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Cerebral vasculitis
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MPA with Aorta involvement
Hi All, Latest confused question ;-) I have MPA but a recent MRI on my heart has shown some damage to the Aorta, indicating a large vessel vasculitis. Has anybody seen similar - this has stumped me!
Hi All, Latest confused question ;-) I have MPA but a recent MRI on my heart has shown some damage to the Aorta, indicating a large vessel vasculitis. Has anybody seen similar - this has stumped me!
JaneLE
Administrator
in
Vasculitis UK
10 years ago
Anybody been told the same? Diagnosed with Leukocytoclastic vasculitis few months ago & now been told that from my most recent bloods
i have Rheumatoid Arthritis & that is what is causing my vasculitis, have been referred back to the rheumatologist so yet again now waiting for appointment to discuss treatment as yet still not taking any meds other than pain killers, feeling confused :/
i have Rheumatoid Arthritis & that is what is causing my vasculitis, have been referred back to the rheumatologist so yet again now waiting for appointment to discuss treatment as yet still not taking any meds other than pain killers, feeling confused :/
nesbitt
in
Vasculitis UK
10 years ago
VASCULITIS UK - JANUARY e-NEWS
I have just sent out an e-News to everyone in the e-News address book. The e-News is full of lots of interesting things, including the link to read more about the NICE appraisal and acceptance of Rituximab for the treatment of the two main ANCA Associated Vasculitis disease - GPA (Granulomatosis with
I have just sent out an e-News to everyone in the e-News address book. The e-News is full of lots of interesting things, including the link to read more about the NICE appraisal and acceptance of Rituximab for the treatment of the two main ANCA Associated Vasculitis disease - GPA (Granulomatosis with
PatriciaAnn
in
Vasculitis UK
10 years ago
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UK's NICE Gives the Green Light to Rituximab
NICE has issued new Guidelines approving the use in the NHS of rituximab (MabThera) in treating the two most common types of ANCA vasculitis http://www.vasculitis.org.uk/news/nice-rituximab-jan-2014
NICE has issued new Guidelines approving the use in the NHS of rituximab (MabThera) in treating the two most common types of ANCA vasculitis http://www.vasculitis.org.uk/news/nice-rituximab-jan-2014
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
My mum has just been told she has vasculitis and it's definitely affected her brain! She also has temple arthritis and has been on steroids
For over a year and eAch time they try to reduce it the inflammation gets worse in her head? She is now having more tests done and is on another medication along side the steriods, has been told to higher the does of new tablets to 2 a day but bloods have shown inflammation has still risen? She also
For over a year and eAch time they try to reduce it the inflammation gets worse in her head? She is now having more tests done and is on another medication along side the steriods, has been told to higher the does of new tablets to 2 a day but bloods have shown inflammation has still risen? She also
Kelly1987
in
Vasculitis UK
10 years ago
Can anyone help with overseas holiday insurance company for my husband who has suffered cerebral vasculitis please
Simmonds797
in
Vasculitis UK
10 years ago
How long can a vasculitis skin rash take to go away?
My mom is suffering from something, doctors don't know what it is yet. Still doing lots of tests. Doctors think it is vasculitis. She has a skin rash started out red bumps all over skin except on elbows and certain parts. Then bad back pain, and lung dry cough. Doctors put her on prednison for 5 days
My mom is suffering from something, doctors don't know what it is yet. Still doing lots of tests. Doctors think it is vasculitis. She has a skin rash started out red bumps all over skin except on elbows and certain parts. Then bad back pain, and lung dry cough. Doctors put her on prednison for 5 days
pepsi4814
in
Vasculitis UK
10 years ago
What to expect??
Hi, may ramble on a bit but please bear with me. my mum was diagnosed with wegeners vasculitis in November 2013 following a spell of what the doctors thought was flu?! she then had a mild heart attack caused by the vasculitis and was in hospital until a week before xmas. she has had two infusions of
Hi, may ramble on a bit but please bear with me. my mum was diagnosed with wegeners vasculitis in November 2013 following a spell of what the doctors thought was flu?! she then had a mild heart attack caused by the vasculitis and was in hospital until a week before xmas. she has had two infusions of
nadz84
in
Vasculitis UK
10 years ago
Ongoing Treatment
Popped in to see my rheumy today, who is happy that the current cyclophosphamide infusion regime has me under control. Bloods good with symptoms now only grumbling sporadically, and confined to extremities (occasional night sweats, joint aches, swollen legs, peripheral nerve cramps). Have had some
Popped in to see my rheumy today, who is happy that the current cyclophosphamide infusion regime has me under control. Bloods good with symptoms now only grumbling sporadically, and confined to extremities (occasional night sweats, joint aches, swollen legs, peripheral nerve cramps). Have had some
Wellsie
in
Vasculitis UK
10 years ago
What next - Cerebral Vasculitis
Just an update on my dad (previous post of 71 and just diagnosed with possible
cerebral
vasculitis
) finally, after 6 weeks in Pembury, who were pretty useless, my father moved to Kings yesterday. More has happened in 24 hrs than in the previous 6 weeks.
Just an update on my dad (previous post of 71 and just diagnosed with possible
cerebral
vasculitis
) finally, after 6 weeks in Pembury, who were pretty useless, my father moved to Kings yesterday. More has happened in 24 hrs than in the previous 6 weeks.
SteveJarvis
in
Vasculitis UK
10 years ago
My Father of 71 just been advised he may have cerebral vasculitis. Shell shocked and unsure what to expect
Finally saw Dr Lloyd yesterday, who said it was possible
Cerebral
Vasculitis
and he should be in Kings.. At last some action and sense of urgency. But family distraught and yet to understand prognosis, outcomes and potential impact ..good or bad... If this condition isn't curable...
Finally saw Dr Lloyd yesterday, who said it was possible
Cerebral
Vasculitis
and he should be in Kings.. At last some action and sense of urgency. But family distraught and yet to understand prognosis, outcomes and potential impact ..good or bad... If this condition isn't curable...
SteveJarvis
in
Vasculitis UK
11 years ago
Cerebral vasculitis
Virtually every area of my body has some symptom and every year i get more Inclu: Rashes , itchy areas of my skin that sometimes drive me to disspear Various areas of stabbing pain, headaches confusion, back pain etc.... could go on for about two a4 pages Anyway if i have had a primary
cerebral
vasculitis
Virtually every area of my body has some symptom and every year i get more Inclu: Rashes , itchy areas of my skin that sometimes drive me to disspear Various areas of stabbing pain, headaches confusion, back pain etc.... could go on for about two a4 pages Anyway if i have had a primary
cerebral
vasculitis
zeusthegreat
in
Vasculitis UK
11 years ago
negative results for inflammation on blood tests
I have been trying to get a diagnosis for unexplained pain for many years. Have seen a rheumatologist and am awaiting follow up. My blood tests results were negative for esr and c reactive protein but I have noticed that I am getting increasing pain in my blood vessels - arms legs and temples, Does
I have been trying to get a diagnosis for unexplained pain for many years. Have seen a rheumatologist and am awaiting follow up. My blood tests results were negative for esr and c reactive protein but I have noticed that I am getting increasing pain in my blood vessels - arms legs and temples, Does
braincurdle
in
Vasculitis UK
10 years ago
"Together we are stronger" Please consider becoming a member of Vasculitis UK
Vasculitis UK has representation in various medical professional groups dealing with Vasculitis and other NHS bodies and NICE. The more people with Vasculitis who are members of Vasculitis UK the stronger the voice when it comes to dealing with NHS administration, the UK government and the medical profession
Vasculitis UK has representation in various medical professional groups dealing with Vasculitis and other NHS bodies and NICE. The more people with Vasculitis who are members of Vasculitis UK the stronger the voice when it comes to dealing with NHS administration, the UK government and the medical profession
John_Mills
Vasculitis UK
in
Vasculitis UK
11 years ago
Recently diagnosed with Leukocytoclastic vasculitis via skin biopsy had 1st meeting with dermatologist who has now taken bloods to see if i
am ANCA positive or negative, then will use those results to determine any treatment i might have, also commented my R factor was raised from other bloods, am i right in thinking if it's positive it means i have something else going on too & if negative it's just skin affected?
am ANCA positive or negative, then will use those results to determine any treatment i might have, also commented my R factor was raised from other bloods, am i right in thinking if it's positive it means i have something else going on too & if negative it's just skin affected?
nesbitt
in
Vasculitis UK
11 years ago
Coffee and Cake Morning and a Raffle for Vasculitis UK The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle
The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle to be drawn before Christmas. It is also a chance to win a Winston the Vasculitis bear. They are also holding a Coffee and Cake Morning on the 13th December and all proceeds will be added to the raffle total. All proceeds
The Pines Surgery, in Kingsthorpe Northampton, is holding a Christmas Hamper raffle to be drawn before Christmas. It is also a chance to win a Winston the Vasculitis bear. They are also holding a Coffee and Cake Morning on the 13th December and all proceeds will be added to the raffle total. All proceeds
Suzym2u
Vasculitis UK
in
Vasculitis UK
11 years ago
Does anybody follow a healthy eating plan or know of diets which can help this condition. I have been diagnosed and being treated for WG.
I am taking 75mg of prednisone daily and have had my first cyclophosphamide a week ago. I have noticed some foods are not so appetising any more and wondered if there is a tried and tested diet. I have no allergies or diet requirements. Thanks.
I am taking 75mg of prednisone daily and have had my first cyclophosphamide a week ago. I have noticed some foods are not so appetising any more and wondered if there is a tried and tested diet. I have no allergies or diet requirements. Thanks.
Hidden
in
Vasculitis UK
11 years ago
Kidneys leaking protein
My daughter was diagnosed with wegeners granulomatosis in August has just 5 out of to be 9 doses of cyclophosphamide along with steroids. Her kidneys are leaking protein due to the damage done to them from disease - docs have prescribed ramipril to reduce leak of protein to urine. Can somebody help
My daughter was diagnosed with wegeners granulomatosis in August has just 5 out of to be 9 doses of cyclophosphamide along with steroids. Her kidneys are leaking protein due to the damage done to them from disease - docs have prescribed ramipril to reduce leak of protein to urine. Can somebody help
Bailey24
in
Vasculitis UK
11 years ago
Returning symptoms
My initial dx was GCA. The it was unspecified vasculitis, then it was more likely a lupus/ vasculitis overlap. Last was it is autoimmune but don't know what! So they took me off Methotrixate to see who I faired. My eyes sight is worse and had this confirmed with eye test, my temple pain along with jaw
My initial dx was GCA. The it was unspecified vasculitis, then it was more likely a lupus/ vasculitis overlap. Last was it is autoimmune but don't know what! So they took me off Methotrixate to see who I faired. My eyes sight is worse and had this confirmed with eye test, my temple pain along with jaw
CathT
in
Vasculitis UK
11 years ago
Back on MMF 500 mg
After my 8th relapse of Wegeners, my Doctor put me on Ristova again for 6th time, 500 mg, four infusions. And with that he started MMF 500, initially twice daily. When from 1st Nov 2013 he started four daily, I was in terribly state. So he asked me to stop. Later from last five days he asked me to take
After my 8th relapse of Wegeners, my Doctor put me on Ristova again for 6th time, 500 mg, four infusions. And with that he started MMF 500, initially twice daily. When from 1st Nov 2013 he started four daily, I was in terribly state. So he asked me to stop. Later from last five days he asked me to take
amita_valmiki
in
LUPUS UK
11 years ago
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