Changed DMD need advice: Switched DMD fron... - My MSAA Community

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Changed DMD need advice

msinca07 profile image
8 Replies

Switched DMD fron Avonex to Extavia. Overall tolerating change pretty well. The biggest side effect is injection site turns vivid red, no heat, no itching, no swelling. Is this a normal side effect?

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msinca07
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8 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi msinca07 how are you?😊

I have never heard of extavia so had to look it up😀 Learn something new everyday.😊 Looks like a shot, with auto injector?😐 I take mine 3xs a wk. And will get red sometimes with the Copaxon. I just alternate between the hit and cold packs for a bit longer.😊

I'm NOT a Dr through! So please, if you think it's really bad. Call your Neuro. 💕

Jes 🌠

msinca07 profile image
msinca07 in reply toJesmcd2

Thanks Jes. I hadn't thought about using hot and cold on sites. Other than looking odd from all the red spots they don't bother me. I do rotate my sites.

Diva1976 profile image
Diva1976 in reply tomsinca07

Yeah the ice packs do help. It was what I was instructed to do when I use to do the avonex injections.

bxrmom profile image
bxrmom

msinca07 when I did the Copaxone injections I used the gel packs that Shared Solutions would send out and they really helped. So ice packs could really help you out. Best of luck to you.

Jessie

cljones profile image
cljones

@msinca07 When I was on Copaxone I would use a hot pack on the area before injecting, then massage the area, then use an ice pack. I only had to do it on my arms because they were the worst.

msinca07 profile image
msinca07 in reply tocljones

My abdomen and thighs are the worst so I will give this a try.

cljones profile image
cljones in reply tomsinca07

@msinca07 My thighs were bad also but I had enough fat on my abdomen that they didn't bother me there. My arms are so skinny that there is no fat and they were on a 4 for the injections and they still left big red marks and then would bruise. They started leaving knots also. But the hot and cold packs did help.

msinca07 profile image
msinca07 in reply tocljones

Thank you cljones. I used the ice pack last night. My arms and butt don't seem to mind but my abdomen and thighs are covered in red spots. Anxious to see if hot/cold packs help.

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