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Coagulation factor IX
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Myopic CNV Success Stories?
Hi all, I am new here and seeking some support & inspiration. I am a high myope (-10 &-12) and nearly 3 years ago, aged 41, was diagnosed with cnv in the left eye. This was treated with 2 injections of Lucentis, resolved well and remains stable. Now, aged 44, I have developed cnv in the right eye, which
Hi all, I am new here and seeking some support & inspiration. I am a high myope (-10 &-12) and nearly 3 years ago, aged 41, was diagnosed with cnv in the left eye. This was treated with 2 injections of Lucentis, resolved well and remains stable. Now, aged 44, I have developed cnv in the right eye, which
ukmyope
in
Macular Society
5 years ago
Thyroid or Sjogrens?
Just wondering if anybody is able to shed any light on this mystery autoimmune condition I am experiencing! I have been suffering from severely dry eyes now for around 5 years (I'm 30) and have previously been investigated for Sjogrens syndrome. I tested positive for ANA in 2014, however it was only
Just wondering if anybody is able to shed any light on this mystery autoimmune condition I am experiencing! I have been suffering from severely dry eyes now for around 5 years (I'm 30) and have previously been investigated for Sjogrens syndrome. I tested positive for ANA in 2014, however it was only
jen7730
in
Thyroid UK
5 years ago
Help for itchy, dry skin.
My skin has always been very dry, but has changed over previous months, feeling much more dry and uncomfortable with patches of eczema developing. (Am hypothyroid). On friend's recommendation have been using Equimins Udder Cream - 1 kg Tub - Eqs0367. It's actually for horses but is a non-greasy
My skin has always been very dry, but has changed over previous months, feeling much more dry and uncomfortable with patches of eczema developing. (Am hypothyroid). On friend's recommendation have been using Equimins Udder Cream - 1 kg Tub - Eqs0367. It's actually for horses but is a non-greasy
notpink
in
Thyroid UK
5 years ago
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Pernicious anaemia diagnosis
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
Ferrett1
in
Pernicious Anaemia Society
5 years ago
Unclear diagnosis
Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just finished the 2 week course of 6 shots. I’ve also had a second blood test to test for intrinsic factor antibodies and parietal cell antibodies but my nurse was less than clear as to what this means but she did say it’s not diet
Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just finished the 2 week course of 6 shots. I’ve also had a second blood test to test for intrinsic factor antibodies and parietal cell antibodies but my nurse was less than clear as to what this means but she did say it’s not diet
Hidden
in
Pernicious Anaemia Society
5 years ago
Can you have PA if Haemoglobin is ok?
Just taken my daughter to gp (different one in the surgery) to discuss test results and what to do next. Coeliac negative, intrinsic factor negative. Other gp had ok’d loading jabs which she had in December as b12 was 166, ferritin 14 and folate 4. McV and MCH at top of range. Also put on iron tablets
Just taken my daughter to gp (different one in the surgery) to discuss test results and what to do next. Coeliac negative, intrinsic factor negative. Other gp had ok’d loading jabs which she had in December as b12 was 166, ferritin 14 and folate 4. McV and MCH at top of range. Also put on iron tablets
Vicky2822
in
Pernicious Anaemia Society
5 years ago
Thoughts on Intrinsic Factor supplements
I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic factor. I think the IF is derived from pigs. Any research if this is effective?
I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic factor. I think the IF is derived from pigs. Any research if this is effective?
kclusa
in
Pernicious Anaemia Society
5 years ago
Methionine Restriction.
New U.S. cell study below [1]. Studies show that vegan populations have a higher occurrence of various deficiencies. It's a diet that requires a certain amount of education & discipline to get right. But this also makes it an attractive diet for selective nutrient restriction. Methionine is an essential
New U.S. cell study below [1]. Studies show that vegan populations have a higher occurrence of various deficiencies. It's a diet that requires a certain amount of education & discipline to get right. But this also makes it an attractive diet for selective nutrient restriction. Methionine is an essential
pjoshea13
in
Advanced Prostate Cancer
5 years ago
After a B12 IM injection how long should I leave it before having a blood test that would give a reliable reading for B12.
Having conflicting treatment from different doctors at our GP practice that is seeing lots of changes of personnel. Had 6 loading and 1 maintenance injections and then different doctor stopped further ones after blood test for intrinsic factor came back negative.
Having conflicting treatment from different doctors at our GP practice that is seeing lots of changes of personnel. Had 6 loading and 1 maintenance injections and then different doctor stopped further ones after blood test for intrinsic factor came back negative.
wrengh
in
Pernicious Anaemia Society
5 years ago
Diagnosis issues
Hi, I have had a history of b12 def in pregnancy 23 years ago. My levels were at 700 when tasted in 2011 without having had a b12 injection for 5 years although I had had some oral b12 supplements during that period. In September my levels were rechecked due to neuro symptoms which I have been experiencing
Hi, I have had a history of b12 def in pregnancy 23 years ago. My levels were at 700 when tasted in 2011 without having had a b12 injection for 5 years although I had had some oral b12 supplements during that period. In September my levels were rechecked due to neuro symptoms which I have been experiencing
Numbsew
in
Pernicious Anaemia Society
5 years ago
Help with supplementing please
Hi all, I have popped over from the thyroid UK forum. I am newly diagnosed with Hashimoto’s and hypothyroidism. I’m feeling very tired with brain fog and poor memory and whilst I realise I’m probably not yet adequately treated with thyroxine yet I want to try and increase my B12 and folate levels
Hi all, I have popped over from the thyroid UK forum. I am newly diagnosed with Hashimoto’s and hypothyroidism. I’m feeling very tired with brain fog and poor memory and whilst I realise I’m probably not yet adequately treated with thyroxine yet I want to try and increase my B12 and folate levels
Redrosegirlie
in
Pernicious Anaemia Society
5 years ago
Herbal tampons
I had a laparoscopy done in november to check for endometriosis and blockage in my tubes. Endo removed and tubes open but slow due to some scarring. We have been referred to fertillity clinic and first appointment is in a week and a half. I know they will either suggest an op to remove scarring or ivf
I had a laparoscopy done in november to check for endometriosis and blockage in my tubes. Endo removed and tubes open but slow due to some scarring. We have been referred to fertillity clinic and first appointment is in a week and a half. I know they will either suggest an op to remove scarring or ivf
Purplewitch18
in
Fertility Network UK
5 years ago
Herbal tampons
I had a laparoscopy done in november to check for endometriosis and blockage in my tubes. Endo removed and tubes open but slow due to some scarring. We have been referred to fertillity clinic and first appointment is in a week and a half. I know they will either suggest an op to remove scarring or ivf
I had a laparoscopy done in november to check for endometriosis and blockage in my tubes. Endo removed and tubes open but slow due to some scarring. We have been referred to fertillity clinic and first appointment is in a week and a half. I know they will either suggest an op to remove scarring or ivf
Purplewitch18
in
Fertility Network UK
5 years ago
Trying to get B12D sorted & want to know what to ask/say to Dr. Loading x5 Sept '18, just had blood test & I think low again.
Hi from UK. Trying to be brief. I was really poorly for about a year from Sept '17 with a plethora of 'unexplained' symptons (which I now know all fit under pretfy much every possibility for B12D). Was not able to work & really debilitated by it all physically & mentally/emotionally. I had a couple
Hi from UK. Trying to be brief. I was really poorly for about a year from Sept '17 with a plethora of 'unexplained' symptons (which I now know all fit under pretfy much every possibility for B12D). Was not able to work & really debilitated by it all physically & mentally/emotionally. I had a couple
eclilley
in
Pernicious Anaemia Society
5 years ago
Hypothyroid or not?!?! Do I need Medication? Please Help
Hello, I'm only 22 and in my second year at university and struggling so much and feel it's hard to get people (GP and families) to understand the extent to how bad I feel (lethargic/tired, mood swings, zoned out, poor memory, aching neck/shoulders). I'd appreciate some opinions of the experience
Hello, I'm only 22 and in my second year at university and struggling so much and feel it's hard to get people (GP and families) to understand the extent to how bad I feel (lethargic/tired, mood swings, zoned out, poor memory, aching neck/shoulders). I'd appreciate some opinions of the experience
1966sll
in
Thyroid UK
5 years ago
b12 jabs stopped!
i really need some advice, had a nitemare with nursey at the surgery today, she was refusing to give me my jab,as she is saying i do not need it anymore, and that they will be stopped,as my parental cells was negative, but they still have to get the intrinsic factor test done as ive not had that, and
i really need some advice, had a nitemare with nursey at the surgery today, she was refusing to give me my jab,as she is saying i do not need it anymore, and that they will be stopped,as my parental cells was negative, but they still have to get the intrinsic factor test done as ive not had that, and
lizalily
in
Pernicious Anaemia Society
5 years ago
Hi, I’m new on here.
I was diagnosed with low B12 and no intrinsic factor (so I presume pernicious anaemia) last October. I’m 73, so age is a major factor here. I’ve also used proton pump inhibitors for some years, had eating disorders and have other auto immune disorders and been vegetarian for over 40 years, so no great
I was diagnosed with low B12 and no intrinsic factor (so I presume pernicious anaemia) last October. I’m 73, so age is a major factor here. I’ve also used proton pump inhibitors for some years, had eating disorders and have other auto immune disorders and been vegetarian for over 40 years, so no great
Dragonwalker
in
Pernicious Anaemia Society
5 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Advice on what to do next
Morning all, I posted before Christmas regarding my new diagnosis. My doctor found antibodies by chance when she was checking for reumatroid arthritis antibodies after I'd gone to her with fatigue, headaches and joint pain mainly in my knees. She said it was intrinsic factor antibodies and she would
Morning all, I posted before Christmas regarding my new diagnosis. My doctor found antibodies by chance when she was checking for reumatroid arthritis antibodies after I'd gone to her with fatigue, headaches and joint pain mainly in my knees. She said it was intrinsic factor antibodies and she would
Emmapemma
in
Pernicious Anaemia Society
6 years ago
Daughter starts treatment
My daughter recently diagnosed with RA after birth of second baby. Aches in knees which progressed to feet, hands and now shoulders. Had blood test and no signs of inflammation but Rheumatoid Factor of 31. CCR and CCP came back normal and had ultra sound scan on hands and no inflammation showing.
My daughter recently diagnosed with RA after birth of second baby. Aches in knees which progressed to feet, hands and now shoulders. Had blood test and no signs of inflammation but Rheumatoid Factor of 31. CCR and CCP came back normal and had ultra sound scan on hands and no inflammation showing.
twinks1954
in
NRAS
6 years ago
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