 years ago
Chemotherapy then debaulking
I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation followed by Chemotherapy which was Carboplatin/Paclitaxel and was in remission for almost 2 years. I have now found out I have an abdominal tumour and also a tumour on my bowelso surgery was discussed which involves bowel
I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation followed by Chemotherapy which was Carboplatin/Paclitaxel and was in remission for almost 2 years. I have now found out I have an abdominal tumour and also a tumour on my bowelso surgery was discussed which involves bowel
kadabra12
in
My Ovacome
2 years ago
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