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Congenital rubella syndrome
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Exercise that often helps
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Cedarish
in
Restless Legs Syndrome
3 months ago
A useful option-gastro resistant empty capsules
a post yesterday reminded me to tell you all that I’ve been taking my preds in gastro resistant empty capsules for a couple of months now. This means I can take them without food around midnight. But I have also taken them at 11pm ish and not noticed any difference. I asked a gp if I should still take
a post yesterday reminded me to tell you all that I’ve been taking my preds in gastro resistant empty capsules for a couple of months now. This means I can take them without food around midnight. But I have also taken them at 11pm ish and not noticed any difference. I asked a gp if I should still take
Freshairfiend
in
PMRGCAuk
7 months ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
3 months ago
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levodopa and augmentation
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
Covenant1962
in
Restless Legs Syndrome
3 months ago
Solving Restless Legs
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
thorp
in
Restless Legs Syndrome
3 months ago
cryo-ablation update
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
Tilly1957
in
Atrial Fibrillation Support
3 months ago
RLS treatment Australia
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
ChickenTwisty
in
Restless Legs Syndrome
3 months ago
Statins
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Keith1231
in
Restless Legs Syndrome
3 months ago
Methadone induced brain fog
Hello friends! I have been successfully using 10 mg of methadone for 18 months with no side effects. The past few months I have been experiencing brain fog. It is increasing in severity and frequency. My search to see if methadone or bupremorphine can cause this is enlightening. It definitely can
Hello friends! I have been successfully using 10 mg of methadone for 18 months with no side effects. The past few months I have been experiencing brain fog. It is increasing in severity and frequency. My search to see if methadone or bupremorphine can cause this is enlightening. It definitely can
Qalba
in
Restless Legs Syndrome
3 months ago
methadone no longer helping
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
wairoa36
in
Restless Legs Syndrome
3 months ago
Switching to pregabalin or gabapentin from methadone
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
Cedarish
in
Restless Legs Syndrome
3 months ago
Physically cutting buprenorphine pills
After going through augmentation with pramipexole and no luck with gabapentin or lyrica, I was prescribed buprenorphine about 5 weeks ago and it has been a miracle. No RLS at all. I have found that a dose of .25 mg about 45 minutes before bed works perfectly. The problem I have is that the smallest
After going through augmentation with pramipexole and no luck with gabapentin or lyrica, I was prescribed buprenorphine about 5 weeks ago and it has been a miracle. No RLS at all. I have found that a dose of .25 mg about 45 minutes before bed works perfectly. The problem I have is that the smallest
SleeplessInNS
in
Restless Legs Syndrome
4 months ago
Results
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Hi there ..I was diagnosed with active thyroiditis 29.4F4 and on 10 mg Carbmizole. This is my latest test result ....clearly improved but should I worry about my TSH?
Apodemus
in
Thyroid UK
7 months ago
DA withdrawal progress
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Louless9
in
Restless Legs Syndrome
4 months ago
Ropinirole
Good Morning, My restless legs started in 2003 when I was pregnant with my son, after I had him they went away. Then around 2019 they came back with a vengeance. After an appointment with the Doctor I was put on Ropinirole, over the years my dose has gradually increased. I have been on 1.5mg for
Good Morning, My restless legs started in 2003 when I was pregnant with my son, after I had him they went away. Then around 2019 they came back with a vengeance. After an appointment with the Doctor I was put on Ropinirole, over the years my dose has gradually increased. I have been on 1.5mg for
deluxebar
in
Restless Legs Syndrome
4 months ago
Dr Glen Z brooks NYC
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
I met with Glen a couple of weeks ago , he is now 76 and no longer taking in new RLS patients It has become increasingly difficult for him to prescribe Buprenorphine the biggest problem is he cannot find doctors who will continue to prescribe for Buprenorphine when he is no longer working. Glen said
Shumbah
in
Restless Legs Syndrome
4 months ago
I need your help 😢
I have been on ropinirole for about 8 years. I started out with 1 mg at night and after a few years it progressed to 1 mg in the morning, 1 mg at 3 pm, and 2 mg at 8 pm to regulate my RLS. About 6 months ago I began to wein off the Ropinirole. About 3 months ago when I got to 1 and 1/2 mg I started
I have been on ropinirole for about 8 years. I started out with 1 mg at night and after a few years it progressed to 1 mg in the morning, 1 mg at 3 pm, and 2 mg at 8 pm to regulate my RLS. About 6 months ago I began to wein off the Ropinirole. About 3 months ago when I got to 1 and 1/2 mg I started
Hotrodder
in
Restless Legs Syndrome
4 months ago
Which treatment after dopamine agonist withdrawal?
I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process (tramadol, pregabaline, clonazepan, wellbrutin). My plan is to get back to my pre-DA RLS baseline level, and to treat them with pregabaline only
I'm currently fighting to withdraw from dopamine agonist (DA) after a severe augmentation. I was prescribed some other drugs to help me go through this process (tramadol, pregabaline, clonazepan, wellbrutin). My plan is to get back to my pre-DA RLS baseline level, and to treat them with pregabaline only
Mikatrap
in
Restless Legs Syndrome
4 months ago
For those taking methadone, do you think it affects your sleep quality?
Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone. Eventually I hope to taper the Mirapex to zero. I have a vulnerability to obstructive sleep apnea and once my specialist had transitioned me to increasing
Having gotten rid of almost all (but not quite!) Mirapex nearly 2 years ago, my current meds are 0.125 mg Mirapx, 600 mg Horizant, and 10 mg methadone. Eventually I hope to taper the Mirapex to zero. I have a vulnerability to obstructive sleep apnea and once my specialist had transitioned me to increasing
UsableThought
in
Restless Legs Syndrome
4 months ago
Off topic. This is me done with hols abroad 😔
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
So here I am, lying on the bed in a villa in menorca. My T9 compression fracture is back in pain with avengence! Saw doc on 2nd day here but pain killers he gave me are no good. So messaged him today asking for morphine to get me through 2 more days and flight home on Sunday. Don't know what I'll do
Haz58
in
NRAS
4 months ago
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