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Deep brain stimulation (DBS)
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Musical abilities post DBS
I have recently underwent
DBS
and it seams that my percussion skills have improved. I have played drums most of my life but only as an a amateur. Currently I don't have a drum kit but my son does so I'm planning to challenge myself on his kit instead of playing my thighs and the floor!
I have recently underwent
DBS
and it seams that my percussion skills have improved. I have played drums most of my life but only as an a amateur. Currently I don't have a drum kit but my son does so I'm planning to challenge myself on his kit instead of playing my thighs and the floor!
etterus
in
Cure Parkinson's
9 years ago
A sad day
I m just writing to let all you know MY husband of 27 yrs died , He was such a good man and he didn't care if I had Parkinson, my clothes inside out or my head shaved for
DBS
surgery. He was such a loving man. I haven't been alone for 30 yrs.
I m just writing to let all you know MY husband of 27 yrs died , He was such a good man and he didn't care if I had Parkinson, my clothes inside out or my head shaved for
DBS
surgery. He was such a loving man. I haven't been alone for 30 yrs.
Kadie57
in
Cure Parkinson's
10 years ago
Flaxseed & IBS
Hi, I think looking back I suffered with undiagnosed IBS as a teenager but grew out of it if that's possible. After a horrible attack back in November and having a scan (I was convinced it was an ovarian cyst) was diagnosed with IBS! I was advised to take Flaxseed every day, but have just read on another
Hi, I think looking back I suffered with undiagnosed IBS as a teenager but grew out of it if that's possible. After a horrible attack back in November and having a scan (I was convinced it was an ovarian cyst) was diagnosed with IBS! I was advised to take Flaxseed every day, but have just read on another
Hidden
in
IBS Network
9 years ago
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DBS - But new aches develop for many, researchers report
A team led by Dr. Beom Jeon, from the Seoul National University Hospital, studied the long-term effects of deep brain stimulation on pain in 24 Parkinson patients. The researchers measured patients' pain before surgery and eight years later. Sixteen of the patients experienced pain before surgery when
A team led by Dr. Beom Jeon, from the Seoul National University Hospital, studied the long-term effects of deep brain stimulation on pain in 24 Parkinson patients. The researchers measured patients' pain before surgery and eight years later. Sixteen of the patients experienced pain before surgery when
Hidden
in
Cure Parkinson's
10 years ago
Deep brain stimulation for pain?
Hi, I was just wondering if any One has had, or been referred for
DBS
surgery for chronic pain? My neurologist has just referred me, but due to the cost of it he said it might be a fight with my GPs, and commissioner to have it done.
Hi, I was just wondering if any One has had, or been referred for
DBS
surgery for chronic pain? My neurologist has just referred me, but due to the cost of it he said it might be a fight with my GPs, and commissioner to have it done.
trappedinlife
in
Pain Concern
10 years ago
DBS - STN or GPi?
I have been told by my neuro-team that STN
DBS
would be risky due to some bouts of depression I had last year and also the compulsive behavioural episodes I suffered while on Pramipexole. They have recommended GPi
DBS
- has anyone on here undergone this procedure and, if so, was it successful?
I have been told by my neuro-team that STN
DBS
would be risky due to some bouts of depression I had last year and also the compulsive behavioural episodes I suffered while on Pramipexole. They have recommended GPi
DBS
- has anyone on here undergone this procedure and, if so, was it successful?
Gaz1403
in
Cure Parkinson's
10 years ago
Sierra Ferris
I had
DBS
two years ago, it doesn't appear to have helped a great deal. I live in the UK and am considering a consultation with Sierra, just wondered if anyone has seen this lady and their experiences. I was diagnosed 10years ago at 40
I had
DBS
two years ago, it doesn't appear to have helped a great deal. I live in the UK and am considering a consultation with Sierra, just wondered if anyone has seen this lady and their experiences. I was diagnosed 10years ago at 40
sasmmayday
in
Cure Parkinson's
10 years ago
Feeling ill
Can I ask is it normal to feel really ill .I feel so bad that I find it hard to get up.I try and do jobs but I shake violently and the sweat pours out of me and have to lie down.I have been to the GP several times.I had
dbs
two years ago.I take 75 of stalevo 6 times a day cant convince any body im not
Can I ask is it normal to feel really ill .I feel so bad that I find it hard to get up.I try and do jobs but I shake violently and the sweat pours out of me and have to lie down.I have been to the GP several times.I had
dbs
two years ago.I take 75 of stalevo 6 times a day cant convince any body im not
libberty21
in
Cure Parkinson's
10 years ago
DBS self adjusting
For those that have
DBS
, how many of you have been instructed by your programmer to adjust the voltage intensity? How about pulse width or frequency?
For those that have
DBS
, how many of you have been instructed by your programmer to adjust the voltage intensity? How about pulse width or frequency?
etterus
in
Cure Parkinson's
10 years ago
When is the right time for DBS surgery?
I've been given conflicting advice as to when is the optimal time to have
DBS
surgery. I consider myself to be fairly high functioning ie, I still drive and work full-time. But now I walk with a pronounced limp. I can barely speak above a whisper and can't even hold a pen let alone write my name.
I've been given conflicting advice as to when is the optimal time to have
DBS
surgery. I consider myself to be fairly high functioning ie, I still drive and work full-time. But now I walk with a pronounced limp. I can barely speak above a whisper and can't even hold a pen let alone write my name.
Prncssbuttercup8
in
Cure Parkinson's
10 years ago
DBS
I had
DBS
surgery in August & chose the asleep method done at UCSF. It's been slow going as my Graves Disease came to life again after being removed with radioactive iodine 10 yrs ago. We are still fine tuning & keep hoping for solutions. I take comtan & car/levo every hour & 45 minutes.
I had
DBS
surgery in August & chose the asleep method done at UCSF. It's been slow going as my Graves Disease came to life again after being removed with radioactive iodine 10 yrs ago. We are still fine tuning & keep hoping for solutions. I take comtan & car/levo every hour & 45 minutes.
wynn7
in
Cure Parkinson's
10 years ago
Hair after DBS surgery
I realize that hair growth is not high priority to people who have a disabling disease like Parkinson's, but I am curious to know how long after
DBS
surgery it was before the hair over the incision started to grow back.
I realize that hair growth is not high priority to people who have a disabling disease like Parkinson's, but I am curious to know how long after
DBS
surgery it was before the hair over the incision started to grow back.
Hidden
in
Cure Parkinson's
10 years ago
It's been a while
Hi everyone, I haven’t been on here much of late, and have been getting ready for my
DBS
surgery which is due on the 8th, diagnosed about 4 years ago i have spent much of my time trying to find ways to better manage my Parkinson’s and ended up created MyHealthPal, which is intended to be provided for
Hi everyone, I haven’t been on here much of late, and have been getting ready for my
DBS
surgery which is due on the 8th, diagnosed about 4 years ago i have spent much of my time trying to find ways to better manage my Parkinson’s and ended up created MyHealthPal, which is intended to be provided for
myHealthPal
in
Cure Parkinson's
10 years ago
DBS a week later
Friday I underwent the second procedure of the stimulator being wired up to the portals into my cranium. This was a 45 minute same day event. It is actually a little more painful post event due to the tunneling of the wires from the subclavicular site of the stimulator up to the top of my head. All
Friday I underwent the second procedure of the stimulator being wired up to the portals into my cranium. This was a 45 minute same day event. It is actually a little more painful post event due to the tunneling of the wires from the subclavicular site of the stimulator up to the top of my head. All
etterus
in
Cure Parkinson's
10 years ago
DBS
DBS
- Tell me about your experience. My Doc has suggested I look into it.
DBS
- Tell me about your experience. My Doc has suggested I look into it.
Jerebet
in
Cure Parkinson's
10 years ago
DBS stage one Request for PMOS unknown
Monday I underwent the first stage of
DBS
at Oregon Health Sciences University in Portland. The procedure is done under full anesthesia utilizing a previous MRI and a small cat scan during surgery to accurately target the treatment site that for me was the Globus pallidus internus.
Monday I underwent the first stage of
DBS
at Oregon Health Sciences University in Portland. The procedure is done under full anesthesia utilizing a previous MRI and a small cat scan during surgery to accurately target the treatment site that for me was the Globus pallidus internus.
etterus
in
Cure Parkinson's
10 years ago
Pre DBS musings... making the blind eye see
Next week this time, I'll be in surgery for
DBS
at OHSU in Portland OR under the care of Dr Kim Burchiel, one of the worlds leading authorities on PD. I find myself anticipating the best outcomes knowing that it is not a cure but rather a symptom management with less drugs.
Next week this time, I'll be in surgery for
DBS
at OHSU in Portland OR under the care of Dr Kim Burchiel, one of the worlds leading authorities on PD. I find myself anticipating the best outcomes knowing that it is not a cure but rather a symptom management with less drugs.
etterus
in
Cure Parkinson's
10 years ago
Boston Scientific's "Vercise DBS System"
Anyone here in Europe or Australia that has with the "Vercise
DBS
System"? It apparently stimulates with shorter pulses and a 25 year battery.
Anyone here in Europe or Australia that has with the "Vercise
DBS
System"? It apparently stimulates with shorter pulses and a 25 year battery.
toomuch
in
Cure Parkinson's
10 years ago
Dbs surgery -- if you have had dbs surgery please tell me about your experience after the electrode implant.
I have had the stage 1 surgery and it is a month before the second stage controller implant. In the meantime , my Parkinson's symptoms have gotten so much worse. After the second stage, it will be 3 more weeks before the programming. I can barely function now. I am afraid that after the 2nd surgery
I have had the stage 1 surgery and it is a month before the second stage controller implant. In the meantime , my Parkinson's symptoms have gotten so much worse. After the second stage, it will be 3 more weeks before the programming. I can barely function now. I am afraid that after the 2nd surgery
Hidden
in
Cure Parkinson's
10 years ago
Sleep?
My neurologist and programmer for my
DBS
said increased sleeping times can be improved by the surgery at my programming session last week, but i never expected this. Hope the improved sleep length continues.
My neurologist and programmer for my
DBS
said increased sleeping times can be improved by the surgery at my programming session last week, but i never expected this. Hope the improved sleep length continues.
mktbob55
in
Cure Parkinson's
10 years ago
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