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Private blood test
I had a 12 week course of intravenous steroids for TED which finished at the end of February and have now started the immuno-surpressant
CellCept
on the advice of the eye consultant. My Endo is pushing for thyroid removal which I don’t want yet.
I had a 12 week course of intravenous steroids for TED which finished at the end of February and have now started the immuno-surpressant
CellCept
on the advice of the eye consultant. My Endo is pushing for thyroid removal which I don’t want yet.
Quave
in
Thyroid UK
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
– 63% were on mycophenolate mofetil (
CellCept
) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and cyclosporin) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
– 63% were on mycophenolate mofetil (
CellCept
) – 87% were on steroids (like prednisone) – 79% were on calcineurin inhibitors (such as tacrolimus and cyclosporin) – Others were on others such as mammalian target of rapamycin inhibitors, and belatacept How were they vaccinated against COVID-19?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Joint pain and muscle soreness on anti-rejection meds
I am on prograf,
cellcept
and prednisone . I have developed severe back,hip,knee pain and quad muscle soreness. I have told my team but they have not addressed this. Has anybody else developed these problems and did your team give any advice ,suggestions or changed meds. Thanks
I am on prograf,
cellcept
and prednisone . I have developed severe back,hip,knee pain and quad muscle soreness. I have told my team but they have not addressed this. Has anybody else developed these problems and did your team give any advice ,suggestions or changed meds. Thanks
ff848484
in
Kidney Transplant
3 years ago
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Bk or Pk virus.
When all my blood results came back, it showed I had the bk or pk virus (I can’t remember which one they said it was), and it was a virus that people get but can easily fight off with working immune systems, and they said I was on
cellcept
at too high a dose, so they’ve taken me off that and lowered
When all my blood results came back, it showed I had the bk or pk virus (I can’t remember which one they said it was), and it was a virus that people get but can easily fight off with working immune systems, and they said I was on
cellcept
at too high a dose, so they’ve taken me off that and lowered
Rmatthew
in
Kidney Transplant
3 years ago
John Hopkins Medicine organ transplant/covid vaccine study results in mid March2021:few if any antibodies made
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (mycophenolate called "
Cellcept
"). My heart sank after reading this.
The study noted two antirejection medications that cause 5 times less likely for the body to make antibodies enough for protection and my spouse takes one of these antirejection meds (mycophenolate called "
Cellcept
"). My heart sank after reading this.
Gardner-NY
in
Kidney Transplant
3 years ago
Tocilizumab/atlizumab/Actemra and exercise intolerance
I've posted before explaining all my AI conditions and the current treatment with
CellCept
, hydroxychloroquine, and Rituxan. As a side, I apparently developed a new AI condition too... now, I can't help but laugh after each visit :-) .
I've posted before explaining all my AI conditions and the current treatment with
CellCept
, hydroxychloroquine, and Rituxan. As a side, I apparently developed a new AI condition too... now, I can't help but laugh after each visit :-) .
TiredNerd
in
NRAS
3 years ago
what to do when treatments don't work and I keep developing new autoimmune conditions
They changed up my treatments to high dose
CellCept
and Rituxan. So far nothing has changed.
They changed up my treatments to high dose
CellCept
and Rituxan. So far nothing has changed.
TiredNerd
in
NRAS
3 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
You should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide
The ACR guidance states that you should keep taking the following medications as prescribed: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Ulcers question please?
ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they always seem to come up same time weirdly) I am on
cellcept
ulcers (genital and mouth) :( mine keep getting me down at the moment, there seems to be no rhyme or reason to how often I am getting them but lucky if I have a week or so in-between getting a minimum of two, up to five both down there and mouth (they always seem to come up same time weirdly) I am on
cellcept
missrosiex
in
Behçet's UK
4 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
This applies to: Hydroxychloroquine (Plaquenil) IVIG Low-dose glucocorticoids (ex: prednisone, daily dose < 20 mg) Sulfasalazine (Azulfidine) Leflunomide (Arava) Mycophenolate (
CellCept
) Azathioprine (Imuran) Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
"Ask an Expert"
Now my medical treatment include
cellcept
500mg/bid i am taking this for a week now and prednisone 25 mg a day(i start taking prednisone since 19/Apr/2020)and for the first time my serum lipase level were raised up to 75 U/L, i would like to know whether those abnormal results linked to C3GN?
Now my medical treatment include
cellcept
500mg/bid i am taking this for a week now and prednisone 25 mg a day(i start taking prednisone since 19/Apr/2020)and for the first time my serum lipase level were raised up to 75 U/L, i would like to know whether those abnormal results linked to C3GN?
ker434
in
C3 Glomerulopathy
4 years ago
WORRIES-anti rejection meds
Meds: 5mg prednisone, 2mg twice a day of prograf and 1,000mg twice a day of
cellcept
. Thank you!
Meds: 5mg prednisone, 2mg twice a day of prograf and 1,000mg twice a day of
cellcept
. Thank you!
Trouper
in
Kidney Transplant
4 years ago
Hi
My doc wants me to try
Cellcept
, but the warnings on that med are pretty extreme. Has anyone had success waiting out bad side effects on plaquenil?
My doc wants me to try
Cellcept
, but the warnings on that med are pretty extreme. Has anyone had success waiting out bad side effects on plaquenil?
Hidden
in
LUPUS UK
4 years ago
Anti rejection meds schedule
Hi, When do you guys take your prograf/tacrolimus/envarsus, steroids (prednisone), and
cellcept
/azathioprine? My team never advised me how to take any of them, just that I should take prograf on an empty stomach. Are you able to take prograf and prednisone together? Thanks.
Hi, When do you guys take your prograf/tacrolimus/envarsus, steroids (prednisone), and
cellcept
/azathioprine? My team never advised me how to take any of them, just that I should take prograf on an empty stomach. Are you able to take prograf and prednisone together? Thanks.
Hashtagger56
in
Kidney Transplant
4 years ago
Neutropenia
I recently had to stop
Cellcept
as I became severely neutropenic and was admitted to hospital. My neutrophils are up and down, despite Neupogen injections, anybody else had a similar issue? I have a date for Rituximab infusion in 3 weeks but I may not be able to have it.
I recently had to stop
Cellcept
as I became severely neutropenic and was admitted to hospital. My neutrophils are up and down, despite Neupogen injections, anybody else had a similar issue? I have a date for Rituximab infusion in 3 weeks but I may not be able to have it.
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Aches and pains?
I am a year and half post transplant and on
Cellcept
and Belatacept. Does anyone else have any joint pains that seem new or worse since transplant?
I am a year and half post transplant and on
Cellcept
and Belatacept. Does anyone else have any joint pains that seem new or worse since transplant?
JennieZ
in
Kidney Transplant
4 years ago
BK virus after kidney transplant
My current medication is 1000mg
Cellcept
twice a day, 10mg Prednisone/day and 7mg Tacro/day (4 morning and 3 night). Does anyone know if it's common to have that much of BK virus in urine or anyone experienced the same thing?
My current medication is 1000mg
Cellcept
twice a day, 10mg Prednisone/day and 7mg Tacro/day (4 morning and 3 night). Does anyone know if it's common to have that much of BK virus in urine or anyone experienced the same thing?
Colin_CX
in
Kidney Transplant
4 years ago
Anyone on Otezla?
He said that Otezla is much safer than the
Cellcept
I am on it also requires no regular bloodwork and will also have no effect on my immune system. It sounds very good, has anyone been on it? Has it helped you?
He said that Otezla is much safer than the
Cellcept
I am on it also requires no regular bloodwork and will also have no effect on my immune system. It sounds very good, has anyone been on it? Has it helped you?
Miataman
in
Behçet's UK
4 years ago
10 months post and...anemia??
Between getting C diff in the first weeks post transplant, 2 utis, having to switch from
cellcept
to azathioprine due to stomach issues, medication induced fatigue where I was sleeping 16 hrs per day and side effects to boot (which are included but not limited to: tremors- which I still have despite
Between getting C diff in the first weeks post transplant, 2 utis, having to switch from
cellcept
to azathioprine due to stomach issues, medication induced fatigue where I was sleeping 16 hrs per day and side effects to boot (which are included but not limited to: tremors- which I still have despite
Ladybug_05
in
Kidney Disease
4 years ago
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