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Experiences with
Cerebral vasculitis
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Communities
5 public communities
Vasculitis UK
7,783 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
Living Positively with Cerebral Palsy
461 members
I have Cerebral Palsy. I have had it since birth. I'm adult now. What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy. However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it. Connect with others who understand your situation!
Cavernoma Alliance UK
438 members
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
Neuro Support
1,949 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
South West Wales Neurological Alliance
286 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.