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Polycystic Liver Disease
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
Transplant2018
in
Kidney Transplant
1 month ago
Records on 300m patient interactions with NHS stolen in Russian hack
This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]
Records on 300m patient interactions with NHS stolen in Russian hack
[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight
This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]
Records on 300m patient interactions with NHS stolen in Russian hack
[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Short fuse temper and mood swings
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
MilliganHorse
in
British Liver Trust
1 month ago
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Decompensated cirrhosis of the liver
My husband was recently diagnosed with decompensated cirrhosis of the liver in April of 2024 after 2 weeks in the hospital. He was discharged with some medications. Since then he was readmitted in May for a week, and in June for a week. He has ascites and everything else that comes with the disease
My husband was recently diagnosed with decompensated cirrhosis of the liver in April of 2024 after 2 weeks in the hospital. He was discharged with some medications. Since then he was readmitted in May for a week, and in June for a week. He has ascites and everything else that comes with the disease
Rxgurl
in
Living with Fatty Liver and NASH
1 month ago
Post Kidney Transplant
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
Zbiguy
in
Kidney Disease
1 month ago
Finding my way
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
I am still new to Kidney issues and looking for some guidance. Post liver transplant in Sept 2022, i had CMV virus, but over the last year my kidney function is declining. I think it was about 22% this time last year, but is now 19%- and probably continuing to fall. I am being monitored, my next
taar
in
Kidney Transplant
1 month ago
Kidney transplant 23 years my gfr now is 13 percent but I want no dialysis.
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
jennifer24
in
Kidney Transplant
1 month ago
perineal myxoid pseudotumor of fat
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
snoochy
in
Kidney Disease
1 month ago
My Story and Info if You Are Considering Home Hemodialysis!
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
Dialysis_Overcomer
in
Kidney Disease
2 months ago
NCGS/Celiac disease
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
6821green
in
Kidney Transplant
2 months ago
Weight gain - how to control it.
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
Tankjsl
in
Kidney Transplant
2 months ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Psychological and fitness assessment form
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Hi, I’m filling in my transplant assessment form for a meeting in a few weeks time and some of the questions seem vague. There is a question regarding how healthy I feel today with a scale from 1 to 10 ( eq5d ). Does this refer to mental, physical or general health ? Also , if you say you feel too
Bootsforlife
in
British Liver Trust
2 months ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
2 months ago
Liver transplant
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Anyone taking Envarsus after being on Adoport after liver transplant and had any side effects.
Ttck1825
in
British Liver Trust
2 months ago
fibro-scan results
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
I was diagnosed with a slight fatty liver a few years ago. I rarely drink alcohol. My hepatologist send me for an out of the blue Fivro-scan. My daughter came in with me and I was told my scores where very high which was a huge shock The kPa was 321 and was told 400 is max for liver transplant. The fatty
Maggie153
in
British Liver Trust
2 months ago
Liver transplant vs kidney transplant
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
taar
in
Kidney Transplant
2 months ago
A sad passing....
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
Earther
in
Kidney Transplant
2 months ago
Liver Health
For anyone in Ohio or close by, please plan to come to this event. My Doctor Dr. Na Li is putting it on. When: Saturday, June 15, 10 a.m. – Noon Where: River Crossing Park, 6635 Riverside Dr., Dublin, OH What: Ask questions and discover the latest treatment options from the liver specialists and
For anyone in Ohio or close by, please plan to come to this event. My Doctor Dr. Na Li is putting it on. When: Saturday, June 15, 10 a.m. – Noon Where: River Crossing Park, 6635 Riverside Dr., Dublin, OH What: Ask questions and discover the latest treatment options from the liver specialists and
Alterity
in
Living with Fatty Liver and NASH
2 months ago
Cynthia Delgado and Neil Powe Named to TIME100 Health List For Fighting Kidney Transplant Bias
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
JackieJ_NKF
Partner
in
Kidney Transplant
2 months ago
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