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Mycophenolate
I've been put on mycophenolate (
Cellcept
) to suppress my immune system. Is anyone else on this and does anyone know if I will have to take this for the rest of my life? I've also been put on Prednisolone with many other meds as well!! It was all a big shock for me!
I've been put on mycophenolate (
Cellcept
) to suppress my immune system. Is anyone else on this and does anyone know if I will have to take this for the rest of my life? I've also been put on Prednisolone with many other meds as well!! It was all a big shock for me!
Sofi2610
in
LUPUS UK
7 years ago
GCA and Tocilizumab
Mycophenalate (
cellcept
) as well as Pred. I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months. I really am hoping to have some success.
Mycophenalate (
cellcept
) as well as Pred. I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months. I really am hoping to have some success.
christine2715
in
PMRGCAuk
7 years ago
new diagnosis
my friends for the most part don't get it either and act like diet and exercise are all i need. i've been on meloxicam and
cellcept
and i feel worse than ever. i also have ibs, bpd and ptsd/anxiety. i just ate my first real meal of the day and i'm laying here unable to move because of the cramps. even
my friends for the most part don't get it either and act like diet and exercise are all i need. i've been on meloxicam and
cellcept
and i feel worse than ever. i also have ibs, bpd and ptsd/anxiety. i just ate my first real meal of the day and i'm laying here unable to move because of the cramps. even
kay814
in
LUPUS UK
7 years ago
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17 Years post transplant
specially myfortic (
cellcept
)? stomach upset, diarrhea?
specially myfortic (
cellcept
)? stomach upset, diarrhea?
WYOAnne
NKF Ambassador
in
Kidney Transplant
7 years ago
Men help me out here.
I'm on
Cellcept
which slow healing, I'm have ZERO Behect's issues. I'm very nervous to get this done, but I'm 30 and have 4 kids so that part is fine. I just don't want additional pain down there outside of healing time.
I'm on
Cellcept
which slow healing, I'm have ZERO Behect's issues. I'm very nervous to get this done, but I'm 30 and have 4 kids so that part is fine. I just don't want additional pain down there outside of healing time.
Miataman
in
Behçet's UK
7 years ago
No Rituxan for me
So two weeks ago my doctor decided to take me off of
Cellcept
and put me on methotrexate and start Rituxan infusions. I read all the info on the infusion and was happy that this med might help with my MCTD, RA and Lung Disease. Unfortunately, i tested positive for Jc virus.
So two weeks ago my doctor decided to take me off of
Cellcept
and put me on methotrexate and start Rituxan infusions. I read all the info on the infusion and was happy that this med might help with my MCTD, RA and Lung Disease. Unfortunately, i tested positive for Jc virus.
Jaylowdancer
in
LUPUS UK
7 years ago
Point of view from the USA, from both a Lupus patient and GP (I'm them)
I'm on a lovely cocktail right now of Plaquenil, Prednisone and
CellCept
so my immunity is shot, and so is my energy.
I'm on a lovely cocktail right now of Plaquenil, Prednisone and
CellCept
so my immunity is shot, and so is my energy.
Lupusandmore3
in
LUPUS UK
7 years ago
Have many symptoms of vasculitis but a tone of blood tests are normal!!
Im am jack .. i have a transplant kidney surgery in 2009 and i take
cellcept
and prednisolon 40 mg every day for it ... since 3 month ago i have neuropathy consists of my legs and hands so i visit many doctors ... neurologist ,cardiologist!
Im am jack .. i have a transplant kidney surgery in 2009 and i take
cellcept
and prednisolon 40 mg every day for it ... since 3 month ago i have neuropathy consists of my legs and hands so i visit many doctors ... neurologist ,cardiologist!
Alexwwww
in
Vasculitis UK
7 years ago
SORE FINGERS AND ULCERS ON JOINTS
I was diagnosed with CREST type of RA about 7 years ago and treated with methtrexate for 9 or 10 months then had trouble catching my breath and told to get off of it and put on
cellcept
4 pills a day 2. 500 mg in the am and 2 more in the evening on empty stomach.
I was diagnosed with CREST type of RA about 7 years ago and treated with methtrexate for 9 or 10 months then had trouble catching my breath and told to get off of it and put on
cellcept
4 pills a day 2. 500 mg in the am and 2 more in the evening on empty stomach.
cherilee60
in
Cure Arthritis Community
7 years ago
Huvs
My rheumatologist stopped the
cellcept
in case that's causing the shortness of breath. This is an awful disease to suffer with because it is so rare and treatment trial and error
My rheumatologist stopped the
cellcept
in case that's causing the shortness of breath. This is an awful disease to suffer with because it is so rare and treatment trial and error
lopiper
in
Vasculitis UK
8 years ago
Vasculitis
My neurologist had me on other medications including
CellCept
& Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions IVIG which replaced the above. Prednisone remains.
My neurologist had me on other medications including
CellCept
& Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions IVIG which replaced the above. Prednisone remains.
Vrainbird
in
Vasculitis UK
8 years ago
cellcept
Day 6 of
cellcept
, after being taken off methotrexate and the aching calves are back. Still on 8mg pred, feeling nauseous, fatigued and rash is randomly occurring again. How long does
cellcept
take to ease the pain?
Day 6 of
cellcept
, after being taken off methotrexate and the aching calves are back. Still on 8mg pred, feeling nauseous, fatigued and rash is randomly occurring again. How long does
cellcept
take to ease the pain?
Debba
in
Vasculitis UK
8 years ago
Update cellcept v myfenax
Switched back to
cellcept
brand of mycophenolate rather than the generic myfenax that I had been taking since May.
Switched back to
cellcept
brand of mycophenolate rather than the generic myfenax that I had been taking since May.
creaky
in
LUPUS UK
8 years ago
Churg Strauss/EGPA and cellcept?
I have been on
cellcept
for 11 years with no remission, although it took 2 years to get off prednisone. My doctor has started talking about weaning me off
cellcept
. Has anyone been on it for egpa?
I have been on
cellcept
for 11 years with no remission, although it took 2 years to get off prednisone. My doctor has started talking about weaning me off
cellcept
. Has anyone been on it for egpa?
karens62
in
Vasculitis UK
8 years ago
Cellcept v myfenax update
Anyway the increased prednisone made me feel better in the short term, and I suspect I will be offered an increased dose of
cellcept
(if they ever get it) next week. I know there were people who were interested to know if they would prescribe
cellcept
rather than myfenax, I will keep you infomed
Anyway the increased prednisone made me feel better in the short term, and I suspect I will be offered an increased dose of
cellcept
(if they ever get it) next week. I know there were people who were interested to know if they would prescribe
cellcept
rather than myfenax, I will keep you infomed
creaky
in
LUPUS UK
8 years ago
Infliximab and Methotrexate
I was put on these meds after my last major flare up in March and taken off
cellcept
which didn't work for me. I've also been on and off steroids for the past 2 years since diagnosis.
I was put on these meds after my last major flare up in March and taken off
cellcept
which didn't work for me. I've also been on and off steroids for the past 2 years since diagnosis.
mtmunster
in
Behçet's UK
8 years ago
The cell v myfenax saga
Have now received my
cellcept
, so changing over today. I will have had one weeks worth when I see my rheumatologist. I will let those who have an interest know if I find that there is any difference. Hope you are all feeling as well as possible today 😀
Have now received my
cellcept
, so changing over today. I will have had one weeks worth when I see my rheumatologist. I will let those who have an interest know if I find that there is any difference. Hope you are all feeling as well as possible today 😀
creaky
in
LUPUS UK
8 years ago
Lupus,rash, prednisone
I'm on many medications including plaquenil,
cellcept
, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
I'm on many medications including plaquenil,
cellcept
, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
Saladbar
in
LUPUS UK
8 years ago
Lupus, rash, prednisone
I'm on many medications including plaquenil,
cellcept
, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
I'm on many medications including plaquenil,
cellcept
, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
Saladbar
in
PMRGCAuk
8 years ago
Lupus and Cellcept.
Hello I have had sjogrens for the past 6 years and now have Lupus I have just started
Cellcept
after spending 2 weeks in hospital with a very bad flare up anyway I was wondering if anyone out there is also on
Cellcept
am also taking hydroxychloroquine.
Hello I have had sjogrens for the past 6 years and now have Lupus I have just started
Cellcept
after spending 2 weeks in hospital with a very bad flare up anyway I was wondering if anyone out there is also on
Cellcept
am also taking hydroxychloroquine.
1573
in
LUpus Patients Understanding and Support
8 years ago
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