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Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
7 months ago
Low cortisol
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
redhead41
in
Thyroid UK
4 months ago
Hyberbaric Oxygen Therapy
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
I have a friend who contracted Lyme disease and recently underwent a series of hyperbaric oxygen therapy sessions. The treatment has completely transformed him and he is now his old self. I have read that this therapy helps Fibromyalgia and other autoimmune diseases and was wondering if anyone knew
Lassie2
in
PMRGCAuk
6 days ago
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Me again
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Hidden
in
British Heart Foundation
4 months ago
How Do Those on T3 or Combo Therapy Navigate TSH Obsessed Doctors
After my pitiful NHS results in December ( before starting self sourced T3) my GP increased my Levo to 200mcg a day. I haven't been taking that much, obviously as I'm taking 150mcg of Levo and 12.5mgs of T3. The GP I spoke to said retest February and unfortunately my surgery have been uncharacteristically
After my pitiful NHS results in December ( before starting self sourced T3) my GP increased my Levo to 200mcg a day. I haven't been taking that much, obviously as I'm taking 150mcg of Levo and 12.5mgs of T3. The GP I spoke to said retest February and unfortunately my surgery have been uncharacteristically
Sparklingsunshine
in
Thyroid UK
4 months ago
Oxygen levels
I have had COPD for around 15 years and it is getting steadily worse. I have the normal inhalers , have a air physio device, a nebuliser and recently have been accepted for oxygen therapy. On my last visit to hospital I was given the device that checks your oxygen levels. As I have only had this device
I have had COPD for around 15 years and it is getting steadily worse. I have the normal inhalers , have a air physio device, a nebuliser and recently have been accepted for oxygen therapy. On my last visit to hospital I was given the device that checks your oxygen levels. As I have only had this device
jackwok
in
Lung Conditions Community Forum
4 months ago
Music therapy
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
PDKiwi
in
Cure Parkinson's
5 months ago
wax treatments
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
stage 3b/c inoperable non small cell lung cancer. Cannot tolerate durvalumab, (pneumonitis) No mutations - any hope?
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
ohayeai
in
The Roy Castle Lung Cancer Foundation
5 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
5 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
5 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
5 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
5 months ago
Pain Relief
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Davewm
in
Pain Concern
7 months ago
Problem with EBV
Hi all I have active EBV, but I can't take Lysine because it reduces my sleep-5,6 hours and I sleep very poorly by waking up several times during the night. My question is, is there anything else that can successfully replace Lysine. I've tried taking Valtrex, but I'm even worse off it, because it's
Hi all I have active EBV, but I can't take Lysine because it reduces my sleep-5,6 hours and I sleep very poorly by waking up several times during the night. My question is, is there anything else that can successfully replace Lysine. I've tried taking Valtrex, but I'm even worse off it, because it's
Stongwave
in
Thyroid UK
1 year ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
5 months ago
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