AGM 1st September

[Joolsg]

Hope to see many of my fellow posters at this year’s AGM.

Let’s see if we can raise the issue of a letter to BMA and Association of Neurologists about the increase in reported cases of Augmentation on dopamine agonists and best advice on withdrawal.

Jools

[Lucyjane29]

Hi Jools

Where is the AGM?

Lucy

[Joolsg in reply to Lucyjane29]

ncvo.org.uk/

It’s in London at the National Council for Voluntary Organisations ( Near Kings Cross Station).

See the earlier post headed AGM.

You have to email the organisers to say you’re attending.

[Kaarina Administrator in reply to Lucyjane29]

Here are the details Lucyjane: healthunlocked.com/rlsuk/po...

[Joolsg in reply to Kaarina]

Thanks Kaarina

[martino]

Sorry I won’t be there. The combination of neuropathy and RLS debilitates me and travel from the New Forest to Kings Cross would be a struggle in my sleep deprived state. That sounds as though I am moaning a bit and try not to. Meeting up would have been a pleasure!

[Joolsg in reply to martino]

Totally understand Martino. I know I’ll only manage 3/4 hours before attending but I’m gonna drag myself there ( or rather my hubby will!).I live in London so it’s much easier for me.

It would have been good to meet up.

[yorkie24]

Unfortunately I won't be able to attend. The journey from York to London would be unbearable! I do hope it is an interesting and informative AGM - I am sure it will be.

I am still trying to withdraw from pramipexole. Finding getting below 2 tablets very difficult. A week of no sleep and RLS 24/7 while taking only 1 and then no tablets put me back to 2 a day. Appt with GP on Friday so will see what that brings. Ever hopeful!

[Joolsg in reply to yorkie24]

Sorry to hear that Yorkie. Withdrawal is no fun and you couldn’t travel during it.

Hope you manage to get hold of opioids to help reduce the pramipexole.