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Hormone therapy for the older generation
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
My calendar is telling me that I've just completed 12 months of hormone therapy (prostap) and my PSA after radio and brachytherapy when last measured was 0.01. I'm nearly 77 and after 12 months, I'm really suffering from complete lack of energy, just getting out of bed in the morning is hard work, I
tunybgur
in
Advanced Prostate Cancer
2 months ago
Question
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
lovepockets
in
Advanced Prostate Cancer
2 months ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
2 months ago
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Prostate Cancer PSA is detectible again
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
I am a 57-year-old male. My prostate cancer was diagnosed in 2019, and I had a radical prostatectomy at Vanderbilt. In early 2023, my PSA went up to 0.12. I underwent a PET scan, which returned negative. However, an MRI revealed a small area at the prostatectomy suture site. On October 27, 2023, I completed
DLetterman
in
Prostate Cancer Network
2 months ago
What treatment next as PSA increasing on Daroludamide & Lupron
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
mklc
in
Advanced Prostate Cancer
2 months ago
SBRT to three bone spots 10 months ago still showing on PSMA PET
SUV started at 15 then 7 now 3. Has anyone experienced similar reduction time, did they eventually resolve completely? Concerned that they might still be hot and grow back. PSA has been stable 0.08.
SUV started at 15 then 7 now 3. Has anyone experienced similar reduction time, did they eventually resolve completely? Concerned that they might still be hot and grow back. PSA has been stable 0.08.
Steel67
in
Advanced Prostate Cancer
2 months ago
Appointment with Provenge doctor
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
Finally found a local doctor to talk with about Provenge. Appointment is early Monday morning. For anyone familiar with Provenge, can you suggest questions for me to ask? My PSA has been rising after six years on Lupron only. 1.92 in June, all-time lows .5 3/2021.
dhccpa
in
Advanced Prostate Cancer
2 months ago
Getting Tired of This Sh*t
Hi Gents, Prior to having my fifth round of Pluvicto, I had bloodwork done at Quest Labs. I had the lab perform orders from three separate doctors. For some reason, they ran my PSA two times from the same blood draw. I had two different results: 21.51 and 30.0. Prior to my infusion at Stanford today
Hi Gents, Prior to having my fifth round of Pluvicto, I had bloodwork done at Quest Labs. I had the lab perform orders from three separate doctors. For some reason, they ran my PSA two times from the same blood draw. I had two different results: 21.51 and 30.0. Prior to my infusion at Stanford today
MJCA
in
Prostate Cancer And Gay Men
2 months ago
Hoping Pluvicto was Working
Hi Gents, Prior to having my fifth round of Pluvicto, I had bloodwork done at Quest Labs. I had the lab perform orders from three separate doctors. For some reason, they ran my PSA two times from the same blood draw. I had two different results: 21.51 and 30.0. Prior to my infusion at Stanford today
Hi Gents, Prior to having my fifth round of Pluvicto, I had bloodwork done at Quest Labs. I had the lab perform orders from three separate doctors. For some reason, they ran my PSA two times from the same blood draw. I had two different results: 21.51 and 30.0. Prior to my infusion at Stanford today
MJCA
in
Advanced Prostate Cancer
2 months ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
2 months ago
A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
2 months ago
Patient Stress and Anxiety Test
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Ive been off of Abiraterone over 2 months now due to Afib. Was on it 21 months Only on Lupron starting 3rd year. Did full pelvic radiation. I treated myself to a Us PSA test, and Im at <0.02. MO agreed to let me stay off Abi, and retest in 3 months, Fingers crossed.
Still_in_shock
in
Advanced Prostate Cancer
2 months ago
Iver for prostate issues
my husband has a PSA of 20 he had a biopsy and no cancer. However, there is a mass small. They did a biopsy three months ago and it was benign but now the mass is a little bigger. would Iver be effective for this. Thank you
my husband has a PSA of 20 he had a biopsy and no cancer. However, there is a mass small. They did a biopsy three months ago and it was benign but now the mass is a little bigger. would Iver be effective for this. Thank you
Perogies
in
Fight Prostate Cancer
2 months ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
2 months ago
Minor change in psa - reason to be concern?
Hi, My dad just got an update on his PSA #. 3 weeks ago his PSA was 0.37, our family went on vacation, and he just got back and had his blood work done again. All enzymes normal, but PSA ticked up slightly to 0.47. Is this concerning at all? I thought PSA was suppose to trend to undetectable levels
Hi, My dad just got an update on his PSA #. 3 weeks ago his PSA was 0.37, our family went on vacation, and he just got back and had his blood work done again. All enzymes normal, but PSA ticked up slightly to 0.47. Is this concerning at all? I thought PSA was suppose to trend to undetectable levels
Cafu6
in
Advanced Prostate Cancer
2 months ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
2 months ago
Trying not to freak out!
Hello all! So glad that we all have this platform to vent, it really has helped me so much! So let me start by saying Thank You! Trying so hard not to freak out... I had Cyberknife treatment in January of 2024. My last session was on January 17th. When I started the journey, my PSA was 13.72, I had
Hello all! So glad that we all have this platform to vent, it really has helped me so much! So let me start by saying Thank You! Trying so hard not to freak out... I had Cyberknife treatment in January of 2024. My last session was on January 17th. When I started the journey, my PSA was 13.72, I had
SadandScared
in
Prostate Cancer And Gay Men
2 months ago
Darolutamide 1200mg/day?
Lately my MO has put me on 1200mg a day of Nubeqa or Darolutamide with 3 monthly Zoladex injection. My PSA was 6.4 & was reduced to 2.4 in 5 weeks. So that is good, but my question is, has anyone here been on that amount of Darolutamide a day? & What is it doing to the heart? not to mention liver
Lately my MO has put me on 1200mg a day of Nubeqa or Darolutamide with 3 monthly Zoladex injection. My PSA was 6.4 & was reduced to 2.4 in 5 weeks. So that is good, but my question is, has anyone here been on that amount of Darolutamide a day? & What is it doing to the heart? not to mention liver
ARIES29
in
Advanced Prostate Cancer
2 months ago
Treatment awaited
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Sisyphus
in
Advanced Prostate Cancer
2 months ago
My History to date
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Diagnosed 09/2019 PSA 12.8 T2C Grade Group 5 - (4+5) Cores right posterior @15mm length, cores right mid and left posterior Grade Group 4 MRI showing Pi-Rads 5 lesion right side successfully targeted N0 Pet PSMA showing avidity right side of prostate and two avid lymph nodes common iliac and external
Sisyphus
in
Advanced Prostate Cancer
2 months ago
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