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Cerebral vasculitis
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pANCA positive, GPA and Anti-GBM (Goodpasture Syndrome)
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
gouravjazz
in
Vasculitis UK
8 years ago
Vasculitis of the GI Tract
Hello, I am a 25 year old male, and my GP has recently referred me to a vasculitis specialist at UCLA. From what I have read, vasculitis of the GI tract is very rare. However, I believe that there is a possibility that I could have it. I have had terrible GI problems all the way from my colon up to my
Hello, I am a 25 year old male, and my GP has recently referred me to a vasculitis specialist at UCLA. From what I have read, vasculitis of the GI tract is very rare. However, I believe that there is a possibility that I could have it. I have had terrible GI problems all the way from my colon up to my
MattC13
in
Vasculitis UK
8 years ago
Alendronic acid and osteonecrosis of the jaw
I've already mentioned this on FB, but there may be others on here that are not on FB. I'm experiencing bone trying to poke through my gum and although I've not been officially diagnosed, it's looking likely that I have osteonecrosis of the jaw, which can be caused by the taking of Alendronic acid. I
I've already mentioned this on FB, but there may be others on here that are not on FB. I'm experiencing bone trying to poke through my gum and although I've not been officially diagnosed, it's looking likely that I have osteonecrosis of the jaw, which can be caused by the taking of Alendronic acid. I
suffolkgirl
in
Vasculitis UK
8 years ago
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Google Analytics for June 28th - July 28th 2016 - Vasculitis UK website
Google Analytics for June 28th - July 28th 2916 Vasculitis UK Website www.vasculitis.org.uk 23,600 users 67,000 pages viewed 2.30 mins average pages viewed 76% new users 24% returning users Top 10 Countries UK US Australia India Canada Ireland Philippines France South Africa Germany Top 5 Pages
Google Analytics for June 28th - July 28th 2916 Vasculitis UK Website www.vasculitis.org.uk 23,600 users 67,000 pages viewed 2.30 mins average pages viewed 76% new users 24% returning users Top 10 Countries UK US Australia India Canada Ireland Philippines France South Africa Germany Top 5 Pages
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Burst blood vessels in eye
Wondered if any one can tell me if you can have a burst blood vessel at back of eye with having vasculitis, optician writing to GP to explain what they found in recent eye test, I have anca p with positive MPO antibodies, keep getting splinter heamoriges, raised ESR and CRP levels, now burst blood vessel
Wondered if any one can tell me if you can have a burst blood vessel at back of eye with having vasculitis, optician writing to GP to explain what they found in recent eye test, I have anca p with positive MPO antibodies, keep getting splinter heamoriges, raised ESR and CRP levels, now burst blood vessel
valrene
in
Vasculitis UK
8 years ago
HSP / Vasculitis skin rash
I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodamol and told me to follow up with my GP in a couple of weeks. My GP prescribed me antibiotics and signed me off to rest up. I've had the arthritic joint pain which I still have a mild form in my hands and I've had the GI bleed
I was diagnosed 5-6 weeks ago with HSP, the doctor in A&E prescibed some cocodamol and told me to follow up with my GP in a couple of weeks. My GP prescribed me antibiotics and signed me off to rest up. I've had the arthritic joint pain which I still have a mild form in my hands and I've had the GI bleed
Iain71
in
Vasculitis UK
8 years ago
Vasculitis and Total Hip Replacement
Just wondering if anyone knows of any complications (other than the usual) that having Vasculitis could add to surgery. Due to being treated with steroids for Vasculitis, I now have AVN (Avascular Necrosis) and am facing total hip replacement. Secondly, for anyone suffering from AVN, I'm trying to decide
Just wondering if anyone knows of any complications (other than the usual) that having Vasculitis could add to surgery. Due to being treated with steroids for Vasculitis, I now have AVN (Avascular Necrosis) and am facing total hip replacement. Secondly, for anyone suffering from AVN, I'm trying to decide
Nova7961
in
Vasculitis UK
8 years ago
Dapsone antibiotic
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy. Dermatologist want to start me on 25mg of dapsone for 4 weeks and then if no improvement then go onto 50mg. Has anyone else used this drug and does it work? how long does it take for the rash to go and does it ever come
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy. Dermatologist want to start me on 25mg of dapsone for 4 weeks and then if no improvement then go onto 50mg. Has anyone else used this drug and does it work? how long does it take for the rash to go and does it ever come
Seh22
in
Vasculitis UK
8 years ago
Expenses for fuel ?
I now attend hospitals so many times that I am finding that my fuel use is much higher. Now, before anyone starts about me being grateful for being treated, I do feel lucky that I can get treatment but someone has mentioned that I may get help with fuel. Does anyone know if this is true please ? I am
I now attend hospitals so many times that I am finding that my fuel use is much higher. Now, before anyone starts about me being grateful for being treated, I do feel lucky that I can get treatment but someone has mentioned that I may get help with fuel. Does anyone know if this is true please ? I am
Jools52
in
Vasculitis UK
8 years ago
Bringing up blood. Uncertain where from
Hi fellow sufferers and care givers, You are probably like me in that you rarely drink now you have been diagnosed with vasculitis and are on harsh meds. I have generalised small cell & ANCA + vasculitis that is most likely Wegeners / GPA I have inflammatory vowel disease so this is a bit complicated
Hi fellow sufferers and care givers, You are probably like me in that you rarely drink now you have been diagnosed with vasculitis and are on harsh meds. I have generalised small cell & ANCA + vasculitis that is most likely Wegeners / GPA I have inflammatory vowel disease so this is a bit complicated
Jools52
in
Vasculitis UK
8 years ago
Some Google Analytics for the Vasculitis UK website May 30th - June 29th 2016
Vasculitis UK website Google Analytics May 30th - Jun 29th 2016 22, 900 users 66, 500 pages viewed 2mins 35 seconds average time viewing Top 5 Pages viewed Urticarial Vasculitis Granulomatosis with Polyangiitis ( WG ) What is Vasculitis Churg Strauss Syndrome ( EGPA ) Henoch Schonlein Purpura
Vasculitis UK website Google Analytics May 30th - Jun 29th 2016 22, 900 users 66, 500 pages viewed 2mins 35 seconds average time viewing Top 5 Pages viewed Urticarial Vasculitis Granulomatosis with Polyangiitis ( WG ) What is Vasculitis Churg Strauss Syndrome ( EGPA ) Henoch Schonlein Purpura
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Wegeners or periodic fever syndrome ? Help please
Hi good people, I have been going through the various and varied, intrusive tests to try and get a definitive diagnosis and my rheumatologist, Dr Harsha Gunawardena, has said that I have all the markers present for a diagnosis of Wegeners AKA GPA but the latest tests have been for what they call periodic
Hi good people, I have been going through the various and varied, intrusive tests to try and get a definitive diagnosis and my rheumatologist, Dr Harsha Gunawardena, has said that I have all the markers present for a diagnosis of Wegeners AKA GPA but the latest tests have been for what they call periodic
Jools52
in
Vasculitis UK
8 years ago
Churg Strauss new diagnosis.
Hi I'm new to this site thanks for the add. I have recently been diagnosed with churg-strauss and have one more cycle of cyclophosphamide to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment
Hi I'm new to this site thanks for the add. I have recently been diagnosed with churg-strauss and have one more cycle of cyclophosphamide to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment
Tiss
in
Vasculitis UK
8 years ago
Worried about my Dad
Hi everyone, my Dad was admitted to hospital last week because of high potassium levels in his regular blood tests for diabetes, his kidneys aren't filtering. He received the diagnosis yesterday after kidney biopsy of ANCA MPO Vasculitis and was started on steroids last night and starting intravenous
Hi everyone, my Dad was admitted to hospital last week because of high potassium levels in his regular blood tests for diabetes, his kidneys aren't filtering. He received the diagnosis yesterday after kidney biopsy of ANCA MPO Vasculitis and was started on steroids last night and starting intravenous
Hidden
in
Vasculitis UK
8 years ago
cyclophosphamide
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on cyclophosphamide infusion every 3 weeks she's had 4 of these so far but nothings changed so far. Today her Consultant mentioned once again about her having a steroid injection straight into
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on cyclophosphamide infusion every 3 weeks she's had 4 of these so far but nothings changed so far. Today her Consultant mentioned once again about her having a steroid injection straight into
shine78
in
Behçet's UK
8 years ago
start cellcept
hi my friends l have SLE For 13 years also I'm 30 now.I was taking 7.5 prednisone, hydroxyclorchin 200 untill 18 mounth ago after that my GP prescripted Azaitropin50 for me.i had Locopenia after 6 mounth of taking Azaitropin also I decriese that and I tooke day by day until now. Today my Gp stop Azaitropin
hi my friends l have SLE For 13 years also I'm 30 now.I was taking 7.5 prednisone, hydroxyclorchin 200 untill 18 mounth ago after that my GP prescripted Azaitropin50 for me.i had Locopenia after 6 mounth of taking Azaitropin also I decriese that and I tooke day by day until now. Today my Gp stop Azaitropin
asma1364
in
LUPUS UK
8 years ago
RV and Stroke
I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and suffered a mild stroke. There was no bleed on the brain, nor any furry arteries. They've said it was most likely stress, but I wonder whether having vasculitis and it affecting small blood vessels could have been a factor
I have Rheumatoid Vasculitis, a byproduct of having Rheumatoid Arthritis, and suffered a mild stroke. There was no bleed on the brain, nor any furry arteries. They've said it was most likely stress, but I wonder whether having vasculitis and it affecting small blood vessels could have been a factor
Wolf52
in
Vasculitis UK
8 years ago
Pan and vasculitis
so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are diagnosed with pan in north America. And I think it was like 120 with another form of vasculitis. Dont know what to say but i appreciate this forum
so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual vasculitis center. Shocked to find out only 22 other people are diagnosed with pan in north America. And I think it was like 120 with another form of vasculitis. Dont know what to say but i appreciate this forum
greg31
in
Vasculitis UK
8 years ago
Some Vasculitis UK Website Google Annalytics, April 1st - May 1st 2016, to share for the first week of Vasculitis Awareness Month.
Urticarial
Vasculitis
Personal Stories/images Central Nervous System
Vasculitis
/
Cerebral
Vasculitis
Frequently Asked Questions
Urticarial
Vasculitis
Personal Stories/images Central Nervous System
Vasculitis
/
Cerebral
Vasculitis
Frequently Asked Questions
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
lynnj
Hi I'm new here - I was diagnosed with
cerebral
vasculitis
in Nov 2015. I have read a few posts but can only read for a short while everyone seems to know a lot more about their condition than I know about mine.
Hi I'm new here - I was diagnosed with
cerebral
vasculitis
in Nov 2015. I have read a few posts but can only read for a short while everyone seems to know a lot more about their condition than I know about mine.
Ljohn456
in
Vasculitis UK
8 years ago
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