Experiences with

Corlan

I take sinamet comtan and amantadine. Recently my foot flop has gotten worse. I can’t tell if I should take my medicine sooner than usual.

I am hoping for some guidance for what to do next for my father. My father is in his early 70s, Gleason 8, PSMA and MRI last year showed no spread, but PSA was rapidly raising. He had an organ transplant years ago, and a small stroke, takes anti seizure medications, and has a walking disability due

This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]Records on 300m patient interactions with NHS stolen in Russian hack[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight

I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ

I responded to Jeaner73, that, Yes my big battle is with that Simipex, last night 11-09-2023 we received a phone call from my current Neurologist, I'll be posting what that three quarters of an hour phone call has lead to. Sunday evenings sleep 10th September ’23 amounted to around 3 hours off and on

While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any

I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk

We have tried using 25/100 ER in combo with 25/100 IR in an effort to increase time between doses and it consistently leads to negative symptoms that don't occur when I'm just taking the IR. Symtoms are mild headache, mild nausea, fatigue, my brain feels swollen and anxiety. It reminds me when I was

Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial

I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted

Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It

Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can

Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.

mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of

Hi this is my first time posting but I’ve been reading for a long time and I’m hoping someone here can shed light on what’s happening to my husband. He was diagnosed in 2013 with early onset (age 57) idiopathic Parkinson’s (rigidity and no tremors) and put on Sinemet and had two months of feeling better

Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48

Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for

I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but

https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug

Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our