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Making it real
After a LOT of trips to hospitals and
dialysis
centers, she got a transplant in 1977. She died when I was 14. I was always under the impression that I'd dodged a bullet because doctors performed an IVP when I was 12, and it came up negative for PKD.
After a LOT of trips to hospitals and
dialysis
centers, she got a transplant in 1977. She died when I was 14. I was always under the impression that I'd dodged a bullet because doctors performed an IVP when I was 12, and it came up negative for PKD.
PeaB4YouGo
in
Kidney Disease
2 years ago
I would like to build a website to help people on dialysis. But since there are so many factors to consider, I'm hoping to get insights
What kind of website do you think will be most beneficial in helping people on
dialysis
? a social website that people can connect and share their experience online? maybe share information to better educate patients? Perhaps a website that allows people to share their feelings? pain, frustration?
What kind of website do you think will be most beneficial in helping people on
dialysis
? a social website that people can connect and share their experience online? maybe share information to better educate patients? Perhaps a website that allows people to share their feelings? pain, frustration?
mambata
in
Kidney Dialysis
2 years ago
2 years again
I have been on
dialysis
for the second time . I lost both kidneys when I was 32 due to a virial infection . Spent 2 years on hemo
dialysis
in 1994-1996 then a perfect match from a wonderful doner .
I have been on
dialysis
for the second time . I lost both kidneys when I was 32 due to a virial infection . Spent 2 years on hemo
dialysis
in 1994-1996 then a perfect match from a wonderful doner .
bubbaboo2
in
Kidney Dialysis
2 years ago
Want to take advantage of all our features? Just log in!
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Join
Discord for Dialysis Patients
I just wanted to make an updated post about the
Dialysis
discord we have. This discord serves a purpose for people who are going thru
dialysis
and want to have a place to feel at home.
I just wanted to make an updated post about the
Dialysis
discord we have. This discord serves a purpose for people who are going thru
dialysis
and want to have a place to feel at home.
Thizzle
in
Kidney Dialysis
2 years ago
Discord for Dialysis Patients
I just wanted to make an updated post about the
Dialysis
discord we have. This discord serves a purpose for people who are going thru
dialysis
and want to have a place to feel at home.
I just wanted to make an updated post about the
Dialysis
discord we have. This discord serves a purpose for people who are going thru
dialysis
and want to have a place to feel at home.
Thizzle
in
Kidney Disease
2 years ago
Best high protein PD dialysis diet smoothie recipes
Ok, I may have gotten some responses before, but I apologize, I've forgotten them and didn't write them down. What is your favorite high protein smoothie recipes and what kind of machine do you have to make them in?
Ok, I may have gotten some responses before, but I apologize, I've forgotten them and didn't write them down. What is your favorite high protein smoothie recipes and what kind of machine do you have to make them in?
RonZone
in
Kidney Dialysis
2 years ago
5 Perfect Gifts for Your Loved One on Dialysis
We can take some of the burden off your plate with five gifts that are perfect for your loved one who is on
dialysis
or has a chronic illness. To learn more, visit: https://www.kidney.org/newsletter/5-perfect-gifts-your-loved-one-
dialysis
We can take some of the burden off your plate with five gifts that are perfect for your loved one who is on
dialysis
or has a chronic illness. To learn more, visit: https://www.kidney.org/newsletter/5-perfect-gifts-your-loved-one-
dialysis
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
Rooting for my brother - please join me
He may have to get on urgent
dialysis
with permcath once his current issues are diagnosed and resolved. Please join me in rooting for him with your words of support. I will share them with him to raise his spirits. Thank you!
He may have to get on urgent
dialysis
with permcath once his current issues are diagnosed and resolved. Please join me in rooting for him with your words of support. I will share them with him to raise his spirits. Thank you!
strugglingwaps
in
Hughes Syndrome APS Forum
2 years ago
I can't shake it
I constantly think about dying and I'm on kidney
dialysis
. I'm anxious for this to be over. This end of life is hard on me.
I constantly think about dying and I'm on kidney
dialysis
. I'm anxious for this to be over. This end of life is hard on me.
nonova1
in
Anxiety and Depression Support
2 years ago
I can't shake it
I constantly think about dying and I'm on kidney
dialysis
. I'm anxious for this to be over. This end of life is hard on me.
I constantly think about dying and I'm on kidney
dialysis
. I'm anxious for this to be over. This end of life is hard on me.
nonova1
in
Anxiety and Depression Support
2 years ago
Reading a book
I have been on
Dialysis
about two years, I pass my time reading on the iPad or Audible books. I still prefer a real book, but as my fistula is in my left arm above the wrist., I find reading hard back books or any book for that matter quite hard. Anyone found an easy method?
I have been on
Dialysis
about two years, I pass my time reading on the iPad or Audible books. I still prefer a real book, but as my fistula is in my left arm above the wrist., I find reading hard back books or any book for that matter quite hard. Anyone found an easy method?
Scete
in
Kidney Dialysis
2 years ago
Holiday post blues
The past five years on
dialysis
coupled with my Bipolar depression and anxiety have just done a number on me physically and emotionally !
The past five years on
dialysis
coupled with my Bipolar depression and anxiety have just done a number on me physically and emotionally !
Frankie24
in
Anxiety and Depression Support
2 years ago
When folks are at the dialysis center do you use a tablet or phone?
Hello Again, As I mentioned before, I am a User Interface Design Student who are building a site to help people who are undergoing
dialysis
. Like my sister, she uses her phone to watch Youtube videos to pass time.
Hello Again, As I mentioned before, I am a User Interface Design Student who are building a site to help people who are undergoing
dialysis
. Like my sister, she uses her phone to watch Youtube videos to pass time.
mambata
in
Kidney Dialysis
2 years ago
Cystatin C W/EGFR test
My husband is nearing
dialysis
with low kidney function. His Nephrologist added this blood test which is supposed to be the “gold standard” in measuring kidney function. He came in at 9.32 %. Has anyone else had this test?
My husband is nearing
dialysis
with low kidney function. His Nephrologist added this blood test which is supposed to be the “gold standard” in measuring kidney function. He came in at 9.32 %. Has anyone else had this test?
Snowpeak
in
Kidney Disease
1 year ago
The Kidney Project
Even 1 percent of annual
dialysis
expenditure from federal budget would make a big difference. And I suggested that CKD patients community should support and encourage the project team. They should be protected especially against the
dialysis
industry sharks! And guess what happend?
Even 1 percent of annual
dialysis
expenditure from federal budget would make a big difference. And I suggested that CKD patients community should support and encourage the project team. They should be protected especially against the
dialysis
industry sharks! And guess what happend?
milo_miller
in
Kidney Disease
2 years ago
Cruise ports of call and dialysis
Any suggestions for my husband on ports of call
dialysis
clinics in Cabo and Puerta Vallerta? The cruise ship does not have
dialysis
on ship, so he has to go off ship...we will be out for 7 days...
Any suggestions for my husband on ports of call
dialysis
clinics in Cabo and Puerta Vallerta? The cruise ship does not have
dialysis
on ship, so he has to go off ship...we will be out for 7 days...
Cats1561
in
Kidney Disease
2 years ago
hospital visit
How low did other people go with their gfr before
dialysis
- is there any hope for me. Thanks for reading
How low did other people go with their gfr before
dialysis
- is there any hope for me. Thanks for reading
fartikins
in
Kidney Disease
2 years ago
Diet to lose weight
What is best diet you have found to lose weight while on
dialysis
?
What is best diet you have found to lose weight while on
dialysis
?
NurseRed
in
Kidney Dialysis
2 years ago
Pain pkd
I hope when I actually start
dialysis
the back pain does not get worse. Sorry for the vent. I’ really haven’t slept I just needed to express myself with other who understand.
I hope when I actually start
dialysis
the back pain does not get worse. Sorry for the vent. I’ really haven’t slept I just needed to express myself with other who understand.
Beachgirl32
in
Kidney Dialysis
2 years ago
Weight gain?
I was never on
dialysis
, close but I never had to undergo that phase, thankfully. I lost approximately 20 lbs. post transplant, mostly water weight according to doctors. I’m undergoing labs every 3-4 days and my numbers are good. BP is good. My only concern is I’m very thin, haven’t gained a pound.
I was never on
dialysis
, close but I never had to undergo that phase, thankfully. I lost approximately 20 lbs. post transplant, mostly water weight according to doctors. I’m undergoing labs every 3-4 days and my numbers are good. BP is good. My only concern is I’m very thin, haven’t gained a pound.
Countryclub
in
Kidney Transplant
2 years ago
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