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How Doctors Choose Parkinson's Medications
In this webinar, our panelists will discuss how doctors and patients work together to choose what medications to start, adjust or discontinue. We'll also answer common medication questions, including "When should one start levodopa?" and "What does prescribing off label mean?" Q & A with participants
In this webinar, our panelists will discuss how doctors and patients work together to choose what medications to start, adjust or discontinue. We'll also answer common medication questions, including "When should one start levodopa?" and "What does prescribing off label mean?" Q & A with participants
Hidden
in
Cure Parkinson's
8 years ago
Parkinsons detox
I just joined this forum after seeing my mom struggle so much with her PD. Over the years have introduced mucana , a few supplements , exercise etc , but a recent fall has really pushed her back where she is tired, sleepy and can barely walk (she was only walking with the helper before also) . Wish
I just joined this forum after seeing my mom struggle so much with her PD. Over the years have introduced mucana , a few supplements , exercise etc , but a recent fall has really pushed her back where she is tired, sleepy and can barely walk (she was only walking with the helper before also) . Wish
mymomhaspd
in
Cure Parkinson's
8 years ago
What helps reduce Dyskinesia .
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
mymomhaspd
in
Cure Parkinson's
8 years ago
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How i beat Parkinson's
Then i found a new DR. who put me on
carbidopa
levodopa
and things started to go right. That was 21 months ago. i started Crossfit 18 months ago. The combo of exercise and meds has help me control my PD almost completely.
Then i found a new DR. who put me on
carbidopa
levodopa
and things started to go right. That was 21 months ago. i started Crossfit 18 months ago. The combo of exercise and meds has help me control my PD almost completely.
Bailey_Texas
in
Cure Parkinson's
8 years ago
RLS what works and doesn"t work for me
It's been a while since I've posted here. I am so deeply moved and sympathetic toward all of you who suffer the same disease that I do. After many years of this hellish affliction I can't tell you that I have any kind of cure although some relief by taking vitamin supplements. I was on all kinds of medications
It's been a while since I've posted here. I am so deeply moved and sympathetic toward all of you who suffer the same disease that I do. After many years of this hellish affliction I can't tell you that I have any kind of cure although some relief by taking vitamin supplements. I was on all kinds of medications
Suzytom
in
Restless Legs Syndrome
8 years ago
Manufacturing Dopamine in the Brain with Gene Therapy
https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-with-gene-therapy/ “This trial is to restore the enzyme and allow them to be awakened, or ‘on,’ for a longer period of time.” There are other gene therapies for Parkinson’s disease planned or in testing. A trial developed at
https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-with-gene-therapy/ “This trial is to restore the enzyme and allow them to be awakened, or ‘on,’ for a longer period of time.” There are other gene therapies for Parkinson’s disease planned or in testing. A trial developed at
Hidden
in
Cure Parkinson's
8 years ago
Is rytary the same as madopar CR?
I have just had a terrible weekend due to a hopelessly ill-informed non-specialist GP (substituting for the consultant neurologist at an outpatient appt) telling me to change my 3 hourly 125 madopar to 125 madopar CR (slow release) plus 62.5 capsule. Within 24 hours I had completely lost the plot.
I have just had a terrible weekend due to a hopelessly ill-informed non-specialist GP (substituting for the consultant neurologist at an outpatient appt) telling me to change my 3 hourly 125 madopar to 125 madopar CR (slow release) plus 62.5 capsule. Within 24 hours I had completely lost the plot.
pen1
in
Cure Parkinson's
8 years ago
WTF do Doctors think about PWP . Please read what some one posted. It should make you mad as hell just like me. Sorry if I offend any one.
Tremor is treatable with
carbidopa
levodopa
. Why must he suffer with his symptoms. They all can be helped if not completly controlled with meds. WTF I am shaking and i have not been this mad in a long time. Call or contact that sob and demand to see it again and don't leave with out some meds.
Tremor is treatable with
carbidopa
levodopa
. Why must he suffer with his symptoms. They all can be helped if not completly controlled with meds. WTF I am shaking and i have not been this mad in a long time. Call or contact that sob and demand to see it again and don't leave with out some meds.
Bailey_Texas
in
Cure Parkinson's
8 years ago
Desperately seeking answers
My husband who is age 38 and up until March this year was a healthy, fit, active, strong man has been suffering from dystonia in his left hand, balance and coordination problems, stammering and struggling to find words. He has had an MRI which was normal so they have ruled out tumour, stroke and MS but
My husband who is age 38 and up until March this year was a healthy, fit, active, strong man has been suffering from dystonia in his left hand, balance and coordination problems, stammering and struggling to find words. He has had an MRI which was normal so they have ruled out tumour, stroke and MS but
Maxinoz
in
PSP Association
8 years ago
Is it enough to say, "Avoid Proteins"?
Greetings. I'd been wondering how to get the most out of my CD/LD and was curious about which protein-rich foods - chicken or chickpeas? - interfered most with levodopa absorption. It's 3 particular animo acids in protein that are the culprits - branched-chain amino acids (or BCAAs) named leucine
Greetings. I'd been wondering how to get the most out of my CD/LD and was curious about which protein-rich foods - chicken or chickpeas? - interfered most with levodopa absorption. It's 3 particular animo acids in protein that are the culprits - branched-chain amino acids (or BCAAs) named leucine
Motal
in
Cure Parkinson's
8 years ago
Was this patient's long history of meditation a factor in the remission of his PD?
The accuracy of the initial PD diagnosis is supported by appropriate clinical presentation, history of positive response to Sinemet (i.e.
carbidopa
levodopa
) , and an abnormal SPECT DaT scan. This case therefore suggests the possibility of remission of symptoms in some patients.
The accuracy of the initial PD diagnosis is supported by appropriate clinical presentation, history of positive response to Sinemet (i.e.
carbidopa
levodopa
) , and an abnormal SPECT DaT scan. This case therefore suggests the possibility of remission of symptoms in some patients.
gleeson
in
Cure Parkinson's
8 years ago
Researchers Discover Why L-Dopa Stops Working
Ever wonder why your L-Dopa meds eventually become ineffective at controlling the progression of symptoms? Recent research may shed some light and offer solutions (eventually...). "In a discovery that might turn out to be a game changer in Parkinson’s research, University of Alabama at Birmingham researchers
Ever wonder why your L-Dopa meds eventually become ineffective at controlling the progression of symptoms? Recent research may shed some light and offer solutions (eventually...). "In a discovery that might turn out to be a game changer in Parkinson’s research, University of Alabama at Birmingham researchers
whack-a-mole
in
Cure Parkinson's
8 years ago
Autonomic Dysfunction/neuropathy
I have posted on here before about the episodes of overheating I get as my medication wears off ; my hair, face and back are drenched in sweat and my clothes become wringing wet. My consultant and PD nurse dismissed the idea that these episodes were caused by PD or the medication –despite the very obvious
I have posted on here before about the episodes of overheating I get as my medication wears off ; my hair, face and back are drenched in sweat and my clothes become wringing wet. My consultant and PD nurse dismissed the idea that these episodes were caused by PD or the medication –despite the very obvious
pen1
in
Cure Parkinson's
8 years ago
Is it OK to take Mucuna ALONG WITH Sinemet?
Must my dad back off/down
Carbidopa
-
Levodopa
in order to use the Mucuna Pruriens I ordered for him and am reordering since it does help sometimes? Will switching from 15% to 20% help? Will switching to powder help? Is there a better brand? He is NOT on Azilect.
Must my dad back off/down
Carbidopa
-
Levodopa
in order to use the Mucuna Pruriens I ordered for him and am reordering since it does help sometimes? Will switching from 15% to 20% help? Will switching to powder help? Is there a better brand? He is NOT on Azilect.
rsacdoolittle
in
Cure Parkinson's
8 years ago
Mucuna
I thought I would try Mucuna capsuls by NOW. I was not feeling good so I thought I would give it a try. I took one about 9 at night for 3 days and I feel better. Slept for a change could it work that fast. I had read a book by Rafael Maldonado called treatment with Natural Levodopa and wonder why
I thought I would try Mucuna capsuls by NOW. I was not feeling good so I thought I would give it a try. I took one about 9 at night for 3 days and I feel better. Slept for a change could it work that fast. I had read a book by Rafael Maldonado called treatment with Natural Levodopa and wonder why
cshamb
in
Cure Parkinson's
8 years ago
The possible dangers of EGCG.
This posting is a followup raising issues about the combination of EGCG + Salmon oil + Vitamin C or quercetin/bromelain with
levodopa
as a substitute for
Carbidopa
/
levodopa
(EGCG....levodopa) or Entacapone + levodopa (quercetin + levodopa). The forth posting in the thread.
This posting is a followup raising issues about the combination of EGCG + Salmon oil + Vitamin C or quercetin/bromelain with
levodopa
as a substitute for
Carbidopa
/
levodopa
(EGCG....levodopa) or Entacapone + levodopa (quercetin + levodopa). The forth posting in the thread.
silvestrov
in
Cure Parkinson's
8 years ago
Meds 01 L-Dopa
Australian and New Zealand Journal of Medicine
Ivan MacG. Donaldson
Volume 3, Issue 4, pages 413–416, August 1973
Summary: Two cases of progressive supranuclear palsy were treated for sever-al months with substantial doses of L-dopa. Both showed no significant response and continued
Australian and New Zealand Journal of Medicine
Ivan MacG. Donaldson
Volume 3, Issue 4, pages 413–416, August 1973
Summary: Two cases of progressive supranuclear palsy were treated for sever-al months with substantial doses of L-dopa. Both showed no significant response and continued
Kevin_1
in
PSP Association
8 years ago
reduce off-time
•Bial's drug for the treatment of Parkinson's disease in patients with motor fluctuations was approved by the European Commission, the Portuguese drugmaker said on Tuesday. •Ongentys (opicapone) is intended to be used as adjunctive therapy with levodopa and other standard Parkinson's disease treatments
•Bial's drug for the treatment of Parkinson's disease in patients with motor fluctuations was approved by the European Commission, the Portuguese drugmaker said on Tuesday. •Ongentys (opicapone) is intended to be used as adjunctive therapy with levodopa and other standard Parkinson's disease treatments
Hidden
in
Cure Parkinson's
8 years ago
The MTHFR gene + homocysteine
Homocysteine is a non-protein forming amino acid which is associated with Parkinson's disease (+ vascular dementia, heart disease...) in several ways: MTHFR gene mutations raise homocysteine levels in PWP and several articles highlight this fact: Homocysteine Level and Mechanisms of Injury in Parkinson's
Homocysteine is a non-protein forming amino acid which is associated with Parkinson's disease (+ vascular dementia, heart disease...) in several ways: MTHFR gene mutations raise homocysteine levels in PWP and several articles highlight this fact: Homocysteine Level and Mechanisms of Injury in Parkinson's
silvestrov
in
Cure Parkinson's
8 years ago
A update on how my PD is not progressing.
Meds 1 50/200 extended release
carbidopa
levodopa
and 1 25/100
carbidopa
levodopa
every 4 hours 5 times a day. 1 6mg requip 24 hour and 1 azilect 1 time a day.
Meds 1 50/200 extended release
carbidopa
levodopa
and 1 25/100
carbidopa
levodopa
every 4 hours 5 times a day. 1 6mg requip 24 hour and 1 azilect 1 time a day.
Bailey_Texas
in
Cure Parkinson's
8 years ago
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