Changed DMD need advice

[msinca07]

Switched DMD fron Avonex to Extavia. Overall tolerating change pretty well. The biggest side effect is injection site turns vivid red, no heat, no itching, no swelling. Is this a normal side effect?

[Jesmcd2 CommunityAmbassador]

Hi msinca07 how are you?😊

I have never heard of extavia so had to look it up😀 Learn something new everyday.😊 Looks like a shot, with auto injector?😐 I take mine 3xs a wk. And will get red sometimes with the Copaxon. I just alternate between the hit and cold packs for a bit longer.😊

I'm NOT a Dr through! So please, if you think it's really bad. Call your Neuro. 💕

Jes 🌠

[msinca07 in reply to Jesmcd2]

Thanks Jes. I hadn't thought about using hot and cold on sites. Other than looking odd from all the red spots they don't bother me. I do rotate my sites.

[Diva1976 in reply to msinca07]

Yeah the ice packs do help. It was what I was instructed to do when I use to do the avonex injections.

[bxrmom]

msinca07 when I did the Copaxone injections I used the gel packs that Shared Solutions would send out and they really helped. So ice packs could really help you out. Best of luck to you.

Jessie

[cljones]

@msinca07 When I was on Copaxone I would use a hot pack on the area before injecting, then massage the area, then use an ice pack. I only had to do it on my arms because they were the worst.

[msinca07 in reply to cljones]

My abdomen and thighs are the worst so I will give this a try.

[cljones in reply to msinca07]

@msinca07 My thighs were bad also but I had enough fat on my abdomen that they didn't bother me there. My arms are so skinny that there is no fat and they were on a 4 for the injections and they still left big red marks and then would bruise. They started leaving knots also. But the hot and cold packs did help.

[msinca07 in reply to cljones]

Thank you cljones. I used the ice pack last night. My arms and butt don't seem to mind but my abdomen and thighs are covered in red spots. Anxious to see if hot/cold packs help.