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Natural remedies and food supplements
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
Elffindoe
in
Restless Legs Syndrome
3 years ago
MSA with Ambroxol HCL - a tentative success story!
Final edit update! Writing this 13/2/23. While our success with early ambroxol looked positive, her disease progression continued. At this point my guess is that it affects downstream symptoms, but only clinical trials will be able to say if it slows progression. Also, although it did greatly improve
Final edit update! Writing this 13/2/23. While our success with early ambroxol looked positive, her disease progression continued. At this point my guess is that it affects downstream symptoms, but only clinical trials will be able to say if it slows progression. Also, although it did greatly improve
Robb48
in
Cure Parkinson's
3 years ago
Brain a thon. Looks interesting
https://www.myneurogym.com/brainathon/?utm_source=affiliate_awhitten&utm_content=9THBATREGISTRATIONPG&promo=9THBATREGISTRATIONPG&el=affiliate_awhitten&p=awhitten&w=9THBATREGISTRATIONPG&inf_contact_key=5a9c2218621d5f0d97bf56b67fa753b3cc0558ed5d4c28cbfab114022b1ec50d “What you’re going to learn (for FREE
https://www.myneurogym.com/brainathon/?utm_source=affiliate_awhitten&utm_content=9THBATREGISTRATIONPG&promo=9THBATREGISTRATIONPG&el=affiliate_awhitten&p=awhitten&w=9THBATREGISTRATIONPG&inf_contact_key=5a9c2218621d5f0d97bf56b67fa753b3cc0558ed5d4c28cbfab114022b1ec50d “What you’re going to learn (for FREE
LAJ12345
in
Cure Parkinson's
3 years ago
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Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
my dopamine levels are not coming back to normal
Rls stopped taking ropinirole 3 months ago because of augmentation the good side my RLS has almost stopped and under control no medications been on ropinirole for 10 years but it seems my dopamine levels are not coming back and making me fall a sleep / fatigue /no drive all blood test normal Any
Rls stopped taking ropinirole 3 months ago because of augmentation the good side my RLS has almost stopped and under control no medications been on ropinirole for 10 years but it seems my dopamine levels are not coming back and making me fall a sleep / fatigue /no drive all blood test normal Any
Browne1212
in
Restless Legs Syndrome
3 years ago
Transcript to interview with Dr. Catherine Hamilton, co-creator of the Coronet Duo Red Hat.
This is Michel2020's project and he posted links to this and a few other videos a while back. This transcript takes up a lot of room so I am posting it separately from jimcaster's post down thread. --------- Red light therapy Sep 8, 2021 Nosilverbullet4pd https://www.youtube.com/watch?v=RscgHLusImc
This is Michel2020's project and he posted links to this and a few other videos a while back. This transcript takes up a lot of room so I am posting it separately from jimcaster's post down thread. --------- Red light therapy Sep 8, 2021 Nosilverbullet4pd https://www.youtube.com/watch?v=RscgHLusImc
park_bear
in
Cure Parkinson's
3 years ago
Drowning Us In Dopamine?
I don't subscribe to the Wall Street Journal, so I can only read headlines on Facebook, but not the actual article. I just saw this headline: Digital Addictions Are Drowning Us in Dopamine. "Yes, please", I thought with a smile. 😄😁😆😊
I don't subscribe to the Wall Street Journal, so I can only read headlines on Facebook, but not the actual article. I just saw this headline: Digital Addictions Are Drowning Us in Dopamine. "Yes, please", I thought with a smile. 😄😁😆😊
jimcaster
in
Cure Parkinson's
3 years ago
Aerobic Exercise: Evidence for a Direct Brain Effect to Slow Parkinson Disease Progression
Dr Ahlskog with a quick review of the studies which looked at the benefit of aerobic exercise for PWP (2018) https://www.youtube.com/watch?v=1xFybA9udbo
Note, he ends with the most significant point. You need to take C/L such that you can move well and thus be able to exercise!
The complete paper
Dr Ahlskog with a quick review of the studies which looked at the benefit of aerobic exercise for PWP (2018) https://www.youtube.com/watch?v=1xFybA9udbo
Note, he ends with the most significant point. You need to take C/L such that you can move well and thus be able to exercise!
The complete paper
Hidden
in
Cure Parkinson's
3 years ago
Coming off meds
Hi all fellow sufferers. I take 0.09mg mirapexin, 235mg magnesium and 1/2 teaspoonful Kratom every evening. Once a week I take just tramadol. My rls is not completely ok but I manage it. I've had it for about 30 years. I daren't drink wine and keep my sugar consumption low. My question is can I stop
Hi all fellow sufferers. I take 0.09mg mirapexin, 235mg magnesium and 1/2 teaspoonful Kratom every evening. Once a week I take just tramadol. My rls is not completely ok but I manage it. I've had it for about 30 years. I daren't drink wine and keep my sugar consumption low. My question is can I stop
Memmy
in
Restless Legs Syndrome
3 years ago
Suspected PA
I'm so confused and GPs seem to have no idea what's going on, I even went to a neurologist to get tests done and she said the tests she did said I'm fine, that I'm clever and I'll be able to figure it out; this hasn't exactly been that useful in resolving my symptoms. I apologise in advance if this
I'm so confused and GPs seem to have no idea what's going on, I even went to a neurologist to get tests done and she said the tests she did said I'm fine, that I'm clever and I'll be able to figure it out; this hasn't exactly been that useful in resolving my symptoms. I apologise in advance if this
Zerobasher
in
Pernicious Anaemia Society
3 years ago
Does Melatonin Deplete Dopamine?
https://pubmed.ncbi.nlm.nih.gov/12043836/#:~:text=Inhibition%20of%20dopamine%20release%20by,been%20demonstrated%20in%20the%20striatum.
https://pubmed.ncbi.nlm.nih.gov/12043836/#:~:text=Inhibition%20of%20dopamine%20release%20by,been%20demonstrated%20in%20the%20striatum.
Thal
in
Cure Parkinson's
3 years ago
Too Much D1...anyone? The untold (?) story behind augmentation
Let me preface (what's going to be an incredibly long post) with the fact that I know nothing about dopamine agonists or augmentation, except that the suffering it causes is more than I can bare. So first off, congrats to Kaarina, Jools, Elisse, Madlegs, Manerva and all those on here who tirelessly
Let me preface (what's going to be an incredibly long post) with the fact that I know nothing about dopamine agonists or augmentation, except that the suffering it causes is more than I can bare. So first off, congrats to Kaarina, Jools, Elisse, Madlegs, Manerva and all those on here who tirelessly
Hidden
in
Restless Legs Syndrome
3 years ago
caudate nucleus?
"In conclusion, PD and ET do not share a common pattern of dopaminergic loss over time. However, mild impairment of dopamine transporter in the caudate nucleus may contribute to tremor onset in ET." I've harped on this before. But I'm still not clear on PD diagnosis. Could this "mild impairment
"In conclusion, PD and ET do not share a common pattern of dopaminergic loss over time. However, mild impairment of dopamine transporter in the caudate nucleus may contribute to tremor onset in ET." I've harped on this before. But I'm still not clear on PD diagnosis. Could this "mild impairment
kaypeeoh
in
Cure Parkinson's
3 years ago
WHO WILL DARE TO CUT THE GORDIAN KNOT OF PARKINSON'S AT LAST?
"You can't untie a knot without knowing how it is tied." Aristotle "It is the same to cut it as to untie it." Alexander the Great, Aristotle's pupil (according to the account of Curtius Rufus) (In addition to greeting the HealthUnlocked community and thanking you for everything I am learning here
"You can't untie a knot without knowing how it is tied." Aristotle "It is the same to cut it as to untie it." Alexander the Great, Aristotle's pupil (according to the account of Curtius Rufus) (In addition to greeting the HealthUnlocked community and thanking you for everything I am learning here
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Pramipexole
I tried 1 pill of Cymbalta. Disaster!!! I was awake ALL night, my left leg bouncing something fierce. The next day my right leg started going crazy and while I was driving. Good thing for cruise control... I called my doc and told her about the Cymbalta and she prescribed a new one that is pramipexole
I tried 1 pill of Cymbalta. Disaster!!! I was awake ALL night, my left leg bouncing something fierce. The next day my right leg started going crazy and while I was driving. Good thing for cruise control... I called my doc and told her about the Cymbalta and she prescribed a new one that is pramipexole
Notlikinthis
in
Restless Legs Syndrome
3 years ago
Gut microbiota and metabolites of α-synuclein transgenic monkey models with early stage of Parkinson’s disease - Sept 2021
https://www.nature.com/articles/s41522-021-00242-3 Did I understand this report? No. It is open access, so you get to read it all. There's lots of interesting stuff in the "Discussion" section. I just read through it and hoped something useful would get stuck in my head. I think a few things did:
https://www.nature.com/articles/s41522-021-00242-3 Did I understand this report? No. It is open access, so you get to read it all. There's lots of interesting stuff in the "Discussion" section. I just read through it and hoped something useful would get stuck in my head. I think a few things did:
Bolt_Upright
in
Cure Parkinson's
3 years ago
What is Tetrahydrobiopterin (BH4) and How Can I Make More of it?
Tetrahydrobiopterin (BH4, sometimes THB) is a vital cofactor for numerous enzymes in the body, including those involved in the formation of nitric oxide (NO), and the key neurotransmitters dopamine, serotonin and epinephrine. https://www.mygenefood.com/blog/tetrahydrobiopterin-bh4-can-make/
Tetrahydrobiopterin (BH4, sometimes THB) is a vital cofactor for numerous enzymes in the body, including those involved in the formation of nitric oxide (NO), and the key neurotransmitters dopamine, serotonin and epinephrine. https://www.mygenefood.com/blog/tetrahydrobiopterin-bh4-can-make/
Kia17
in
Cure Parkinson's
3 years ago
Statin use may have a detrimental effect (faster increase in levodopa & dementia conversion )
"This study suggests that statin use may have a detrimental effect on baseline nigrostriatal dopamine degeneration and long-term outcomes in patients with Parkinson’s disease." https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awab292/6339771
"This study suggests that statin use may have a detrimental effect on baseline nigrostriatal dopamine degeneration and long-term outcomes in patients with Parkinson’s disease." https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awab292/6339771
Hidden
in
Cure Parkinson's
3 years ago
Paper on meds that help DA withdrawal
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Frustrated-RLS
in
Restless Legs Syndrome
3 years ago
Antioxidant Urate (Inosine) Fails to Slow Early Disease Progression
Posting this as some of the members were discussing Inosine as far as I remember.
The antioxidant urate failed to slow Parkinson’s disease progression in newly diagnosed patients over two years, according to data from a Phase 3 clinical trial. “While our study did not rule out a protective effect
Posting this as some of the members were discussing Inosine as far as I remember.
The antioxidant urate failed to slow Parkinson’s disease progression in newly diagnosed patients over two years, according to data from a Phase 3 clinical trial. “While our study did not rule out a protective effect
Hidden
in
Cure Parkinson's
3 years ago
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