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Ibrutinib VS V&O
Hi everyone I am looking for some clarity here. I started IMBRUVICA a few years ago and all is well so far thank goodness. What I’m wondering is: it seems from what I’ve gathered here that V and O is fixed term and causes remission back to watch and wait while those of us on IMBRUVICA are on it indefinitely
Hi everyone I am looking for some clarity here. I started IMBRUVICA a few years ago and all is well so far thank goodness. What I’m wondering is: it seems from what I’ve gathered here that V and O is fixed term and causes remission back to watch and wait while those of us on IMBRUVICA are on it indefinitely
GettinThruIt
in
CLL Support
2 months ago
Trodelvy after one year update
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in September 2019. Mets to lungs and bones. Started with Ibrance and Letrozole and lungs cleared immediately bones were fairly stable and CA15 dropped
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
2 months ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
2 months ago
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Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
APK3
in
Advanced Prostate Cancer
2 months ago
Fatigue & Appetite loss
Please can anyone help me - I'm really struggling with fatigue which seems to continued after my Chemo stopped in May 2023, plus I just cannot regain my appetite and I am finding this so difficult combined with the daily battle against the disease. Thank you buddies for being there clive
Please can anyone help me - I'm really struggling with fatigue which seems to continued after my Chemo stopped in May 2023, plus I just cannot regain my appetite and I am finding this so difficult combined with the daily battle against the disease. Thank you buddies for being there clive
Nyon
in
Advanced Prostate Cancer
2 months ago
fatique
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
diagnosed Dec 2022 with stage IV advanced metastatic prostate cancer spread to most bones primarily spine and pelvis - pelvis area continues to be an issue for me. had 10 quick radiation sessions on some spinal drop tumours the Decatoxel x 10 rounds of chemo, ended May 2023 plus Firmagon (Degarelix
Nyon
in
Advanced Prostate Cancer
2 months ago
Lung cancer stage 4
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
Just curious - have had cancer 6 times now, breast cancer x 3; bowel; lung; 5 times all operated on & fine, now this 6th time caused by the radiotherapy I had 25 years ago for my breast cancer caused my squamous lung cancer, not operable + of course no radiotherapy as I've had the max - was only discovered
younginmind
in
Lung Conditions Community Forum
2 months ago
helpful article
Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID: 37296941; PMCID: PMC10251846. I feel people are often wondering why they can’t have Avastin or PARPs again and this article gives good scientific
Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID: 37296941; PMCID: PMC10251846. I feel people are often wondering why they can’t have Avastin or PARPs again and this article gives good scientific
delia2
in
My Ovacome
2 months ago
diagnosed with Cancer- mom
I am a mom to a beautiful 11 year old and I was just diagnosed with Cancer . My daughter and I are in a different state than my family and I am going to need help with someone staying with me after chemo and surgeries so I asked my mother to come up but our history is very rocky. Although she is very
I am a mom to a beautiful 11 year old and I was just diagnosed with Cancer . My daughter and I are in a different state than my family and I am going to need help with someone staying with me after chemo and surgeries so I asked my mother to come up but our history is very rocky. Although she is very
Fracklov
in
Anxiety and Depression Support
2 months ago
Post-prostatectomy cancer status + treatment
Scholz, medical oncologist, thinks I should strongly consider, due to my age, adjuvant radiation and hormone therapy and even, possibly
chemotherapy
. If I was in my 70s, he said, a "wait and see" approach would be reasonable ("no brainer"). To be clear, Dr.
Scholz, medical oncologist, thinks I should strongly consider, due to my age, adjuvant radiation and hormone therapy and even, possibly
chemotherapy
. If I was in my 70s, he said, a "wait and see" approach would be reasonable ("no brainer"). To be clear, Dr.
MakeItRainbows
in
Prostate Cancer Network
9 months ago
Bowel and bladder problems after Radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Hi, I am Maz and I am 76 years old, I still work but from home now. I have suffered with multiple sclerosis for over 40 years although apart from the early years it hasn't bothered me too much until 2013 when I was diagnosed with anal cancer stage T3. I underwent some chemo and a great deal of radiotherapy
Maz131
in
Pelvic Radiation Disease Association
2 months ago
Hair, brows and eyelashes!
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer. I’ve been a runner my whole life - almost 60 - and have lived a pretty “clean” life. So…all of this was pretty crazy. I had to go off the targeted
SuziSch
in
My Ovacome
2 months ago
A weighty issue saga
Greetings all, Let me start by saying I have always (for the last 60 years) been conscious of my weight. Even at 72, I am still 'hard wired' into dieting. Before starting hydroxy 3.5 years ago , I was 53kg and 164cm. My ideal range pre-hydroxy was in the 55-57kg range. Today I am 60kg. My hydroxy dose
Greetings all, Let me start by saying I have always (for the last 60 years) been conscious of my weight. Even at 72, I am still 'hard wired' into dieting. Before starting hydroxy 3.5 years ago , I was 53kg and 164cm. My ideal range pre-hydroxy was in the 55-57kg range. Today I am 60kg. My hydroxy dose
Goosebumps52
in
MPN Voice
2 months ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
2 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
2 months ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59• A few seconds ago•0 Replies My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available
Beej59
in
Prostate Cancer Network
2 months ago
In the UK Olaparib only seems to be available for those testing positive for BRCA. Is this a cost issue that it is not widely available?
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
My partner has advanced PC with tumours in ribs, spine and iliac. He has been stable on Zoladex for 8 years but this may now be changing. We insisted on a BRCA test which has come back negative but from what I understand Olaparib is only being made available to patients in the UK for those who test
Beej59
in
Advanced Prostate Cancer
2 months ago
Flummoxed and in a Pickle 🙃🙂
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Freckle1000
in
My Breast Cancer Community
2 months ago
Dana Farber 2nd opinion?
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
TammyCross
in
SHARE Metastatic Breast Cancer
2 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
2 months ago
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