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Pred timing
Is it better to take Medrol at nighttime inside the time release capsules or in the morning? I had been taking at nighttime and after watching Dr Sarah Mackie’s recent lecture I have changed it to the morning. But am feeling stiffer and a bit more achy. She states that taking the prednisone in the morning
Is it better to take Medrol at nighttime inside the time release capsules or in the morning? I had been taking at nighttime and after watching Dr Sarah Mackie’s recent lecture I have changed it to the morning. But am feeling stiffer and a bit more achy. She states that taking the prednisone in the morning
kimsaunsc
in
PMRGCAuk
3 years ago
Officially tapering as of today~!
Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my right eye so went back up to 16 mg per day. Since November 2020 I've been on 12 Medrol per day along with Actemra. I had mentioned in a post
Sometimes I am confused as to whether this is attempt 3 or 4, I think it is 3. In July of 2020 I got down to 8 mg of Medrol but started having blurriness in my right eye so went back up to 16 mg per day. Since November 2020 I've been on 12 Medrol per day along with Actemra. I had mentioned in a post
Grammy80
in
PMRGCAuk
3 years ago
More PT
Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS. I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some
Good morning to all my ms family. I pray everyone is doing as well as they can taming this monster named MS. I had a Neurologist appt Wednesday. I was having a little problem with major more than normal fatigue stopping my Gilyena to switch to Ocrevus. So he ordered a 3 day round of solumedrol and some
Doubled51
in
My MSAA Community
3 years ago
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Out of Remission. Starting over...
Hi everyone, Unfortunately after three months of remission I had a very bad flareup. The week before my husband and I were leaving for Maine (Sept) I decided to get a flu shot. Four days later while in Maine I started not to feel well. The usual PMR symptoms. I had no medication with me. My doctor
Hi everyone, Unfortunately after three months of remission I had a very bad flareup. The week before my husband and I were leaving for Maine (Sept) I decided to get a flu shot. Four days later while in Maine I started not to feel well. The usual PMR symptoms. I had no medication with me. My doctor
Marie1479
in
PMRGCAuk
3 years ago
Has anyone else noticed hormone requirement changing once you reach end-stage Hashimoto´s?
I expected to required T3 and T4 at this stage, but not only do I only seem to require T4, but also lower doses now than 20 years ago when I was diagnosed. Back then, an ultrasound showed my thyroid gland was of normal size, but that there was already extensive damage to the hormone-producing cells.
I expected to required T3 and T4 at this stage, but not only do I only seem to require T4, but also lower doses now than 20 years ago when I was diagnosed. Back then, an ultrasound showed my thyroid gland was of normal size, but that there was already extensive damage to the hormone-producing cells.
Hidden
in
Thyroid UK
3 years ago
I paid the doctor....now for your input!
First let me say my laptop is in the shape...I’m not too fast on the Ipad! The rheumatologist told me today that he wants me to stay on Actemra for another month before tapering. AND....he is going to switch me from prednisolone (Been on —solone for 15 months) to prednisone per day for this coming
First let me say my laptop is in the shape...I’m not too fast on the Ipad! The rheumatologist told me today that he wants me to stay on Actemra for another month before tapering. AND....he is going to switch me from prednisolone (Been on —solone for 15 months) to prednisone per day for this coming
Grammy80
in
PMRGCAuk
3 years ago
Taper?- small reductions but is in relapse or withdrawal ?
Dear PMR, Could I ask a question about dosage, tapering and possible relapse. My original symptoms were triggered, I think, a very, very bad chest infection 18 months ago where I was very ill for a month and a half. I appeared to recover, but then and after 8 months, these symptoms came about suddenly
Dear PMR, Could I ask a question about dosage, tapering and possible relapse. My original symptoms were triggered, I think, a very, very bad chest infection 18 months ago where I was very ill for a month and a half. I appeared to recover, but then and after 8 months, these symptoms came about suddenly
Predderman2020
in
PMRGCAuk
3 years ago
Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?
Picture: Covid-19 BMJ Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication.
Biologic Infusions
Nearly as soon as the mRNA COVID-19 vaccines from Pfizer and Moderna were
Picture: Covid-19 BMJ Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication.
Biologic Infusions
Nearly as soon as the mRNA COVID-19 vaccines from Pfizer and Moderna were
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
My Neuro Appt.
Was yesterday morning.. good thing to, cause I lost power for for close to 4 hrs.😒 My muscles in my back and neck have been so tight. That I actually liked those WWF wrestlers 😭 and it hurt, OMG it hurt! All because of the steroids. So 1st thing on the chopping block... NO MORE!! Prednisone? NOOO
Was yesterday morning.. good thing to, cause I lost power for for close to 4 hrs.😒 My muscles in my back and neck have been so tight. That I actually liked those WWF wrestlers 😭 and it hurt, OMG it hurt! All because of the steroids. So 1st thing on the chopping block... NO MORE!! Prednisone? NOOO
Jesmcd2
CommunityAmbassador
in
My MSAA Community
3 years ago
True that!
How are you doing with your MS? 🤔 Mine stinks! Always stinks!🤣 Had Ocruvus on Monday, w/ solumedrol.. the reaction to it, hit me in the middle of Weds. I hurt soooooo bad😭😭 I can hardly turn my neck! I so hate steroids!! Nough bout me! Tell me about you! 🤗💕🌠
How are you doing with your MS? 🤔 Mine stinks! Always stinks!🤣 Had Ocruvus on Monday, w/ solumedrol.. the reaction to it, hit me in the middle of Weds. I hurt soooooo bad😭😭 I can hardly turn my neck! I so hate steroids!! Nough bout me! Tell me about you! 🤗💕🌠
Jesmcd2
CommunityAmbassador
in
My MSAA Community
3 years ago
Late Christmas wishes.
Merry Christmas wishes to my loving MS family. My flare turned into a pretty bad relapse and pretty much put my pt on extremely light duty the last 2 weeks but I’m happy to say my neurologist finally ordered 3 days of solumedrol Wednesday so they got supplies to me Wednesday night and a nurse to the
Merry Christmas wishes to my loving MS family. My flare turned into a pretty bad relapse and pretty much put my pt on extremely light duty the last 2 weeks but I’m happy to say my neurologist finally ordered 3 days of solumedrol Wednesday so they got supplies to me Wednesday night and a nurse to the
Doubled51
in
My MSAA Community
4 years ago
Vasculitis in my Spine "Central nervous system Vasculitis"
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Just about over a massive flare. It came on sudden. Had a terrible migraine for 3 days with pain in my lower back, discomfort in my spine and pain in my legs that felt like growing pains yet I'm an adult. It was there constantly and nagging. Just felt strange. Woke the Sunday morning with not being
Zuzu798
in
Behçet's UK
4 years ago
Ocrevus
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
I started Solu Medrol 1000mg x 3 treatment on yesterday and will complete on 11/13. I’m getting ready to start Ocrevus after I was told Tecfidera is failing after 2 1/2mths, I developed 2 lesion one an active and other nonactive since Last MRI In Feb. As I was told the lesions possible developed during
JSSimp
in
My MSAA Community
4 years ago
What was your Medrol protocol? Worried my doctor doesn't know what he is doing. Please help
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Hi All, Sorry for the aggressive title but I am nervous because my doctor doesn't normally prescribe steroids and I have pressured him into allowing me to try them after 6 failed FET's with DONOR eggs. They were all perfect PGS tested embryos. Its been absolutely devastating and I will be trying with
Msze
in
Fertility Network UK
4 years ago
Medrol?
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Hi Eveyone- Hoping to hear some success stories with FET while using Medrol? I have one embryo left. I had 2 failed transfers prior with perfect PGS tested embryos in July and September. I also have had a chemical pregnancy in the past with a FET that was not PGS tested. This is my last embryo and the
Msze
in
Fertility Network UK
4 years ago
Been to hormone specialist...not sure what to think?!
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
I am new here, but not new to thyroid problems. I was diagnosed with Hashimotos in 2001 after years of symptoms no doctor could explain: high blood pressure difficult to control even with medication, hair loss, high cholesterol, weight gain and fluid retention. Doctors suggested I was eating too much
Annacat69
in
Thyroid UK
4 years ago
TPLL
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
I want to thank you all again for welcoming me into your community. Mike's cancer diagnosis has been very unique. As has his treatment. I don't recall what I have already shared, but his actual diagnosis ended up being TPLL (Tcell Prolymphocytic Leukemia). His WBC count went from 432,000 on 9/30 to 530,000
Whatadayitwas
in
CLL Support
4 years ago
Trying to reduce Medrol
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
Diagnosed quickly in May in US. Pain control worked at 32 mg Medrol. Currently at 20 mg and feel pretty good! Shoulders are sore in the morning but mild compared to initial onset pain. Due to reduce again in a few days and wondering if I should go to 18 mg or down to 16? I keep reading 10% reduction
kimsaunsc
in
PMRGCAuk
4 years ago
Shortest Time Between Steroid Sets?
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
What is the shortest amount of time you've had between needing sets of steroids? Background: I only started showing symptoms in March 2019, and I've been lucky that they are still pretty mild (mostly just occasional tingling and altered sensation, with some swallowing difficulty and increased constipation
FuzzyBoots
in
My MSAA Community
4 years ago
Neurostimulator device for overactive bladder
She's tried several medications, including
Detrol
, but has not had much luck. Her urologist has suggested surgery for something called a neurostimulating device that's implanted in her lower back. Has anyone else had experience with this type of device? Wondering if you've had any improvement.
She's tried several medications, including
Detrol
, but has not had much luck. Her urologist has suggested surgery for something called a neurostimulating device that's implanted in her lower back. Has anyone else had experience with this type of device? Wondering if you've had any improvement.
Yellowretreiver
in
The Simon Foundation for Continence
4 years ago
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