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Open Heart Surgery Ahead
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Jafib
in
Atrial Fibrillation Support
4 days ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
6 months ago
Afib caused by low heart rate? Ectopics when exercising.
Good morning all,I've had some rather interesting observations over the last few weeks that I would like to share. As background, I had an ablation in July which helped me reduce my Flecainide dose from 2x100 to 2x50mg per day and reduced my Afib episodes to about once per week. My resting heart rate
Good morning all,I've had some rather interesting observations over the last few weeks that I would like to share. As background, I had an ablation in July which helped me reduce my Flecainide dose from 2x100 to 2x50mg per day and reduced my Afib episodes to about once per week. My resting heart rate
MisterMagoo
in
AF Association
5 months ago
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Coma or Vegetative state
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
mamo23
in
ICUsteps
8 months ago
Cough lozenges
I’ve got a tickly cough and want to suck a lozenge in the hope it will sooth it. I’ve got some Wilko lozenges that are Amylmetacresol. Does anyone know if they are ok to use with Warfarin and Bisoprolol - and of course Afib ! I can’t find this ingredient listed in drug interaction websites so I’m guessing
I’ve got a tickly cough and want to suck a lozenge in the hope it will sooth it. I’ve got some Wilko lozenges that are Amylmetacresol. Does anyone know if they are ok to use with Warfarin and Bisoprolol - and of course Afib ! I can’t find this ingredient listed in drug interaction websites so I’m guessing
Tellingfibs
in
Atrial Fibrillation Support
5 months ago
Cardiovascular issues
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
winfong
in
PMRGCAuk
5 months ago
First ever phlebitis diagnosis...a few questions
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
BFlying
in
Anticoagulation Support
5 months ago
Private Health care for second opinion
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Pinkglitter93
in
British Liver Trust
8 months ago
ESMO 2023: PSMAfore Phase 3 Trial of [177Lu]Lu-PSMA-617 in Taxane-Naive Patients with Metastatic Castration Resistant Prostate Cancer
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
swwags
in
Advanced Prostate Cancer
8 months ago
PSA Follow up
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Jmr11820
in
Advanced Prostate Cancer
8 months ago
PSA raise
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
gio2x
in
Advanced Prostate Cancer
8 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
5 months ago
Folic acid and b12
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Angie10116
in
Pernicious Anaemia Society
6 months ago
New 'cirrhosee' with reading of 75 on Richter scale! H E L P
See my bio - recently diagnosed cirrhosis with fibroscan reading of 75. Gutted!Interested to hear from those who have, over time, reduced this reading/'score'. Also keen to hear from those with associated eating disorders - e.g. gastroparesis (sluggish stomach) and best ways of managing. Experience
See my bio - recently diagnosed cirrhosis with fibroscan reading of 75. Gutted!Interested to hear from those who have, over time, reduced this reading/'score'. Also keen to hear from those with associated eating disorders - e.g. gastroparesis (sluggish stomach) and best ways of managing. Experience
Iau1
in
British Liver Trust
8 months ago
Decision making
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
joyelane
in
AF Association
5 months ago
Marshmallow
hi 3 weeks ago I was admitted to A&E in ambulance with severe central chest pain I was informed I was having a heart attack and admitted to CCU 3 days later transferred to Coventry UHT hospital underwent angioplasty procedure as one coronary artery was 99% blocked Cardiologist explained 2 others
hi 3 weeks ago I was admitted to A&E in ambulance with severe central chest pain I was informed I was having a heart attack and admitted to CCU 3 days later transferred to Coventry UHT hospital underwent angioplasty procedure as one coronary artery was 99% blocked Cardiologist explained 2 others
Marshmallow888
in
British Heart Foundation
11 months ago
European Society for Medical Oncology Congress - ESMO 2023 - Two Significant Lutetium Trials -mCRPC
Those following information coming from the ESMO Congress over the last few weeks will be aware of the many presentations focussed on the use of Lutetium. [i]
PSMAfore Study Unveils Game-Changing Results for Prostate Cancer Treatment
[/i] One such highlight was the results from the PSMAfore
Those following information coming from the ESMO Congress over the last few weeks will be aware of the many presentations focussed on the use of Lutetium. [i]
PSMAfore Study Unveils Game-Changing Results for Prostate Cancer Treatment
[/i] One such highlight was the results from the PSMAfore
marnieg46
in
Fight Prostate Cancer
8 months ago
Murpheys LAw
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
Krissy55
in
Atrial Fibrillation Support
5 months ago
T'ai Chi & PD study
Tai chi may help slow down the symptoms of Parkinson's disease for several years, a Chinese study suggests. Those who practised the martial art twice a week had fewer complications and better quality of life than those who didn't, the researchers say. Parkinson's is a progressive brain disease which
Tai chi may help slow down the symptoms of Parkinson's disease for several years, a Chinese study suggests. Those who practised the martial art twice a week had fewer complications and better quality of life than those who didn't, the researchers say. Parkinson's is a progressive brain disease which
Reetpetitio
in
Cure Parkinson's
8 months ago
Peginterferon and nightmares
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Lyndjs
in
MPN Voice
6 months ago
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