Hello everyone, I'm 37 and live in the southwest U.S. My mother was diagnosed in 1998 and has been on Avonex since then. About 2008, she stopped talking, and began deteriorating, despite my father giving her incredible care. She has always had problems with urinary infections and fevers. After her latest uti, she now gets fevers every night around midnight. It used to be the fevers would come the day after her Avonex shot, but now it's every day.
I'm considering telling my dad maybe it's time to stop her Avonex, but I'm not sure. All I know is my dad never gets any sleep, he hasn't done anything for himself in ten years, and the depression and anxiety I've had since I was a teenager is starting to take my life over.
I know this is bleak and I don't want to ruin anyone's day, but I just want someone to tell me if this has happened to them or their loved one and maybe if someone could just tell me that everything will be okay (even though no one knows that), I would appreciate it.
If you're still reading, I thank you.