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How were your experiences coming off DAs?
Hi all, I've had RLS since about 10 years. I've taken Pramipexole for it nightly for about 6 years of those. I was up to 0.54mg per night, having to increase my dosage regularly to keep its effect on my sleep. When this didn't help anymore, being the maximum recommended for RLS, at least by some sources
Hi all, I've had RLS since about 10 years. I've taken Pramipexole for it nightly for about 6 years of those. I was up to 0.54mg per night, having to increase my dosage regularly to keep its effect on my sleep. When this didn't help anymore, being the maximum recommended for RLS, at least by some sources
Wonko_TheSane
in
Restless Legs Syndrome
6 years ago
All you need to know about the Mitochondria , the cell Powerhouse
All you need to know about the Mitochondria https://youtu.be/i1dAnpSFbyI “Mitochondria dysfunction and dopaminergic cell death in PD pathogenesis. ... All these may directly or indirectly affect the mitochondrial function of protein degradation systems, including UPS and ALP, and thereby, cause the
All you need to know about the Mitochondria https://youtu.be/i1dAnpSFbyI “Mitochondria dysfunction and dopaminergic cell death in PD pathogenesis. ... All these may directly or indirectly affect the mitochondrial function of protein degradation systems, including UPS and ALP, and thereby, cause the
Kia17
in
Cure Parkinson's
6 years ago
Re : Dopamine agonists .. help .. plz ! 😱
Hi fellow rls sufferers .. Very desperate at this point … I tried Ropinirole (Requip) for my pretty bad rls .. Kind’a masked rls .. but had horrible side effect .. head , stomach , + next 2 days.. wretched .. sick to stomach :((( .. Has anyone had similar .. or bad reaction … but switched to Dopamine
Hi fellow rls sufferers .. Very desperate at this point … I tried Ropinirole (Requip) for my pretty bad rls .. Kind’a masked rls .. but had horrible side effect .. head , stomach , + next 2 days.. wretched .. sick to stomach :((( .. Has anyone had similar .. or bad reaction … but switched to Dopamine
Svengolly
in
Restless Legs Syndrome
6 years ago
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Sources of dopamine
My original neuro said there was a choice between natural and synthetic dopamine. The former would give more immediate results where the latter was better over the long term. I've never asked what I'm actually getting. Is it porcine brains. 🐷
My original neuro said there was a choice between natural and synthetic dopamine. The former would give more immediate results where the latter was better over the long term. I've never asked what I'm actually getting. Is it porcine brains. 🐷
Johnmo
in
Cure Parkinson's
6 years ago
Attention Non-Tremor Dominant subtype, also called Akinetic-Rigid Parkinson
Edited Aug 24: it is very interesting to see the similarities within some of the replies to this post. PLEASE DO SHARE info if you proceed with ft3 testing and/or treatment for thyroid. And if anyone out there has already got some PD relief from thyroid treatment, info would greatly be appreciated
Edited Aug 24: it is very interesting to see the similarities within some of the replies to this post. PLEASE DO SHARE info if you proceed with ft3 testing and/or treatment for thyroid. And if anyone out there has already got some PD relief from thyroid treatment, info would greatly be appreciated
Parkie-
in
Cure Parkinson's
6 years ago
AGM 1st September
Hope to see many of my fellow posters at this year’s AGM. Let’s see if we can raise the issue of a letter to BMA and Association of Neurologists about the increase in reported cases of Augmentation on dopamine agonists and best advice on withdrawal. Jools
Hope to see many of my fellow posters at this year’s AGM. Let’s see if we can raise the issue of a letter to BMA and Association of Neurologists about the increase in reported cases of Augmentation on dopamine agonists and best advice on withdrawal. Jools
Joolsg
in
Restless Legs Syndrome
6 years ago
Doctor Buchfuhrer's Augmentation Algorithm
As augmentation due to dopamine agonists is such a strong (and unhappy) topic on this site, due chiefly to pramipexole, and as it has afflicted so many of us, I thought to post a very concise diagram from Doctor Buchfuhrer to help those needing to find a new direction, and who must help their doctors
As augmentation due to dopamine agonists is such a strong (and unhappy) topic on this site, due chiefly to pramipexole, and as it has afflicted so many of us, I thought to post a very concise diagram from Doctor Buchfuhrer to help those needing to find a new direction, and who must help their doctors
Parminter
in
Restless Legs Syndrome
6 years ago
RLS runs in families?
Hi New to forum At about age of 33 I developed a condition similar to RLS but was more sensory as my trousers would feel damp on my legs. Also lots of crawlies etc but never enough to stop me sleeping thankfully. It's always there though at varying levels. I was taking omeprazole recently and exxaberated
Hi New to forum At about age of 33 I developed a condition similar to RLS but was more sensory as my trousers would feel damp on my legs. Also lots of crawlies etc but never enough to stop me sleeping thankfully. It's always there though at varying levels. I was taking omeprazole recently and exxaberated
Andyroo66
in
Restless Legs Syndrome
6 years ago
Adhd and odd
I have to yr old son he has been going through mental health services since he was about 3 and at that time he was diagnosed with ODD,PTSD,RAD, and ADHD. He has been on meds for the ADHD since he was 3 he started on Adderall but didn't do any good.. I thought things would get better as he got older but
I have to yr old son he has been going through mental health services since he was about 3 and at that time he was diagnosed with ODD,PTSD,RAD, and ADHD. He has been on meds for the ADHD since he was 3 he started on Adderall but didn't do any good.. I thought things would get better as he got older but
mzcasteel17
in
CHADD's ADHD Parents Together
6 years ago
Poorly mind
I wonder if I can offload some of my depressed feelings. Just hopeless. There's too many things, projects that I've started over recent years that I no longer have the capacity for. As soon as I try to do things my arms turn to jelly. I can't finish anything because there's too many ancillary things
I wonder if I can offload some of my depressed feelings. Just hopeless. There's too many things, projects that I've started over recent years that I no longer have the capacity for. As soon as I try to do things my arms turn to jelly. I can't finish anything because there's too many ancillary things
Johnmo
in
Cure Parkinson's
6 years ago
Parkinson’s or Hypothyroidism?
First time I post in Thyroid, as I am usually in Parkinson’s Movement Section. I was diagnosed with Parkinson’s Disease in Aug. 2017 at age 55. However, dopamine replacement (levodopa and or mucuna pruriens) seem to worsen my symptoms, especially stiffness. So, not taking any meds for a few months
First time I post in Thyroid, as I am usually in Parkinson’s Movement Section. I was diagnosed with Parkinson’s Disease in Aug. 2017 at age 55. However, dopamine replacement (levodopa and or mucuna pruriens) seem to worsen my symptoms, especially stiffness. So, not taking any meds for a few months
Parkie-
in
Thyroid UK
6 years ago
intro
So I was just recently diagnosed with ADHD Inattentive, aka ADD, i think, which is a lot easier to say. I was very hesitant to have testing done, afraid I would believe any limitations that might be put on me but I ended up feeling a sense of relief, along with grief. I really don't like reading "there's
So I was just recently diagnosed with ADHD Inattentive, aka ADD, i think, which is a lot easier to say. I was very hesitant to have testing done, afraid I would believe any limitations that might be put on me but I ended up feeling a sense of relief, along with grief. I really don't like reading "there's
lisariver
in
CHADD's Adult ADHD Support
6 years ago
Augmentation
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
My withdrawal from DOPAMINE Agonists continues. I was on 6mg but would leave prior days patch on so that increased my dosage. Before that I was on Requip 2 mg twice a day for 2004. I am now down to 2 mg. Had two awful nights in a row. Not going back to three mgs. Being strong. What I’m noticing is that
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Mesocarb
Mesocarb (brand names Sidnocarb, Sydnocarb) is a drug that is currently being developed for Parkinson's disease. The drug was originally developed in the USSR in the 1970s for a variety of indications including asthenia, apathy, adynamia and some clinical aspects of depression and schizophrenia. It
Mesocarb (brand names Sidnocarb, Sydnocarb) is a drug that is currently being developed for Parkinson's disease. The drug was originally developed in the USSR in the 1970s for a variety of indications including asthenia, apathy, adynamia and some clinical aspects of depression and schizophrenia. It
Farooqji
in
Cure Parkinson's
6 years ago
Genetic testing report posted here.
A lot of people have asked about genectic testing for ADHD. Here's page 2 and link to rest of report is below. no patient data, I had this done for my daughter...well, the doctor did it, and I really wasn't clear on purpose or cost. Anyway, it was about $600, which insurance covered $300. It was
A lot of people have asked about genectic testing for ADHD. Here's page 2 and link to rest of report is below. no patient data, I had this done for my daughter...well, the doctor did it, and I really wasn't clear on purpose or cost. Anyway, it was about $600, which insurance covered $300. It was
Crunchby
in
CHADD's ADHD Parents Together
6 years ago
Pregabalin side effects or RLS?
Hello, I am new to this forum but am desperate for some advice and support from people who understand what impact RLS has on your life. It took over three years to get a diagnosis of RLS and PLMS to explain why I was exhausted all the time - GPs just kept telling me I was depressed (and I was because
Hello, I am new to this forum but am desperate for some advice and support from people who understand what impact RLS has on your life. It took over three years to get a diagnosis of RLS and PLMS to explain why I was exhausted all the time - GPs just kept telling me I was depressed (and I was because
Hidden
in
Restless Legs Syndrome
6 years ago
Ensure plus - too much protein ?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
aspergerian
in
Cure Parkinson's
6 years ago
12 Dopamine Supplements to Boost Your Mood
https://www.healthline.com/nutrition/dopamine-supplements
https://www.healthline.com/nutrition/dopamine-supplements
Erniediaz1018
in
Cure Parkinson's
6 years ago
Alcohol, PD, and brain cell death
Don't misunderstand my question. I don't want to rehash old questions on these words. Simply, given a case of PD, does FURTHER alcohol consumption (not alcohol abuse!) in an otherwise "healthy" patient cause further brain cell damage piled on top of the dopamine, serotonin, melatonin regulating brain
Don't misunderstand my question. I don't want to rehash old questions on these words. Simply, given a case of PD, does FURTHER alcohol consumption (not alcohol abuse!) in an otherwise "healthy" patient cause further brain cell damage piled on top of the dopamine, serotonin, melatonin regulating brain
FergusonJR
in
Cure Parkinson's
6 years ago
Can Rytary make your anxiety worse or not work at all? Does anyone else suffer from severe anxiety? Experienced Dystonic type attacks?
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
Darkflower
in
Cure Parkinson's
6 years ago
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