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Experiences with
Colchicine / Probenecid
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Recently Diagnosed after 6 years!
Hey! I was recently diagnosed with Sweet Syndrome after suffering for 6 years as well as problems with my bowel along side it which now they think I may have a bowel disease and currently under investigation. I was prescribed colchicine and that didn’t do anything and then was prescribed prednisolone
Hey! I was recently diagnosed with Sweet Syndrome after suffering for 6 years as well as problems with my bowel along side it which now they think I may have a bowel disease and currently under investigation. I was prescribed colchicine and that didn’t do anything and then was prescribed prednisolone
Echo2292
in
Sweet's Syndrome UK
5 years ago
Behcet's and sinus problems
This is my first post here... I was curious if anyone else with Behcet's has had sinus issues? I was diagnosed with Behcet's this past spring, though I've been showing signs since I was 21 (27 now). I am taking colchicine now to help with symptoms. When I was 16, I had surgery to correct a deviated
This is my first post here... I was curious if anyone else with Behcet's has had sinus issues? I was diagnosed with Behcet's this past spring, though I've been showing signs since I was 21 (27 now). I am taking colchicine now to help with symptoms. When I was 16, I had surgery to correct a deviated
gewb
in
Behçet's UK
5 years ago
Chronic Pericarditis
Hi I have been suffering with pericarditis for nearly 2 years. My initial attack was in January 2018. I was taken into hospital with a suspected heart attack - very scary! After being discharges with no diagnosis I went backwards and forwards to my GP with no luck. I then eventually went private -
Hi I have been suffering with pericarditis for nearly 2 years. My initial attack was in January 2018. I was taken into hospital with a suspected heart attack - very scary! After being discharges with no diagnosis I went backwards and forwards to my GP with no luck. I then eventually went private -
Tanyaz
in
British Heart Foundation
5 years ago
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Fibromyalgia and sweet syndrome together?
Hi, I haven’t posted in some time. I was diagnosed with sweet syndrome last year, hospitalized and put on prednisone and I’m now on colchicine which has helped to keep the sores from getting so bad. I was wondering if there are others with both fibromyalgia and sweet syndrome as well?
Hi, I haven’t posted in some time. I was diagnosed with sweet syndrome last year, hospitalized and put on prednisone and I’m now on colchicine which has helped to keep the sores from getting so bad. I was wondering if there are others with both fibromyalgia and sweet syndrome as well?
charlie01
in
Fibromyalgia Action UK
5 years ago
Behcets in pregnancy
Hi guys, I’m 32 and been diagnosed with behcets back in 2011. I’ve been on colchicine since and prednisolone when I have flares. I found out a while ago that I was pregnant (on colchicine) and my gp freaked out and asked me to stop the medication which I did immediately. A few weeks after had a miscarriage
Hi guys, I’m 32 and been diagnosed with behcets back in 2011. I’ve been on colchicine since and prednisolone when I have flares. I found out a while ago that I was pregnant (on colchicine) and my gp freaked out and asked me to stop the medication which I did immediately. A few weeks after had a miscarriage
MaisieGo
in
Behçet's UK
5 years ago
Looking for advice on meds and where to go next
Hi everyone, I just saw my rheumatologist who wanted to switch my meds up a bit as he no longer wanted me on prednisone (only wants me to use it when necessary) I had been taking it everyday for 10 months, but I was starting to get severe brain fog.. long story short, since being off of it my mind
Hi everyone, I just saw my rheumatologist who wanted to switch my meds up a bit as he no longer wanted me on prednisone (only wants me to use it when necessary) I had been taking it everyday for 10 months, but I was starting to get severe brain fog.. long story short, since being off of it my mind
Camp1997
in
Behçet's UK
5 years ago
Sports with Behcet's
Hey folks, I'm new to the forum, this is my first post but have been looking through the forum for a few months now and found the advice and support given here really helpful. I'm 28 and have recently been diagnosed with Behcet's after a pretty bad flare up, DVT in my thigh and uveitis in both eyes,
Hey folks, I'm new to the forum, this is my first post but have been looking through the forum for a few months now and found the advice and support given here really helpful. I'm 28 and have recently been diagnosed with Behcet's after a pretty bad flare up, DVT in my thigh and uveitis in both eyes,
Jojitsu
in
Behçet's UK
5 years ago
Digitoxin
New study below [1]. The foxglove-related arrhythmia drugs (Digitoxin, Digoxin, Digitalis) don't crop up much in the PCa literature, although there was a post last year on: "
Sotalol & Digoxin (antiarrhythmic drugs) & PCa.
" [2]. For Digitoxin, aside from the 1979 paper "
A therapeutic castastrophe
New study below [1]. The foxglove-related arrhythmia drugs (Digitoxin, Digoxin, Digitalis) don't crop up much in the PCa literature, although there was a post last year on: "
Sotalol & Digoxin (antiarrhythmic drugs) & PCa.
" [2]. For Digitoxin, aside from the 1979 paper "
A therapeutic castastrophe
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Resistance to colchicine
Sharing an article that I saw just now: https://www.mdlinx.com/journal-summaries/ustekinumab-beh-ccedil-et-s-disease/2019/08/15/7575654/ Might help those resistant to treatment with colchicine ? 🙃
Sharing an article that I saw just now: https://www.mdlinx.com/journal-summaries/ustekinumab-beh-ccedil-et-s-disease/2019/08/15/7575654/ Might help those resistant to treatment with colchicine ? 🙃
magician
in
Behçet's UK
5 years ago
Recurrent myocarditis
New to forum and keen to share and hear other experiences about myocarditis - particularly repeat events. I’m 44 and was hospitalised following severe chest pain last October (troponin levels 1400, confirmed by MRI to be myocarditis). Treated with colchicine and repeat MRI in March confirmed inflammation
New to forum and keen to share and hear other experiences about myocarditis - particularly repeat events. I’m 44 and was hospitalised following severe chest pain last October (troponin levels 1400, confirmed by MRI to be myocarditis). Treated with colchicine and repeat MRI in March confirmed inflammation
Heartandy
in
British Heart Foundation
5 years ago
Swollen muscles
I was diagnosed with HUVS last year . Since then l have taken colchicine and hydroxychloroquine. . Finally being diagnosed l was very optimistic, but l am still getting very painful attacks . I am getting more swollen patches especially on my back which means that l can not put any pressure on it ,
I was diagnosed with HUVS last year . Since then l have taken colchicine and hydroxychloroquine. . Finally being diagnosed l was very optimistic, but l am still getting very painful attacks . I am getting more swollen patches especially on my back which means that l can not put any pressure on it ,
artists
in
Vasculitis UK
5 years ago
Gout
Been to the doctors tonight and he has confirmed I have gout (left foot) dam painful been like it since last Thursday, put me on colchicine 500 micro-gram 2 3 times a day no more than 12 in a day and can take ibuprofen 400 mg 1 x 3 times a day. Then bloods to be done in a couple of weeks, is this
Been to the doctors tonight and he has confirmed I have gout (left foot) dam painful been like it since last Thursday, put me on colchicine 500 micro-gram 2 3 times a day no more than 12 in a day and can take ibuprofen 400 mg 1 x 3 times a day. Then bloods to be done in a couple of weeks, is this
mascotty02
in
Pain Concern
5 years ago
Elevated ca125 levels/ possible liver problems?
I could use a little feedback. My ca125 levels have been going down steadily for the past five or six treatments. Unfortunately, I seem to have had issues with my heart. As I'm on avastin, it has most likely been the culprit in the ongoing developing build-up of fluid around the heart sac and the inflammation
I could use a little feedback. My ca125 levels have been going down steadily for the past five or six treatments. Unfortunately, I seem to have had issues with my heart. As I'm on avastin, it has most likely been the culprit in the ongoing developing build-up of fluid around the heart sac and the inflammation
Natsmb
in
My Ovacome
5 years ago
Fibromyalgia/ Gout
Hi fellow sufferers I have had Fibromyalgia for about 10 years. During this time I have had every medicine under the sun with no real affect with releasing my pain. However just recently had to have a blood test due to my severe pain over all my body. I got an urgent call from my Gp next day as test
Hi fellow sufferers I have had Fibromyalgia for about 10 years. During this time I have had every medicine under the sun with no real affect with releasing my pain. However just recently had to have a blood test due to my severe pain over all my body. I got an urgent call from my Gp next day as test
Tosca19
in
Fibromyalgia Action UK
5 years ago
At last 1st rheumatologist Appointment & Colchicine
So after 2 cancelled appointments it finally happened. Went to local hospital to see rheumatologist for the first time. Went in with a very non positive attitude thinking will have a chat she might look at pics and then send me away with no more advice as to what and why I feel so unwell. But omg what
So after 2 cancelled appointments it finally happened. Went to local hospital to see rheumatologist for the first time. Went in with a very non positive attitude thinking will have a chat she might look at pics and then send me away with no more advice as to what and why I feel so unwell. But omg what
Hidden
in
Behçet's UK
5 years ago
Snakes alive
Hi everyone, I’m recently going through the process of being diagnosed with Bechets after positively responding to colchicine and having my mouth and bottom ulcers enter into remission (I have found it does little for the pain though and muscle twitching). I’m currently lying in bed, as I’m quite dizzy
Hi everyone, I’m recently going through the process of being diagnosed with Bechets after positively responding to colchicine and having my mouth and bottom ulcers enter into remission (I have found it does little for the pain though and muscle twitching). I’m currently lying in bed, as I’m quite dizzy
Dorisi2i
in
Behçet's UK
5 years ago
Pericarditis and recovery
Hi all, I’ve just been discharged from hospital with pericarditis. I’ve been given a few medications including colchicine. It’s being going on for a couple of weeks now and I’m still in pain. Does anyone have any advice for recovery? I’ve been told to rest and I know I cannot do any HIIT training
Hi all, I’ve just been discharged from hospital with pericarditis. I’ve been given a few medications including colchicine. It’s being going on for a couple of weeks now and I’m still in pain. Does anyone have any advice for recovery? I’ve been told to rest and I know I cannot do any HIIT training
PunkyPrincess1
in
British Heart Foundation
5 years ago
Pericarditism how long does it last?
I'm now 3 months into pericardis and am taking the usual colchicine, ibuprofen and omeprazole combination. Although I am undoubtedly better than at the start I have many days when the pain returns, often like a breathtaking electric shock. Work has been a struggle and the whole experience is depressing
I'm now 3 months into pericardis and am taking the usual colchicine, ibuprofen and omeprazole combination. Although I am undoubtedly better than at the start I have many days when the pain returns, often like a breathtaking electric shock. Work has been a struggle and the whole experience is depressing
Askthebees
in
British Heart Foundation
5 years ago
Have worst time with ulcers
I have been in an awful flare genital,intestinal, nose. throat & mouth ulcers, (now feeling like it’s going back to cranial nerves) Feeling like had a weighted blanket on me all day, feeling of being hot and cold all day. Inconsistent bowels, stomach cramps, inconsistent sleeping pattern. Days when
I have been in an awful flare genital,intestinal, nose. throat & mouth ulcers, (now feeling like it’s going back to cranial nerves) Feeling like had a weighted blanket on me all day, feeling of being hot and cold all day. Inconsistent bowels, stomach cramps, inconsistent sleeping pattern. Days when
Frustrated2
in
Behçet's UK
5 years ago
Ablation - Second Procedure
Greetings All, I had my second Ablation on Tuesday, April 30 in NYC. Home now and feeling tired, sore and a little beaten up. Doctor thinks it all went well and rest and time will tell. I was much stronger and more prepared mentally and physically this time. Please if anyone is hesitating about the procedure
Greetings All, I had my second Ablation on Tuesday, April 30 in NYC. Home now and feeling tired, sore and a little beaten up. Doctor thinks it all went well and rest and time will tell. I was much stronger and more prepared mentally and physically this time. Please if anyone is hesitating about the procedure
Rebma
in
AF Association
5 years ago
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