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Mavacemten for HOCM
Just wanted to post for the first time on here about my experience on this new drug which I've now been on for a couple of weeks, for the treatment of HOCM. But first a bit of background. I've had HOCM for 15 years (that I know of). I'm 44 years old. Only in the last few years have I really had any
Just wanted to post for the first time on here about my experience on this new drug which I've now been on for a couple of weeks, for the treatment of HOCM. But first a bit of background. I've had HOCM for 15 years (that I know of). I'm 44 years old. Only in the last few years have I really had any
Bluebert
in
British Heart Foundation
7 months ago
AF and heart failure
Hi everyone i had some blood tests done just routine but they called me in for an appointment, they said my blood tests were abnormal and that it wasn’t urgent. Anyway have spoken to a doctor today and she said one of the tests is showing heart failure and not to worry and they are booking me in for
Hi everyone i had some blood tests done just routine but they called me in for an appointment, they said my blood tests were abnormal and that it wasn’t urgent. Anyway have spoken to a doctor today and she said one of the tests is showing heart failure and not to worry and they are booking me in for
Gillybean123
in
AF Association
7 months ago
B1 Therapy #Case 1 * Manuela Correia
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
9 months ago
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Understanding my GP's message
I am in permanent AF and taking Edoxaban, Bisoporol and Ramipril. Recently, at my GP's request I wore a 24 hour ECG monitor. Looking at the GP's referral for that on the NHS app it seems she suspected heart failure. Have just had a message from the GP which said ' 24hr ECG reported that the rhythm
I am in permanent AF and taking Edoxaban, Bisoporol and Ramipril. Recently, at my GP's request I wore a 24 hour ECG monitor. Looking at the GP's referral for that on the NHS app it seems she suspected heart failure. Have just had a message from the GP which said ' 24hr ECG reported that the rhythm
thinkingaloud
in
Atrial Fibrillation Support
7 months ago
Avocado good for the heart?
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
sobreviviente
in
Healthy Eating
7 months ago
Support For Partners Of Those Who Have Had Heart Attacks
I had a heart attack whilst i was on my own at home. I had just sat down to watch tv and was having a dip of JD & coke when i developed a pain in my chest. I thought it was indegestion as i hadn't eaten very well that day, but then i got pain in my wrist that spread to my hand. This was the alarm bell
I had a heart attack whilst i was on my own at home. I had just sat down to watch tv and was having a dip of JD & coke when i developed a pain in my chest. I thought it was indegestion as i hadn't eaten very well that day, but then i got pain in my wrist that spread to my hand. This was the alarm bell
BaronFrankenstein
in
Sudden Cardiac Arrest & Heart Attack
7 months ago
AF and heart failiure
Hi, I am 56 and new to this community, I have had AF since 2019, I don't have symptoms. It was discovered when I was knocked of my motorbike as the paramedic noticed my heart rate hadn't gone down, Initially I was in and out of AF. I had a review in September 2023 and the tests highlighted thast
Hi, I am 56 and new to this community, I have had AF since 2019, I don't have symptoms. It was discovered when I was knocked of my motorbike as the paramedic noticed my heart rate hadn't gone down, Initially I was in and out of AF. I had a review in September 2023 and the tests highlighted thast
Flippy1
in
Atrial Fibrillation Support
7 months ago
James
I have heart failure. Approx 38% ejection fraction. I'm on Entresto and 6 other tablets including Dapagliflozin, eplerenone , beta blocker, aspirin, and a statin.Tested for new drug to enter trial, but my BNP was too low (44). Feel very fatigued at times but try and walk or do some sort of exercise
I have heart failure. Approx 38% ejection fraction. I'm on Entresto and 6 other tablets including Dapagliflozin, eplerenone , beta blocker, aspirin, and a statin.Tested for new drug to enter trial, but my BNP was too low (44). Feel very fatigued at times but try and walk or do some sort of exercise
Genteel1
in
AF Association
7 months ago
B1 and anti anxiety pills
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
My HWP, diagnosed 30 years ago, DBS 18 years ago, has been going through a very difficult period with his PD for the past 3 months. His knees keep collapsing and his 'offs' have become very bad. I am having to lift him from his falls and helping him get out of his chair, bed etc. This has been a real
JeanieBeanie
in
Cure Parkinson's
9 months ago
Persistent Atrial Fibrillation
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
I caught a bad cold (tested negative for COVID) in November 2022 and on the day that started, I went into AFib. I wasn’t given any treatment because I was already on Warfarin due to my aortic valve replacement in March 2015. I finally saw a consultant about the AFib in May 2023 and was put on Isosorbide
Gill123
in
Atrial Fibrillation Support
4 months ago
Robotic surgery?
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
My mitral valve is deteriorating and surgery is in my future. I’m 72, in good health besides aFib and my valve. I’m interested in robotic surgery and if I would qualify. Curious what other folks experience is.
Ptschannen
in
Atrial Fibrillation Support
4 months ago
Cannabidiol and anti coagulants
I replied to Jean Jeannie’s post about Food Additives. She suggested I posted separately about this. I recently received some OTO Sleep drops as a gift. They are designed to be taken under the tongue just before bed, and contain 10% CBD with a ‘complementary blend of botanicals’ . This forum has
I replied to Jean Jeannie’s post about Food Additives. She suggested I posted separately about this. I recently received some OTO Sleep drops as a gift. They are designed to be taken under the tongue just before bed, and contain 10% CBD with a ‘complementary blend of botanicals’ . This forum has
ibuputih
in
AF Association
7 months ago
Dr. Joel Wallach
Is there anybody who has heard of the teachings of Dr. Joel Wallach who says that AF is not caused by a condition of the heart but instead because the Vagus Nerve is being "pinched", either along the spine or at the head where it enters the skull. As you may know, the Vagus Nerve goes down the length
Is there anybody who has heard of the teachings of Dr. Joel Wallach who says that AF is not caused by a condition of the heart but instead because the Vagus Nerve is being "pinched", either along the spine or at the head where it enters the skull. As you may know, the Vagus Nerve goes down the length
Pommerania78
in
AF Association
7 months ago
Atrial fibrilation
I was diagnosed on 9th december 2023 with Atrial fibrilattion after an e.c.g. prescribed edoxaban 60mg and bisoprolol 5mg x 1 in a morning x 1 at night. X to stop propanolol for migraine. Ive had waves of anxiousness wash over me not lot . I had been feeling off it a feŵ weeks with palpitations x feeling
I was diagnosed on 9th december 2023 with Atrial fibrilattion after an e.c.g. prescribed edoxaban 60mg and bisoprolol 5mg x 1 in a morning x 1 at night. X to stop propanolol for migraine. Ive had waves of anxiousness wash over me not lot . I had been feeling off it a feŵ weeks with palpitations x feeling
Sawny15
in
AF Association
7 months ago
Scared. Mind is racing. Mom needs heart surgery.
I've posted before kind of on this topic but since I've become more agoraphobic and neurotic and shut down and hiding in my house. My mom needs heart surgery. She is my best friend. She is 82. I am 47. I don't have a partner or kids. I have a brother. He helps sometimes but he isn't completely emotionally
I've posted before kind of on this topic but since I've become more agoraphobic and neurotic and shut down and hiding in my house. My mom needs heart surgery. She is my best friend. She is 82. I am 47. I don't have a partner or kids. I have a brother. He helps sometimes but he isn't completely emotionally
Figgins42
in
Anxiety and Depression Support
7 months ago
Incruse Elipta 55 advice ?
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Hi all, I'm a Newbie here.I have Asthma and COPD. I'm back on my Relvar ( after a brief change to Trimbow) which made my breathing worse. I just got prescribed an additional inhaler yesterday ( Incruse Elipta) I took the one puff yesterday evening and within a couple of hrs I was having palpations.
Kiki54
in
Lung Conditions Community Forum
4 months ago
Good News…..
In August I became ill with what amounted to heart failure symptoms, breathlessness, fluid on lungs, circulation issues. A bnp test came back with moderately high readings for heart failure (1300) . I eventually had an echocardiogram and have been waiting for the results. Meanwhile I discovered that
In August I became ill with what amounted to heart failure symptoms, breathlessness, fluid on lungs, circulation issues. A bnp test came back with moderately high readings for heart failure (1300) . I eventually had an echocardiogram and have been waiting for the results. Meanwhile I discovered that
Rhiannonimity1
in
AF Association
7 months ago
Catching a cold when you have fibro - turns out it’s COVID fml
Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who gets man flu. My partner went to work right through his cold even though he felt quite rough. I just got up to make a drink and dragging my body
Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who gets man flu. My partner went to work right through his cold even though he felt quite rough. I just got up to make a drink and dragging my body
Brigga
in
Fibromyalgia Action UK
7 months ago
Third Attempt.and Fail
Well, Made a trip four hours away to another EP to attempt another ablation for Atrial Tachycardia. Yet again, now a second time, this ridiculously elusive rhythm evaded them and they could not do the ablation . Not sure what options that I have left to me now. Probably will have to take Metoprolol,
Well, Made a trip four hours away to another EP to attempt another ablation for Atrial Tachycardia. Yet again, now a second time, this ridiculously elusive rhythm evaded them and they could not do the ablation . Not sure what options that I have left to me now. Probably will have to take Metoprolol,
MeganMN
in
AF Association
7 months ago
My T story
Hi, I had Open Heart Surgery for Mitral Valve prolapse in June 2022, Occular migraines started straight away, followed by 24/7 tinnitus which started in March of 2023, I am convinced there is a connection to the surgery, but who knows! I moved to USA in 2009, prior to that I was born and lived in Manchester
Hi, I had Open Heart Surgery for Mitral Valve prolapse in June 2022, Occular migraines started straight away, followed by 24/7 tinnitus which started in March of 2023, I am convinced there is a connection to the surgery, but who knows! I moved to USA in 2009, prior to that I was born and lived in Manchester
ringing2023
in
Tinnitus UK
7 months ago
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