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Cerebral vasculitis
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Can leukocytoclastic vasculitis be diagnosed without biopsy?
After weeks of having this non-itchy, non-burning, awfully ugly rash, I finally saw a dermatologist. He said it was leukocytoclastic vasculitis. Is it that easy to diagnose without biopsy? All blood work came back normal (CBC, B12, Folate, TSH). Should I get additional blood work done and/or insist
After weeks of having this non-itchy, non-burning, awfully ugly rash, I finally saw a dermatologist. He said it was leukocytoclastic vasculitis. Is it that easy to diagnose without biopsy? All blood work came back normal (CBC, B12, Folate, TSH). Should I get additional blood work done and/or insist
annc999
in
Vasculitis UK
10 years ago
Going into hospital for surgery consultant said he would keep it as short as possible but still worried with Vasculitis and GCA
Plus auto immune doubt Whether surgeon is used to operating with these conditions.... anyone been through this and come out other end in one piece? Any advice gratefully received ....
Plus auto immune doubt Whether surgeon is used to operating with these conditions.... anyone been through this and come out other end in one piece? Any advice gratefully received ....
shella
in
Vasculitis UK
10 years ago
Rituximab
Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of cyclophosphamide ,had flere with eyesight.On 30mg pred daily and 25mg injection of methotrexate weekly.Ive gca wondrering if any have had same.
Got to have 2 infusions of ritux 2 weeks apart ,ive had 6 inf of cyclophosphamide ,had flere with eyesight.On 30mg pred daily and 25mg injection of methotrexate weekly.Ive gca wondrering if any have had same.
mickt
in
Vasculitis UK
10 years ago
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just a quick update
im 18 years old .have sufferd with mouth /genital ulcers for some years now ...im under the birmingham behcets clinic at city hospital ..the other wk i posted i had my worse ever out break ..so i had 2 infusion of methylpredisolone......then 5 days after that go back to disguss my medication ...they
im 18 years old .have sufferd with mouth /genital ulcers for some years now ...im under the birmingham behcets clinic at city hospital ..the other wk i posted i had my worse ever out break ..so i had 2 infusion of methylpredisolone......then 5 days after that go back to disguss my medication ...they
chrissie_lou
in
Behçet's UK
10 years ago
Revised Guidelines for Treatment of Adults with ANCA Associated Vasculitis. (2014 Revision).
After almost two years of careful consideration by a multidisciplinary panel of leading experts in the diagnosis and treatment of vasculitis, the British Society of Rheumatologists has published new guidelines to replace those drawn up in 2006. They reflect recent advances in treatment of AAV. http
After almost two years of careful consideration by a multidisciplinary panel of leading experts in the diagnosis and treatment of vasculitis, the British Society of Rheumatologists has published new guidelines to replace those drawn up in 2006. They reflect recent advances in treatment of AAV. http
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Jessica Does a "Bag Pack" for Vasculitis UK in Blyth, Newcastle
Jessica is 13 and was diagnosed with Central Nervous System Vasculitis 3 years ago. CNSV is an extremely rare type of Vasculitis and is even rarer in Children. http://www.vasculitis.org.uk/events/jessica-bag-pack
Jessica is 13 and was diagnosed with Central Nervous System Vasculitis 3 years ago. CNSV is an extremely rare type of Vasculitis and is even rarer in Children. http://www.vasculitis.org.uk/events/jessica-bag-pack
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
Can Vasculitis affect your eyes. I have RA, Sjrogrens, and also Vasculitis. When I have a Vasculitis flare-up, my eyes flare-up too.
I feel run down, even more tired than usual and I get something similar to blood blisters on my elbows, finger joints and knuckles. My eyes become extremely bloodshot and inflamed, despite regular use of prescribed drops and gels. Is this a coincidence or does anyone else experience this?
I feel run down, even more tired than usual and I get something similar to blood blisters on my elbows, finger joints and knuckles. My eyes become extremely bloodshot and inflamed, despite regular use of prescribed drops and gels. Is this a coincidence or does anyone else experience this?
L1zzy
in
Vasculitis UK
10 years ago
Can my benefit be stopped?
Hi, iv'e been on ESA work related for around three years now due to a condition known as Avascular necrosis. I have had one hip replaced and am now awaiting the other to be replaced, however i suffered with depression after the first op and feel like postponing my pre op. My worry is if i do this will
Hi, iv'e been on ESA work related for around three years now due to a condition known as Avascular necrosis. I have had one hip replaced and am now awaiting the other to be replaced, however i suffered with depression after the first op and feel like postponing my pre op. My worry is if i do this will
Bribfc65
in
LUPUS UK
10 years ago
Hi, just wondering if anyone has cerebral vasculitis?
I saw my rheumy today who diagnosed me with sjgorhens in addition to my sle, raynauds, crps and possible
cerebral
vasculitis
. My memory has progressively been worsening and he thinks this is the case. He's referred me for an mri of the brain and to attend a memory clinic.
I saw my rheumy today who diagnosed me with sjgorhens in addition to my sle, raynauds, crps and possible
cerebral
vasculitis
. My memory has progressively been worsening and he thinks this is the case. He's referred me for an mri of the brain and to attend a memory clinic.
sezzie
in
LUPUS UK
11 years ago
Leukocytoclastic vasculitis - is that a full diagnosis?
As I have been learning more about the many types of vasculitis I am curious about my sons diagnosis. A few years ago he was told after biopsy etc he had 'leukocytoclastic vasculitis' probably as a reaction to his body trying to fight off strep. He needed no treatment other than elevating his legs for
As I have been learning more about the many types of vasculitis I am curious about my sons diagnosis. A few years ago he was told after biopsy etc he had 'leukocytoclastic vasculitis' probably as a reaction to his body trying to fight off strep. He needed no treatment other than elevating his legs for
pinktiger53
in
Vasculitis UK
10 years ago
P-ANCA MPO positive since 2008.
Now the rheumy says I don't have vasculitis. One other test is positive now, and it is for the disease that the actor died from. I don't understand. I also have Sjogren's also auto immune. I guess I won't be getting any help:(
Now the rheumy says I don't have vasculitis. One other test is positive now, and it is for the disease that the actor died from. I don't understand. I also have Sjogren's also auto immune. I guess I won't be getting any help:(
cruznlcsw
in
Vasculitis UK
11 years ago
Travel Insurance
we are off on holiday in August to Turkey can anyone recommend or advise what I should do regarding insurance? Lupus, Hughes, avascular necrosis. Currently on hydroxy, asprin, simvastatin, alendronic acid.
we are off on holiday in August to Turkey can anyone recommend or advise what I should do regarding insurance? Lupus, Hughes, avascular necrosis. Currently on hydroxy, asprin, simvastatin, alendronic acid.
loublou
in
LUPUS UK
11 years ago
Any of you with cerebral vasculitis have difficulty with your emotions? On a bad day-crying and agitated. On a good day I'm fine.
Also sleep a lot, and I am an early riser, but on a bad day I can't seem to wake up.
Also sleep a lot, and I am an early riser, but on a bad day I can't seem to wake up.
cruznlcsw
in
Vasculitis UK
11 years ago
Martin loves to run and has raised money for other charities over the years. Martin is running this weekend for Vasculitis UK.
Martin was recently diagnosed with Wegener's Granulomoatosis ( GPA ) He is currently on chemotherapy treatment and if that isn't tough enough he still intends to do as much training as he can throughout the year in the hope of being able to undertake a couple of half marathons - all to help raise awareness
Martin was recently diagnosed with Wegener's Granulomoatosis ( GPA ) He is currently on chemotherapy treatment and if that isn't tough enough he still intends to do as much training as he can throughout the year in the hope of being able to undertake a couple of half marathons - all to help raise awareness
Suzym2u
Vasculitis UK
in
Vasculitis UK
11 years ago
York Support Group Meeting
Great support group meeting today in York. Nice to catch up with some familiar faces :) Excellent talk by Dr Yusof from Chapel Allerton in Leeds. They're doing very interesting research into the process for maintaining remission in ANCA vasculitis using Rituximab. But also, as part of this research,
Great support group meeting today in York. Nice to catch up with some familiar faces :) Excellent talk by Dr Yusof from Chapel Allerton in Leeds. They're doing very interesting research into the process for maintaining remission in ANCA vasculitis using Rituximab. But also, as part of this research,
RichardE
Volunteer
in
Vasculitis UK
11 years ago
Anyone on myfortic (mycophenolate sodium)?
I'm in my 3rd month on mycophenolate cellcept. I really really like cellcept!!!!! It's mostly perfect for me & helping a lot, except due to cellcept, my pre barretts oesophagus symptoms are flaring (I don't have reflux, just oesophagus lesion symptoms due to a lifetime of issues, all of which I have
I'm in my 3rd month on mycophenolate cellcept. I really really like cellcept!!!!! It's mostly perfect for me & helping a lot, except due to cellcept, my pre barretts oesophagus symptoms are flaring (I don't have reflux, just oesophagus lesion symptoms due to a lifetime of issues, all of which I have
Barnclown
in
LUPUS UK
11 years ago
Andrew will be taking part in the "Rock Solid" Race - 10K on Saturday 15th March 2014 near Exeter.
Andrew is doing this for his mum who was diagnosed with Wegener's Granulomatois when Andrew was about 11 years old. Andrew's mum has been his "rock" through the worst of times. As a (comparatively small) way of saying thank you for all his mum has done, he will be doing various fundraising activities
Andrew is doing this for his mum who was diagnosed with Wegener's Granulomatois when Andrew was about 11 years old. Andrew's mum has been his "rock" through the worst of times. As a (comparatively small) way of saying thank you for all his mum has done, he will be doing various fundraising activities
Suzym2u
Vasculitis UK
in
Vasculitis UK
11 years ago
What does pain from vasculitis feel like? I have neuropathy, but this pain is worse that I am having now.
cruznlcsw
in
Vasculitis UK
11 years ago
Has anyone been diagnosed with Brain Vasculitis?
I would like to know what people are experiencing, and treatment options if any. I also have Sjogren's, a lesion in my kidney, and they have me on a heart monitor to see why I have a racing heart, difficulty breathing, and sometimes pain. Thanks for your help. I live in the USA, but I can't find a site
I would like to know what people are experiencing, and treatment options if any. I also have Sjogren's, a lesion in my kidney, and they have me on a heart monitor to see why I have a racing heart, difficulty breathing, and sometimes pain. Thanks for your help. I live in the USA, but I can't find a site
cruznlcsw
in
Vasculitis UK
11 years ago
My husband was diagnosed 2 1/2 years ago with vasculitis which damaged the kidney and lungs. We are going to the USA in May for our
daughters graduation and answering the travel insurance questions is confusing. Do we tell them he has vasculitis and chronic kidney faillure or is this all covered under "Vasculitis"? We want to make sure he is fully covered just in case he has a relapse whilst we are away. Thank you.
daughters graduation and answering the travel insurance questions is confusing. Do we tell them he has vasculitis and chronic kidney faillure or is this all covered under "Vasculitis"? We want to make sure he is fully covered just in case he has a relapse whilst we are away. Thank you.
jules59
in
Vasculitis UK
11 years ago
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