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I haven’t posted in a while, but wanted everyone to know I had my DBS surgery .
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
It was a lot all at once but so far with the programming everything is going well. Definitely taking less meds.
Kwinholt
in
Cure Parkinson's
3 years ago
AF/VT after Covid - My Story
Hi all, this is my first post. I'm 62 and have been on meds for high BP for about 10 years. I was having palpitations around half a dozen times a year for the past few years, and then after getting Covid in July 2021 (Delta variant) they started getting more regular (every week or two) and for longer
Hi all, this is my first post. I'm 62 and have been on meds for high BP for about 10 years. I was having palpitations around half a dozen times a year for the past few years, and then after getting Covid in July 2021 (Delta variant) they started getting more regular (every week or two) and for longer
bowie88
in
AF Association
3 years ago
Webinar: Deep Brain Stimulation
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: https
CPT_Helen
Partner
in
Cure Parkinson's
3 years ago
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Post-surgery activity?
Hi A bizarre list of activities here, but anyone have experience of doing, post heart surgery: 1. 5 aside football? 2. Lifting weights? 3. Playing saxophone? Cheers
Hi A bizarre list of activities here, but anyone have experience of doing, post heart surgery: 1. 5 aside football? 2. Lifting weights? 3. Playing saxophone? Cheers
Seaguller
in
British Heart Foundation
3 years ago
i need help and advice to get pacemaker implant
Hi, I’m new here ... I hope you will find the patience to read my long story, and please forgive me for writing mistakes i'm still learning. Im 34 years old and i emigrated in Uk 1 year ago, because my sister live here since 11 years and my mother live in itally. In 2003 cardiologists discovered I
Hi, I’m new here ... I hope you will find the patience to read my long story, and please forgive me for writing mistakes i'm still learning. Im 34 years old and i emigrated in Uk 1 year ago, because my sister live here since 11 years and my mother live in itally. In 2003 cardiologists discovered I
mezeempyrian
in
British Heart Foundation
3 years ago
Apixaban and subconjunctival haemorrhage.
After taking Apixaban for 6 days (2x5mg, daily) I woke this morning with a subconjunctival haemorrhage in the left eye. Yesterday, the eye had been bloodshot and itchy; I had hoped that it was just conjunctivitis and would clear up. As I had a similar subconjunctival haemorrhage three years ago, two
After taking Apixaban for 6 days (2x5mg, daily) I woke this morning with a subconjunctival haemorrhage in the left eye. Yesterday, the eye had been bloodshot and itchy; I had hoped that it was just conjunctivitis and would clear up. As I had a similar subconjunctival haemorrhage three years ago, two
Hidden
in
AF Association
3 years ago
Massage and RLS
Hi, am having a terrible time with my RLS since having Open heart surgery, Has anyone had relief with a massage foot machine?
Hi, am having a terrible time with my RLS since having Open heart surgery, Has anyone had relief with a massage foot machine?
funnyfennel
in
Restless Legs Syndrome
3 years ago
Strange reactions to surgery.
I had heart surgery about 15 months ago and have had to deal with a lot of complications. A stroke being the main one. A couple of the smaller issues got buried, but I was wondering if anyone identified. I jump out of my skin at sudden noises such as the phone ringing. I also well up at emotional moments
I had heart surgery about 15 months ago and have had to deal with a lot of complications. A stroke being the main one. A couple of the smaller issues got buried, but I was wondering if anyone identified. I jump out of my skin at sudden noises such as the phone ringing. I also well up at emotional moments
Tickertalker
in
British Heart Foundation
3 years ago
anyone out there with aortobifemoral bypass experience?
hi, I found out in 2020 that i need to have an aortobifemoral bypass graft as my aorta is completely blocked. I suffer from severe claudication in the legs and buttocks and can only walk very short distances without needing to rest. While assessing for the ability to survive this op, i was found to
hi, I found out in 2020 that i need to have an aortobifemoral bypass graft as my aorta is completely blocked. I suffer from severe claudication in the legs and buttocks and can only walk very short distances without needing to rest. While assessing for the ability to survive this op, i was found to
Hidden
in
British Heart Foundation
3 years ago
What if DBS played the same?
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
Gcf51
in
Cure Parkinson's
3 years ago
Disrupted sleep after heart surgery
Hello. First post. New mitral valve and bypass 2 November. Home to recuperate after 6 days. Initially troubled by hallucinations which slowly faded. Chest pain managed with paracetamol. Now left with disrupted sleep pattern. Normally an excellent sleeper but now unable to get to sleep and resorting
Hello. First post. New mitral valve and bypass 2 November. Home to recuperate after 6 days. Initially troubled by hallucinations which slowly faded. Chest pain managed with paracetamol. Now left with disrupted sleep pattern. Normally an excellent sleeper but now unable to get to sleep and resorting
Mog06
in
British Heart Foundation
3 years ago
The French Paradox - Why the French Have the Lowest Incidence of Heart Disease in the Developed World
Wine should be consumed in moderation. I drink one glass of red wine with my dinner, between 1 and 3 times per week. While resveratrol, which is in red wine, does provide some health benefits, the alcohol offsets those benefits. The French Paradox (high consumption of wine, cheeses and creams, yet the
Wine should be consumed in moderation. I drink one glass of red wine with my dinner, between 1 and 3 times per week. While resveratrol, which is in red wine, does provide some health benefits, the alcohol offsets those benefits. The French Paradox (high consumption of wine, cheeses and creams, yet the
sos007
Ambassador
in
Cholesterol Support
3 years ago
Bisopropol as pill in pocket
As my AF has progressed and I’m now experiencing longer bouts of tachycardia and sometimes irregularities I have been prescribed Bisopropol as pill in pocket by a GP. The episodes are still only 4/5 hours with my heart rate at approximately 180bpm for much of the time. When first diagnosed with AF I
As my AF has progressed and I’m now experiencing longer bouts of tachycardia and sometimes irregularities I have been prescribed Bisopropol as pill in pocket by a GP. The episodes are still only 4/5 hours with my heart rate at approximately 180bpm for much of the time. When first diagnosed with AF I
Clyde12
in
Atrial Fibrillation Support
3 years ago
New to Apixaban
Having been diagnosed with Arrhythmia, I will shortly start taking 5mg Apixaban twice a day. This causes me much concern. Will I be able to lead a normal life, eg play golf, go abroad on holiday etc and will I be able to have a couple of glasses of wine each day? I am currently a regular social drinker
Having been diagnosed with Arrhythmia, I will shortly start taking 5mg Apixaban twice a day. This causes me much concern. Will I be able to lead a normal life, eg play golf, go abroad on holiday etc and will I be able to have a couple of glasses of wine each day? I am currently a regular social drinker
Brancaster1
in
AF Association
3 years ago
MY DOCTOR SAYS I AM DUE FOR DBS. THIS REALLY SCARED THE SH.......... OUT OF ME. PLEASE HELP! I NEED YOUR ADVICE.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
OREOLU
in
Cure Parkinson's
3 years ago
DBS - what if, stimulation was a symphony
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
Gcf51
in
Cure Parkinson's
3 years ago
Still fatigued and miserable
Can i feel weak and nauseas and not able to excersise well even though i have not had an irregular pulse now for 7 months. In that time i have also had shingles in my left eye which fortunately i caught reasonably quickly. The only med im on is pradaxa a d i did have a pm put in.
Can i feel weak and nauseas and not able to excersise well even though i have not had an irregular pulse now for 7 months. In that time i have also had shingles in my left eye which fortunately i caught reasonably quickly. The only med im on is pradaxa a d i did have a pm put in.
Alphakiwi
in
AF Association
3 years ago
38,cancer survivor and open heart surgery,this poem is my life x
Hi everyone, hears a short story about me… I’ve had open heart surgery at 38years d due to chemo and radiation when I was 3, I’m really struggling with the physical strength I’ve lost…. This is my life so far in a poem, I hope it inspires at least one person to never give up x Mum, From the day I
Hi everyone, hears a short story about me… I’ve had open heart surgery at 38years d due to chemo and radiation when I was 3, I’m really struggling with the physical strength I’ve lost…. This is my life so far in a poem, I hope it inspires at least one person to never give up x Mum, From the day I
Tucks2410
in
British Heart Foundation
3 years ago
Awful week
So this week has been like a rollercoaster more downs than up after dropping down my antidepressants before I go onto new medication next week. Good news is we t for an interview today and I got the job. Unfortunately later on this evening I received some bad news about my aunty who now has heart failure
So this week has been like a rollercoaster more downs than up after dropping down my antidepressants before I go onto new medication next week. Good news is we t for an interview today and I got the job. Unfortunately later on this evening I received some bad news about my aunty who now has heart failure
Joker21
in
Fibromyalgia Action UK
3 years ago
Aortic valve replacement
My beautiful boy was born with Aortic stenosis. He’s had to valvuloplasties one when he was 12 and the other when he was 16. The latter left his valve leaking but he’s been ok. Now he’s 34 and we have just heard he has to have the valve replaced with an onyx mechanical valve. This has to be done in the
My beautiful boy was born with Aortic stenosis. He’s had to valvuloplasties one when he was 12 and the other when he was 16. The latter left his valve leaking but he’s been ok. Now he’s 34 and we have just heard he has to have the valve replaced with an onyx mechanical valve. This has to be done in the
Mariawatters
in
British Heart Foundation
3 years ago
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