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Here is what Dr. Costantini Prescribed based on my weight / height / meds... if anyone finds this helpful
I am 5'5" and weigh 120 lbs. Diagnosed 2 years I take Azilect: Here is Dr. C's Response "For now, do not change your treatment. Start taking 2 grams a day of thiamine hcl (1 for breakfast and 1 for lunch). Read the instructions carefully. In particular we will need the pull test now. If there is a need
I am 5'5" and weigh 120 lbs. Diagnosed 2 years I take Azilect: Here is Dr. C's Response "For now, do not change your treatment. Start taking 2 grams a day of thiamine hcl (1 for breakfast and 1 for lunch). Read the instructions carefully. In particular we will need the pull test now. If there is a need
p-oui
in
Cure Parkinson's
6 years ago
Frequent urination, every 20 minutes
Out of nowhere, starting last night at bedtime, my husband started needing to urinate multiple times an hour! Like 2-3 times EVERY hour, sometimes almost too urgent to make it. So he's been up for more than 36 hours, it continued during the day. We called the neurologist to ask if this was a CBD/Parkinson's
Out of nowhere, starting last night at bedtime, my husband started needing to urinate multiple times an hour! Like 2-3 times EVERY hour, sometimes almost too urgent to make it. So he's been up for more than 36 hours, it continued during the day. We called the neurologist to ask if this was a CBD/Parkinson's
LostinHeadSpace
in
PSP Association
6 years ago
Anyone out there with Parkinson’s using carbidopa/levodopa and Mucuna derived l-dopa together?
I have found some symptomatic benefit using this combination. Anyone else out there?
I have found some symptomatic benefit using this combination. Anyone else out there?
TheHealingProject
in
Cure Parkinson's
6 years ago
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did you know that l-dopa was a nutrient??!?!
http://www.raysahelian.com/parkinson.html worth the read, very comprehensive
http://www.raysahelian.com/parkinson.html worth the read, very comprehensive
dopedope
in
Cure Parkinson's
6 years ago
how do I substitute L-dopa for, say, swanson vitamins or supplements for siminet? i take 4 daily tablets carbi/levo 25-100mg tab act?
I cannot figure it out and was hoping to be pharmaceutical-free.
I cannot figure it out and was hoping to be pharmaceutical-free.
Nippermcc
in
Cure Parkinson's
6 years ago
Back Pain associated with PD
This seems to be worse since my neurologist increased my
carbidopa
levodopa
to 2 pills (25-100) 4 times a day. Can this be the problem?
This seems to be worse since my neurologist increased my
carbidopa
levodopa
to 2 pills (25-100) 4 times a day. Can this be the problem?
bhurley
in
Cure Parkinson's
6 years ago
Is anyone out there taking mucuna dopa along with prescirbed Levadopa?
I was thinking of enhancing my prescribed Levodopa whit mucuna .. is this a good/bad idea?
I was thinking of enhancing my prescribed Levodopa whit mucuna .. is this a good/bad idea?
Xabojuro2
in
Cure Parkinson's
6 years ago
Relationship Between Levodopa and Dyskinesias and How Thiamine Can Help
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
Kia17
in
Cure Parkinson's
6 years ago
Is carbidopa killing Parkinsons patients at an alarming rate?
(Photo shows Alex and his wife Alexis) In 2014, Dr. Marty Hinz et al published an open-access paper, "The Parkinson disease death rate: carbidopa and vitamin B6," https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/ in which they put forward a sensational claim that from 1978-2011, the death rate of
(Photo shows Alex and his wife Alexis) In 2014, Dr. Marty Hinz et al published an open-access paper, "The Parkinson disease death rate: carbidopa and vitamin B6," https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/ in which they put forward a sensational claim that from 1978-2011, the death rate of
lempa_nik
in
Cure Parkinson's
6 years ago
Mucuna Pruriens is a life saver
I just wanted to share our experience with the natural supplement Mucuna Pruriens - L Dopa .. My husband has not yet been diagnosed with PD as he is waiting to see the movement specialist in Aug 2018..He suffers with hand arm tremors , at first was right arm and now is both but the right being worse
I just wanted to share our experience with the natural supplement Mucuna Pruriens - L Dopa .. My husband has not yet been diagnosed with PD as he is waiting to see the movement specialist in Aug 2018..He suffers with hand arm tremors , at first was right arm and now is both but the right being worse
katz2017
in
Cure Parkinson's
6 years ago
Thiamine and Dr Costantini, what we know and don't know
Sorry this is so long, it is meant to be a summary, but there’s a lot to say. There is now a wealth of information on the discovery by the Italian neurologist Dr Antonio Costantini that high dose Thiamine can be used to treat a range of neurological diseases including Parkinson’s disease. In Dr Costantini
Sorry this is so long, it is meant to be a summary, but there’s a lot to say. There is now a wealth of information on the discovery by the Italian neurologist Dr Antonio Costantini that high dose Thiamine can be used to treat a range of neurological diseases including Parkinson’s disease. In Dr Costantini
wriga
in
Cure Parkinson's
6 years ago
Restless arms
I'm on
carbidopa
levodopa
50 12.5. Rasagiline 1mg. I've been taking 200mg daily tramadol for back pain but tried leaving it out because of constipation. Developed severe akathesia of my arms at night. I suppose it serves me right for taking tramadol. Maybe if I stick it out I'll recover.
I'm on
carbidopa
levodopa
50 12.5. Rasagiline 1mg. I've been taking 200mg daily tramadol for back pain but tried leaving it out because of constipation. Developed severe akathesia of my arms at night. I suppose it serves me right for taking tramadol. Maybe if I stick it out I'll recover.
Johnmo
in
Cure Parkinson's
6 years ago
HAS ANYONE SUCCEDDED IN GETTING OFF CARBIDOPA LEVODOPA.
I THINK IT'S KILLING ME. I CANT FUNCTION. TAKING 1 1/2 EVERY 3 HOURS. 25-100
I THINK IT'S KILLING ME. I CANT FUNCTION. TAKING 1 1/2 EVERY 3 HOURS. 25-100
czimmerman
in
Cure Parkinson's
6 years ago
More Correspondence with Dr Costantini
Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newly diagnosed, mild temor etc. I have just started very low dose of Ropinirole. I asked him about dosage etc. I also explained that I am a retired research chemist with some very modest knowledge in biochemistry and would like
Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newly diagnosed, mild temor etc. I have just started very low dose of Ropinirole. I asked him about dosage etc. I also explained that I am a retired research chemist with some very modest knowledge in biochemistry and would like
wriga
in
Cure Parkinson's
6 years ago
My correspondence with Dr Cosentini
Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for advice on Thiamine dosage this morning. He responded in about an hour! Here it is: Dear Dr Cosentini and company, Hello from the United States! First, thank you for all that you do for people with Parkinsons Disease! I also
Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for advice on Thiamine dosage this morning. He responded in about an hour! Here it is: Dear Dr Cosentini and company, Hello from the United States! First, thank you for all that you do for people with Parkinsons Disease! I also
bassofspades
in
Cure Parkinson's
6 years ago
Can NOW's Dopa Mucuna substitute for Carb/Levo 25-100MG-100MG Tab? Concerned about Sinemet's future effects ...
First I want to thank the members here for the warm welcome to the group. It means a lot with everyone friendly & smart. Second: my partner and I prefer a natural product over a chemical one, are concerned about Sinemet's future effect on me, etc. We were hoping to substitute Carb/Levo 25mg-100mg tab
First I want to thank the members here for the warm welcome to the group. It means a lot with everyone friendly & smart. Second: my partner and I prefer a natural product over a chemical one, are concerned about Sinemet's future effect on me, etc. We were hoping to substitute Carb/Levo 25mg-100mg tab
Nippermcc
in
Cure Parkinson's
6 years ago
How to treat increased level of homocysteine while on levodopa treatment
Normally doctors recommend treating with high dose of B12, B6 and Folate. Unfortunately one or more of these vitamins shortens the metabolism time for Levodopa thereby increasing the off period. How do we fix the problem ? --Shankar
Normally doctors recommend treating with high dose of B12, B6 and Folate. Unfortunately one or more of these vitamins shortens the metabolism time for Levodopa thereby increasing the off period. How do we fix the problem ? --Shankar
sankar003
in
Cure Parkinson's
6 years ago
tremor subsides over time per conditions
Worth repeating - GioCas: "I can guarantee that my tremor after about four months of b1 has shrunk and after three years is almost zero like this: High doses of continuous B1 as indicated by dott Costantini. Use of the necessary levodopa as indicated to each of us by our own neurologist in a personalized
Worth repeating - GioCas: "I can guarantee that my tremor after about four months of b1 has shrunk and after three years is almost zero like this: High doses of continuous B1 as indicated by dott Costantini. Use of the necessary levodopa as indicated to each of us by our own neurologist in a personalized
Hidden
in
Cure Parkinson's
6 years ago
Neurosurgery in Parkinson Disease: A Brief History and Look Forward
The first-line treatment for Parkinson disease (PD),
levodopa
paired with
carbidopa
, did more than revolutionize treatment for PD when it entered use in the 1960s, it also largely replaced the use of neurosurgeries, especially pallidotomy and thalamotomy, that had been used in PD care since the beginning
The first-line treatment for Parkinson disease (PD),
levodopa
paired with
carbidopa
, did more than revolutionize treatment for PD when it entered use in the 1960s, it also largely replaced the use of neurosurgeries, especially pallidotomy and thalamotomy, that had been used in PD care since the beginning
Farooqji
in
Cure Parkinson's
6 years ago
What to do about rising Homocysteine levels due to Levodopa use...
I noticed that my Homocycteine levels are rising with the levodopa use. Anyone out there able to bring it down?? Trying MTHFR and more B’s..but it’’s crazy.
I noticed that my Homocycteine levels are rising with the levodopa use. Anyone out there able to bring it down?? Trying MTHFR and more B’s..but it’’s crazy.
Tryguy
in
Cure Parkinson's
6 years ago
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