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question about going to Mayo
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
we have an appointment to see Dr Sartor at Mayo but my husband has read Dr Kwon helps refer patients out of the country for Actinium 225. We saw Dr Sartor when he was at Tulane. Will we be able to discuss Atinium w Dr Sartor or should we also try to see Dr Kwon? What’s the appropriate etiquette?
SuppWife
in
Advanced Prostate Cancer
7 months ago
After 2 Nuclear Ligand treatments should I still have severe bone pain in my lower back?
My SO was diagnosed last year with stage 4 Prostate cancer. Although his PSA never went extremely high (8.0) his Gleason scores were two 8's and a 9. The cancer when diagnosed consumed his complete prostate and was found in the vertebras of his neck, shoulder and shoulder socket plus his pelvis and
My SO was diagnosed last year with stage 4 Prostate cancer. Although his PSA never went extremely high (8.0) his Gleason scores were two 8's and a 9. The cancer when diagnosed consumed his complete prostate and was found in the vertebras of his neck, shoulder and shoulder socket plus his pelvis and
chuigk
in
Advanced Prostate Cancer
7 months ago
Xtandi--Eligibility
Hello, I have been taking Xtandi since June 2022, It has taken my PSA down to <.01 (less than) and so far has kept it there. Which I am very grateful! I am self pay and not old enough to have Medicare (just turned 64). I have recieved the Xtandi thru Astellas pharmacy in Texas. I have always qualified
Hello, I have been taking Xtandi since June 2022, It has taken my PSA down to <.01 (less than) and so far has kept it there. Which I am very grateful! I am self pay and not old enough to have Medicare (just turned 64). I have recieved the Xtandi thru Astellas pharmacy in Texas. I have always qualified
JD-guy
in
Advanced Prostate Cancer
7 months ago
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Castration by Estrogen Patch
This plot shows a dramatic decrease in testosterone and PSA after starting estrogen patch therapy, indicating that transdermal estrogen (TDE) therapy effectively castrates men, and with fewer side effects than Lupron ADT.
This plot shows a dramatic decrease in testosterone and PSA after starting estrogen patch therapy, indicating that transdermal estrogen (TDE) therapy effectively castrates men, and with fewer side effects than Lupron ADT.
janebob99
in
Prostate Cancer Network
7 months ago
infusion Side Effects
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
good morning fellow warriors. My PSA continues to move up so my oncologist ordered 20 sessions of radiation. The radiation was a walk in the park compared to the 1030-1048 Zometa infused Wednesday morning. Holy cow ! Peed (a few dribbles) every half hour. Chills then sweats. Bone ache throughout and
3putt
in
Advanced Prostate Cancer
7 months ago
The paradigm has shifted - castrate resistance.
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
It now appears that I’ve entered the land of castrate resistance and further ADT vacations are no longer in the plan. My T level recovered much more quickly during the last vacation than during previous vacations, and my PSA rose correspondingly. At 4 months my T level was 325 and my PSA was 4. Another
fireandice123
in
Advanced Prostate Cancer
7 months ago
ALP AND RADIUM 223
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
My husband has had 2 sessions of radium 223 and the oncologist is pleased that his ALP has reduced to ‘normal’ levels after the first session and stayed the same after the second. However his PSA has continued to rise and has doubled over the last 3 months since he stopped abiraterone. The oncologist
NLondon43
in
Advanced Prostate Cancer
7 months ago
Neuroendocrine Prostate Cancer mLiver c
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
Found out my ademo morphed to NEPC (neuroendocrine prostate cancer). Hard to get research information on why this happened or treatment options. Any info would be great . My MO hasnt treated before and seems astonished since psa was <.1 for over a year. Says very rarely diagnoised . Thanks in advance
safari123
in
Advanced Prostate Cancer
7 months ago
Lu-177 rhPSMA-10.1 another lutetium! Very promising results
Ah, zee germanz! "The German team reported that of four patients with metastatic prostate cancer who were assessed for radiologic progression-free survival, two had not progressed at 24 and 18 months of follow-up and the other two had progression at 12 and 15 months. The researchers also found that
Ah, zee germanz! "The German team reported that of four patients with metastatic prostate cancer who were assessed for radiologic progression-free survival, two had not progressed at 24 and 18 months of follow-up and the other two had progression at 12 and 15 months. The researchers also found that
Maxone73
in
Advanced Prostate Cancer
7 months ago
Need Help
I posted about a month ago and didn't get any responses. I think it might be because I didn't have much information in the Profile section. I've updated my profile and did the best I can to describe my story. I had HDR Brachytherapy in 2018 to treat prostate cancer. The specifics are now in my Profile
I posted about a month ago and didn't get any responses. I think it might be because I didn't have much information in the Profile section. I've updated my profile and did the best I can to describe my story. I had HDR Brachytherapy in 2018 to treat prostate cancer. The specifics are now in my Profile
Jimbo47
in
Prostate Cancer Network
7 months ago
PSMA PET
I am 60 years old, PSA 6.03 and diagnosed with PC after a TRUS biopsy January 22. The biopsy showed 5 of 12 samples with cancer. Of the 5 samples, 4 were on the right side and were 3 +3=6. The 5th sample was on the left and was 3+4=7. My Urologist sent me for a PSMA PET scan on February 22. The
I am 60 years old, PSA 6.03 and diagnosed with PC after a TRUS biopsy January 22. The biopsy showed 5 of 12 samples with cancer. Of the 5 samples, 4 were on the right side and were 3 +3=6. The 5th sample was on the left and was 3+4=7. My Urologist sent me for a PSMA PET scan on February 22. The
Publicservant
in
Prostate Cancer Network
7 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
7 months ago
Life Expectancy
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
My father was diagnosed with advanced prostate cancer four years ago. Initially, he underwent radiation for a few spots on his ribs and immediately began ADT/Xtandi treatment for two years. His PSA dropped to 0.001, prompting his medical oncologist to recommend a medication vacation. For two years, he
godhelpus
in
Advanced Prostate Cancer
7 months ago
drug vacation
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
Who had PSA level come back all the way down after a drug vacation? I want to do a holiday when my Lupron wears off in a couple months. PSA now is .053. Been on Lupron and abi for six years.
gsun
in
Advanced Prostate Cancer
7 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
7 months ago
Cancer Risk vs %Free PSA Ratio
Here's a plot of the Risk (probability) of getting prostate cancer versus the % Free PSA / Total PSA ratio, for three different ages: 55, 65 and 75 y.o.. Interestingly, the PCa risk decreases as the % Free PSA ratio increases. All men who have their PSA measured should ask for the
% Free PSA
Here's a plot of the Risk (probability) of getting prostate cancer versus the % Free PSA / Total PSA ratio, for three different ages: 55, 65 and 75 y.o.. Interestingly, the PCa risk decreases as the % Free PSA ratio increases. All men who have their PSA measured should ask for the
% Free PSA
janebob99
in
Prostate Cancer Network
7 months ago
PSA Doubling-Time
This plot shows the Cumulative Risk of Death from All-Causes for men with prostate cancer versus Time from Negative Bone Scan (without curative treatment). The different lines show the effect of different PSA doubling times (DT), ranging from DT 15 months. The lines are essentially straight lines
This plot shows the Cumulative Risk of Death from All-Causes for men with prostate cancer versus Time from Negative Bone Scan (without curative treatment). The different lines show the effect of different PSA doubling times (DT), ranging from DT 15 months. The lines are essentially straight lines
janebob99
in
Prostate Cancer Network
7 months ago
PSA flare Post SBRT
Does anyone know how long PSA ca flare after SBRT? Thanks
Does anyone know how long PSA ca flare after SBRT? Thanks
NDJIM
in
Advanced Prostate Cancer
7 months ago
PSMA PET Scan Frequency?
Hello forum members. This is my first post but have learned so much here, thanks to the contributors on this site. My husband’s last and only PSMA PET scan was 1.5 years ago showing 6 mets in small bones after PSA consistently rose a year after radiation. The standard ADT treatment was prescribed
Hello forum members. This is my first post but have learned so much here, thanks to the contributors on this site. My husband’s last and only PSMA PET scan was 1.5 years ago showing 6 mets in small bones after PSA consistently rose a year after radiation. The standard ADT treatment was prescribed
EatLovePray
in
Advanced Prostate Cancer
7 months ago
Abiraterone from 4 tabs daily to 3
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
Finally cracked with MO concerning high blood pressure while using Abiraterone. History of high blood pressure that has went to the ceiling while using Abiraterone. Cardiologist has changed BP meds multiple times with very little relief. Some times during day BO is 180/100 or higher. The Lupron/Abiraterone
85236442968
in
Advanced Prostate Cancer
7 months ago
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