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~Glory be - low then high blood pressure whilst tapering?
Any experiences on the following - much appreciated in advance. Reducing hydrocortisone a fraction further as requested by Rheumy from 15mg (equivalent to 3 mg Pred) down to 12.50mg Hydrocort which = 2.5 Pred. This is my third attempt. Less than 2 days into taper breathlessness appeared again (a feature
Any experiences on the following - much appreciated in advance. Reducing hydrocortisone a fraction further as requested by Rheumy from 15mg (equivalent to 3 mg Pred) down to 12.50mg Hydrocort which = 2.5 Pred. This is my third attempt. Less than 2 days into taper breathlessness appeared again (a feature
Megams
in
PMRGCAuk
8 years ago
At the end of my tether - should I get treatment in Europe?
Hi everyone - I've found this forum and it is fabulous. Well done and thank you - and sorry for the long post. I've been dealing with so-called subclinical hypothyroidism for more than three years. It runs in my family - mum, sister and maternal grandmother all diagnosed and on full meds for years.
Hi everyone - I've found this forum and it is fabulous. Well done and thank you - and sorry for the long post. I've been dealing with so-called subclinical hypothyroidism for more than three years. It runs in my family - mum, sister and maternal grandmother all diagnosed and on full meds for years.
telbel6
in
Thyroid UK
8 years ago
IMRT only without radical prostatectomy
Born Jul 1961 in Hawaii of Japanese descent. No PSA screening. Made appointment with PCP because of problems urinating. After abnormal DRE, she ordered PSA test and referred me to urologist. PCa was diagnosed Feb 2014 (PSA 56, Gleason 4+4 in 4/4 left cores PNI, 3+3 in 3/4 right cores, stage T2c with
Born Jul 1961 in Hawaii of Japanese descent. No PSA screening. Made appointment with PCP because of problems urinating. After abnormal DRE, she ordered PSA test and referred me to urologist. PCa was diagnosed Feb 2014 (PSA 56, Gleason 4+4 in 4/4 left cores PNI, 3+3 in 3/4 right cores, stage T2c with
Gary_T
in
Prostate Cancer Network
8 years ago
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Me again
Haven't been on for a while, things have been going pretty well, other than the ectopics I've been good, purposely stayed off here and other sites as I've found the internet makes my health anxiety go through the roof, only change I've had is a diagnosis of mild sleep appear, which I'm waiting for a
Haven't been on for a while, things have been going pretty well, other than the ectopics I've been good, purposely stayed off here and other sites as I've found the internet makes my health anxiety go through the roof, only change I've had is a diagnosis of mild sleep appear, which I'm waiting for a
Hidden
in
AF Association
8 years ago
~What immunity have we with a reduced steroid intake for our PMR? ~
Continuing to struggle to get past 15mg Hydrocort, equivalent to 3mg Pred. As soon as I have dropped my morning dose from 7.5mg to 5mg I can confidently say that within 24 hours my legs/hips flare plus fatigue. Discomfort manageable but fatigue wears one down - told by my Rheumy that he wants me
Continuing to struggle to get past 15mg Hydrocort, equivalent to 3mg Pred. As soon as I have dropped my morning dose from 7.5mg to 5mg I can confidently say that within 24 hours my legs/hips flare plus fatigue. Discomfort manageable but fatigue wears one down - told by my Rheumy that he wants me
Megams
in
PMRGCAuk
8 years ago
Lupus and Sleep apnea
Please can anyone help I have been given a CPAP machine and I have tried 4 masks each keep lifting off my face, so no seal and the air pumps hard into my face, persevering but so so tired. Worried as the Lupus has damaged my right lung, could that be stopping the machine inflating my windpipe? Been so
Please can anyone help I have been given a CPAP machine and I have tried 4 masks each keep lifting off my face, so no seal and the air pumps hard into my face, persevering but so so tired. Worried as the Lupus has damaged my right lung, could that be stopping the machine inflating my windpipe? Been so
Louisa65
in
LUPUS UK
8 years ago
Teenager started xolair
My daughter aged 15 started Xolair last week, 3 jabs every 2 weeks. Just wondered what people's experiences were of Xolair? She has had 18months of 5-6 weekly admissions with very brittle asthma, needing Aminophillyn and Cpap each time, which has turned her life and ours upside down so we are desperately
My daughter aged 15 started Xolair last week, 3 jabs every 2 weeks. Just wondered what people's experiences were of Xolair? She has had 18months of 5-6 weekly admissions with very brittle asthma, needing Aminophillyn and Cpap each time, which has turned her life and ours upside down so we are desperately
Emmav1
in
Asthma Community Forum
8 years ago
Could it be thyroid?
Hi all 1st post so please be patient Have had fatigue, the only way I can describe it is it feels like I'm constantly coming up from anaesthesia, for six yrs since I had an ectopic pregnancy when I lost one ovary and Fallopian tube, other symptoms are aches, brain fog, weight gain, which won't shift
Hi all 1st post so please be patient Have had fatigue, the only way I can describe it is it feels like I'm constantly coming up from anaesthesia, for six yrs since I had an ectopic pregnancy when I lost one ovary and Fallopian tube, other symptoms are aches, brain fog, weight gain, which won't shift
Helenmcd2022
in
Thyroid UK
8 years ago
Introduction from AF sufferer - since 2012
Hi all I am 53 and male and I guess my story will be familiar. My first awareness of AF was after going to A&E feeling extremely fatigued and dreadful. 5 days later and two failed cardioversions later I was sent home with various medications. The next few months saw several other trips and hospital
Hi all I am 53 and male and I guess my story will be familiar. My first awareness of AF was after going to A&E feeling extremely fatigued and dreadful. 5 days later and two failed cardioversions later I was sent home with various medications. The next few months saw several other trips and hospital
Cristatus
in
AF Association
8 years ago
sleep apnoea and driving license
Hi there, I've been diagnosed with sleep apnoea (OSA) since oct 2015 and been on a CPAP machine since nov 2015. I have notified the DVLA as per the advice of my sleep apnoea clinic and been told by the DVLA that I have to return my driving license and have it changed to a 3 yearly license instead. Note
Hi there, I've been diagnosed with sleep apnoea (OSA) since oct 2015 and been on a CPAP machine since nov 2015. I have notified the DVLA as per the advice of my sleep apnoea clinic and been told by the DVLA that I have to return my driving license and have it changed to a 3 yearly license instead. Note
kungfoo-panda
in
PMRGCAuk
8 years ago
When it all goes wrong I start to worry
Having one of those "is it all worth it" days! October: exacerbation closely followed by another in November. Sleep study arranged in December and sleep apnoea diagnosis in January. February got off to a good start, found a mask that sort of worked, CPAP doing the job and right up to yesterday all was
Having one of those "is it all worth it" days! October: exacerbation closely followed by another in November. Sleep study arranged in December and sleep apnoea diagnosis in January. February got off to a good start, found a mask that sort of worked, CPAP doing the job and right up to yesterday all was
y_not
in
Lung Conditions Community Forum
8 years ago
~Update on PMR & newly diagnosed sleep apnoea~
Diagnosed with PMR January 2015 although highly likely developed March/April 2014. Suspected GCA Sept 2015 and negative histology to temporal artery biopsy. Have been wanting to share my good news since using CPAP machine (continuous positive airway pressure) every night since being diagnosed with
Diagnosed with PMR January 2015 although highly likely developed March/April 2014. Suspected GCA Sept 2015 and negative histology to temporal artery biopsy. Have been wanting to share my good news since using CPAP machine (continuous positive airway pressure) every night since being diagnosed with
Megams
in
PMRGCAuk
9 years ago
CARDIOVERSION
I HAVE JUST HAD MY SECOND CARDIO (MONDAY 16 NOVEMBER) HAD TO STAY IN HOSPITAL OVER NIGHT FOR MONITORING AS I AM ON CPAP MACHINE . ON THE LAST OPERATION I HAD WHICH WAS ON MY STOMACH IN MAY THIS YEAR I WAS TOLD THAT HAVING ANY FURTHER ANAESTHETIC COULD BE VERY DANGEROUS AS TO REGARDING MY HEART CONDITION
I HAVE JUST HAD MY SECOND CARDIO (MONDAY 16 NOVEMBER) HAD TO STAY IN HOSPITAL OVER NIGHT FOR MONITORING AS I AM ON CPAP MACHINE . ON THE LAST OPERATION I HAD WHICH WAS ON MY STOMACH IN MAY THIS YEAR I WAS TOLD THAT HAVING ANY FURTHER ANAESTHETIC COULD BE VERY DANGEROUS AS TO REGARDING MY HEART CONDITION
humbroad
in
AF Association
9 years ago
COPD & CPAP
Sorry, I rarely post but just need some advice, please. Had COPD for 4 years, currently on steroids & antibiotics for a chest infection. Because of sleep issues and on advice of the GP I have been referred for sleep apnoea testing. While waiting (and because I'm getting some real bad nights) I stuck
Sorry, I rarely post but just need some advice, please. Had COPD for 4 years, currently on steroids & antibiotics for a chest infection. Because of sleep issues and on advice of the GP I have been referred for sleep apnoea testing. While waiting (and because I'm getting some real bad nights) I stuck
y_not
in
Lung Conditions Community Forum
9 years ago
Interstitial lung disease with no full diagnosis
Hi all, I'm Jez. I'm 29 and I have interstitial lung disease. In may 2014 I had to go to A+E due to "being very poorly". As it turned out I was going through chronic respiratory failure. My sats when I went in were somewhere between 40 and 50 and we were struggling to get them back up to a safe place
Hi all, I'm Jez. I'm 29 and I have interstitial lung disease. In may 2014 I had to go to A+E due to "being very poorly". As it turned out I was going through chronic respiratory failure. My sats when I went in were somewhere between 40 and 50 and we were struggling to get them back up to a safe place
Gsxrjez
in
Lung Conditions Community Forum
9 years ago
Living with PV for 47 years after father diagnosed days earlier.
In 1968-9 my father was diagnosed with PV and Spherocytosis by VA. His doctors suggested his direct family members also be test to see if disorders were hereditary. Out of 6 people, his mother, older brother, older sister, oldest daughter, son, and youngest daughter-me I was found to also have
In 1968-9 my father was diagnosed with PV and Spherocytosis by VA. His doctors suggested his direct family members also be test to see if disorders were hereditary. Out of 6 people, his mother, older brother, older sister, oldest daughter, son, and youngest daughter-me I was found to also have
Hidden
in
MPN Voice
9 years ago
Caring for a person with AF
My daughter is 26 and has congenital heart disease, she was admitted to hospital 3 weeks ago and diagnosed with AF. During 26 years of hospital visits this had never been mentioned or picked up before, can it have started all of a sudden. She has been put on warfarin, digoxin and verapamil. I am worried
My daughter is 26 and has congenital heart disease, she was admitted to hospital 3 weeks ago and diagnosed with AF. During 26 years of hospital visits this had never been mentioned or picked up before, can it have started all of a sudden. She has been put on warfarin, digoxin and verapamil. I am worried
dianef2303
in
AF Association
9 years ago
5 years on and no further forward
Hi, my symptoms started summer of 2010. I had a constant tremor in my right hand which quickly escalated to whole body jerks and spasms within a few months. I had suffered with a constant headache for a number of years, and had regular migraines. My GP referred me to a neurologist who I saw for a couple
Hi, my symptoms started summer of 2010. I had a constant tremor in my right hand which quickly escalated to whole body jerks and spasms within a few months. I had suffered with a constant headache for a number of years, and had regular migraines. My GP referred me to a neurologist who I saw for a couple
Alison2010
in
Functional Neurological Disorder - FND Hope
9 years ago
Obstructive sleep aponea
Hi everyone hope your all as well as can be ive just been diagnosed with obstructive sleep aponea and am getting a CPAP machine tomorrow i am a bit worried about using it as i hate anything blowing in my face looking for some helpfull advice on it if anyone else has it thanks
Hi everyone hope your all as well as can be ive just been diagnosed with obstructive sleep aponea and am getting a CPAP machine tomorrow i am a bit worried about using it as i hate anything blowing in my face looking for some helpfull advice on it if anyone else has it thanks
brambles65
in
Lung Conditions Community Forum
9 years ago
2 week old superstars
Well, today is Holly and Poppy's 2 week milestone. The girls are currently going from strength to strength and are progressing well. They have both come off their ventilators and are both on CPAP (a continuous supply of pressurised oxygen). Both are having some of mummies milk, Poppy is taking in a
Well, today is Holly and Poppy's 2 week milestone. The girls are currently going from strength to strength and are progressing well. They have both come off their ventilators and are both on CPAP (a continuous supply of pressurised oxygen). Both are having some of mummies milk, Poppy is taking in a
Completenewbie
in
Pregnancy and Parenting Support
9 years ago
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