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Shake up your little world and listen for a minute
I''ve started this blasted letter a half-dozen times and I am getting tired of being charming. :-) So you are getting the plain spoken version. How on God's green earth can anyone with PD be unaware of the importance of stress in the disease??? Those of us in the early stages thrive on it! We humbly
I''ve started this blasted letter a half-dozen times and I am getting tired of being charming. :-) So you are getting the plain spoken version. How on God's green earth can anyone with PD be unaware of the importance of stress in the disease??? Those of us in the early stages thrive on it! We humbly
reverett123
in
Cure Parkinson's
12 years ago
Interested in a TV show about a politician with Lewy Bodies/?PD?
"Boss". Anybody here from Chicago or familiar with Chicago's City Hall politics? After all Chicago received its cliche's name the "Windy City" not because of its actual climatic and occassional winds experienced by any other cities elsewhere but rather because of it's vibrant and often political atmosphiric
"Boss". Anybody here from Chicago or familiar with Chicago's City Hall politics? After all Chicago received its cliche's name the "Windy City" not because of its actual climatic and occassional winds experienced by any other cities elsewhere but rather because of it's vibrant and often political atmosphiric
ma4PDcure
in
Cure Parkinson's
12 years ago
World Association of Sleep Medicine (WASM) announces September 23, 2012 as Restless Legs Syndrome Awareness Day
September 23, 2012 marks Restless Legs Syndrome Awareness Day. This year, the RLS Foundation in the United States and Canada, the European Alliance for Restless Legs Syndrome (EARLS), the European Restless Legs Syndrome Study Group (EU-RLSSG), the International RLS Study Group (IRLSSG), and the World
September 23, 2012 marks Restless Legs Syndrome Awareness Day. This year, the RLS Foundation in the United States and Canada, the European Alliance for Restless Legs Syndrome (EARLS), the European Restless Legs Syndrome Study Group (EU-RLSSG), the International RLS Study Group (IRLSSG), and the World
saanzale
in
Restless Legs Syndrome
12 years ago
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Click here to view this message as HTML in your browser. VANDERBILT– BMS COLLABORATION LEVERAGING MJFF INVESTMENT COULD PUSH NEW PARADIGM OF SYMPTOMATIC TREATMENT TO THE CLINIC BY 2013 On the heels of nearly $5 million in Michael J. Fox Foundation (MJFF) investment, Vanderbilt University today announced
Click here to view this message as HTML in your browser. VANDERBILT– BMS COLLABORATION LEVERAGING MJFF INVESTMENT COULD PUSH NEW PARADIGM OF SYMPTOMATIC TREATMENT TO THE CLINIC BY 2013 On the heels of nearly $5 million in Michael J. Fox Foundation (MJFF) investment, Vanderbilt University today announced
Hidden
in
Cure Parkinson's
12 years ago
rls and other stuff
I have often wondered about the connection of rls and other psychological stuff. I am a recovering alcoholic of 14 years and started drinking at 15. my rls started when i was a kid. does anyone think like i do or have any theories about the physical link (maybe dopamine) of rls and addiction where dopamine
I have often wondered about the connection of rls and other psychological stuff. I am a recovering alcoholic of 14 years and started drinking at 15. my rls started when i was a kid. does anyone think like i do or have any theories about the physical link (maybe dopamine) of rls and addiction where dopamine
thedragon
in
Restless Legs Syndrome
12 years ago
New info
Scientists at the University of Houston (UH) have discovered what may possibly be a key ingredient in the fight against Parkinson's disease. Affecting more than 500,000 people in the U.S., Parkinson's disease is a degenerative disorder of the central nervous system marked by a loss of certain nerve
Scientists at the University of Houston (UH) have discovered what may possibly be a key ingredient in the fight against Parkinson's disease. Affecting more than 500,000 people in the U.S., Parkinson's disease is a degenerative disorder of the central nervous system marked by a loss of certain nerve
Susie01
in
Cure Parkinson's
12 years ago
Hi
Hi, I've just joined. Let me introduce myself. I'm 56; married with two sons; living in Stafford, UK; 7 years since being diagnosed with PD. I usually post on the neurotalk forum. But you've been getting good reviews there from people with "dual nationality", so I thought that I'd see for
Hi, I've just joined. Let me introduce myself. I'm 56; married with two sons; living in Stafford, UK; 7 years since being diagnosed with PD. I usually post on the neurotalk forum. But you've been getting good reviews there from people with "dual nationality", so I thought that I'd see for
johntPM
in
Cure Parkinson's
12 years ago
Medications and food to avoid, applies to most of us who has RLS. This is taken from the www.rlshelp.org website..
Drugs and Foods to avoid to improve RLS This section will discuss various drugs and foods that may worsen RLS. Things that cause worsening of RLS in some patients may not bother others in the same way; in fact, others may even be helped by these same medications or foods that worsen others. Please
Drugs and Foods to avoid to improve RLS This section will discuss various drugs and foods that may worsen RLS. Things that cause worsening of RLS in some patients may not bother others in the same way; in fact, others may even be helped by these same medications or foods that worsen others. Please
Hidden
in
Restless Legs Syndrome
12 years ago
Frustrated every time I push it a little exercise wise to get moving I get dystonia......
Hi everyone, moaning sesssion......... I have dystonia secondary to PD. Lucky girl :) I like to be active with my yoga etc. but as soon as try and do a little cardio I take a nose dive fatigue wise and totally wipe out sleeping all day for few days and the calf muscle on my right leg clenches
Hi everyone, moaning sesssion......... I have dystonia secondary to PD. Lucky girl :) I like to be active with my yoga etc. but as soon as try and do a little cardio I take a nose dive fatigue wise and totally wipe out sleeping all day for few days and the calf muscle on my right leg clenches
Yogibear
in
Cure Parkinson's
12 years ago
DR B REPLIES....... NEUROLOGISTS OUTCOME
From Dr B.... Unfortunately, the top neurologist who you saw is clearly not a top RLS specialist. His advice is absolutely incorrect and as you have noted it should not be followed. You are already on a high dose of Mirapex (Mirapexin) and are developing augmentation (worsening of your RLS from
From Dr B.... Unfortunately, the top neurologist who you saw is clearly not a top RLS specialist. His advice is absolutely incorrect and as you have noted it should not be followed. You are already on a high dose of Mirapex (Mirapexin) and are developing augmentation (worsening of your RLS from
Cobourg
in
Restless Legs Syndrome
12 years ago
what drugs are opiates
I do not quite understand all these drugs and what are opiates. I take ropinerole (an opiate I think) and have done from before NICE approved of them. (Did the drugs trial for Glaxo) Hate taking them but being in Wales that is all my local health authority will approve (pay for) Have started taking
I do not quite understand all these drugs and what are opiates. I take ropinerole (an opiate I think) and have done from before NICE approved of them. (Did the drugs trial for Glaxo) Hate taking them but being in Wales that is all my local health authority will approve (pay for) Have started taking
cefndaniel
in
Restless Legs Syndrome
12 years ago
Azilect and Wellbutrin
Anyone taking Azilect with Wellbutrin XL? I think my husband is in need of an antidepressant and I have read that Wellbutrin is one of the ones that may increase dopamine. What other ones are you taking and how are they working for you? Thank you. This community is a blessing and so are all of you.
Anyone taking Azilect with Wellbutrin XL? I think my husband is in need of an antidepressant and I have read that Wellbutrin is one of the ones that may increase dopamine. What other ones are you taking and how are they working for you? Thank you. This community is a blessing and so are all of you.
Mast
in
Cure Parkinson's
12 years ago
Dropping in again!
Ive been reading all the blog posts on this site and although I would like to reply to all of them , I have no real good advice to give to anyone which is not already on here. I would just like to send all my support and best wishes to everyone. I have been taking the 5 htp and it does seem to have
Ive been reading all the blog posts on this site and although I would like to reply to all of them , I have no real good advice to give to anyone which is not already on here. I would just like to send all my support and best wishes to everyone. I have been taking the 5 htp and it does seem to have
thedragon
in
Restless Legs Syndrome
12 years ago
I wanted to share this infomation, made the pain thing a little more understandable for me
. Central Pain in Parkinson's Disease What It is and How to Cope With It From Patrick McNamara, Ph.D., former About.com Guide Updated April 09, 2009 About.com Health's Disease and Condition content is reviewed by the Medical Review Board . Christopher Robbins/ Getty Images
. Central Pain in Parkinson's Disease What It is and How to Cope With It From Patrick McNamara, Ph.D., former About.com Guide Updated April 09, 2009 About.com Health's Disease and Condition content is reviewed by the Medical Review Board . Christopher Robbins/ Getty Images
Susie01
in
Cure Parkinson's
12 years ago
Has anyone here tried the herbal dopamine, Mucuna pruriens,and, if so, how much are you taking and how are the results?
I have asked my Park Dr. about it and while she is not informed about it she would not be adverse to my trying it as long as I have been on traditional pharmacuticals first so we would have a basis of comparison. She also said she wants me to purchase herbals and supplements from western Europe as they
I have asked my Park Dr. about it and while she is not informed about it she would not be adverse to my trying it as long as I have been on traditional pharmacuticals first so we would have a basis of comparison. She also said she wants me to purchase herbals and supplements from western Europe as they
PecanPie
in
Cure Parkinson's
12 years ago
I just need to vent!!!
I've just really had enough and just want to get this out..hope its ok. I've had this rls since I was about 8 years old. I'm now 54. I'm sure its stress related too wether good or bad stress. I used to get it every now and again but over the years its got worse and worse. I don't think I've had a proper
I've just really had enough and just want to get this out..hope its ok. I've had this rls since I was about 8 years old. I'm now 54. I'm sure its stress related too wether good or bad stress. I used to get it every now and again but over the years its got worse and worse. I don't think I've had a proper
thedragon
in
Restless Legs Syndrome
12 years ago
NEW TYPE BRAIN SCAN TO DETERMAIN HOW MUCH DOPAMINE YOUR BRAIN IS PRODUCING
HAD TEST TUESDAY ..GET RESULTS 17TH JULY...MY DR.. IS BACKED UP CANT SEE HIM UNTIL THAN...WILLKEEP U ALL INFORMED////
HAD TEST TUESDAY ..GET RESULTS 17TH JULY...MY DR.. IS BACKED UP CANT SEE HIM UNTIL THAN...WILLKEEP U ALL INFORMED////
BILLYRAY
in
Cure Parkinson's
12 years ago
The potential of winning ......
I listened to today on radio 4 yesterday and on it was a feature about a book called The winning affect by Prof Ian Robertson. I have written to the Prof this morning as part of the discussions were about the impact of winning on adrenaline and dopamine ... Here is my e mail, If I get a reply I will
I listened to today on radio 4 yesterday and on it was a feature about a book called The winning affect by Prof Ian Robertson. I have written to the Prof this morning as part of the discussions were about the impact of winning on adrenaline and dopamine ... Here is my e mail, If I get a reply I will
Hidden
in
Cure Parkinson's
12 years ago
Eternal Sunshine of the Spotless Mind
There’s always something going on in my head, when given those tasks that involve clearing my mind of all thought there’s still some thought going around. Unfortunately Tourette’s being Tourette’s those thoughts are often unpleasant and upsetting, but I’ll tell you more about my particular worry when
There’s always something going on in my head, when given those tasks that involve clearing my mind of all thought there’s still some thought going around. Unfortunately Tourette’s being Tourette’s those thoughts are often unpleasant and upsetting, but I’ll tell you more about my particular worry when
catherinem
in
Tourettes Action
12 years ago
Prosavin
Parkinson’s disease affects millions of patients After Alzheimer’s disease, Parkinson’s disease is the most common neuro-degenerative disease. Most people who get Parkinson’s disease are aged 50 or over but younger people can get it too; one in 20 is under the age of 40.ii Parkinson’s disease currently
Parkinson’s disease affects millions of patients After Alzheimer’s disease, Parkinson’s disease is the most common neuro-degenerative disease. Most people who get Parkinson’s disease are aged 50 or over but younger people can get it too; one in 20 is under the age of 40.ii Parkinson’s disease currently
drew410
in
Cure Parkinson's
12 years ago
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