Worth repeating - GioCas: "I can guarantee that my tremor after about four months of b1 has shrunk and after three years is almost zero like this:
High doses of continuous B1 as indicated by dott Costantini.
Use of the necessary levodopa as indicated to each of us by our own neurologist in a personalized way.
And nothing else.
Reduced over time very gradually."
Special thank you to Dr. Antonio Costantini and Dr.Erika
Thx for posting that. We are in week 4. His tremors don’t seem to be lessened YET, but I can tell his mind is getting better/sharper. He’s got more energy n seems motivated.
What dose of thiamin HCL are you using? What is the weight of your brother? What Parkinson's med is he on? What else is he taking?
The answers will be of interest to us all herein.
1500 mg two times per day of B 1/Thiamine,magnesium asporotate 400 mg, vitamin D3 10,000 IU, 2400 mg of fish oil, vitamin B6 1.5 mg, methyl folate 400 MCG, methyl B 12 1000 MCG, plus he takes Carbidopa levodopa 25 mg three times a day dissolved on the tongue, Cymbalta HCl 30 mg one time a day for Nuro pain, metoprolol tartrate 25 mg one time a day for blood pressure, amlodipine besylate 5 mg one time a day for heart problem, one Lunesta 3 mg at night for sleeping, and 181 mg aspirin. 15 mg Per day of Oxycodone/acetaminophen for a double hernia iron working injury.
I know it’s a lot of other medication. I’m waiting to hear from Dr. C to see about getting him off of the other medication, just keeping him on the supplements and the carbidopa levodopa. But I haven’t heard back from him yet. He’s kind of afraid not to take the medicine.
Interested in any feed back. Thx
Doc Costantini is known to ask patients to continue their Parkinson's med.
I would change the aspirin to ibuprofen. Ref: google search ibuprofen Parkinson's
What is his weight?
When was he diagnosed?
220# and 6’1 tall. 68 age has been on c/L for about 3 yrs. I’m certain he was malnourished before coming to live w us 10months ago. And he had been on WAY more meds for a long time.
Doc. Stanley Fahn
World-famous leader in movement disorders, Dr. Stanley Fahn was the keynote speaker discussing myths and misconceptions in PD, and several members of the University of Florida Center for Movement Disorders and Neurorestoration also spoke and participated.
video
healthunlocked.com/parkinso...
37:20
Myth 4. “No response to Sinemet 25/100 three times a day is considered a non-responder.”
a. Each person should be treated individually and each may require a different dosage of Sinemet to get a response.
b. Some physicians fail to push the dose after it reaches 300 or 600 mg/day.
c. My “limit” is 2,000 mg/day.
I’ll ck this out later. Going to work now. Thank you again
I am confident your brother will have major relief from Parkinson's.
Special thank you to Dr. Antonio Costantini and Dr.Erika
Easy, quick, simple home test of Parkinson's. Take test now, keep record of score, test your brother next three or four months, compare score. This in addition to Doc Costantini 's suggestion and request that a video be taken now of sitting, tremor, and walking. This for comparison over following months.
healthunlocked.com/parkinso....
UPDRS whats your score? Find out here.
UPDRS Scoring System
Online calculator
why does one have to take Vit D (that you can get from the sun right) and folate(isnt that for pregnant women? Did Dr D ask you to do that? He didnt with me .
I don't think he does
This is why vitamin D:
healthunlocked.com/parkinso...
Art
I will go to your profile and look for "top five".
Which vit, D1, D2, D3?
I think vi t needs calcium.
D-3. I don't have a top five listed......my profile is minimal and I have not updated.
1. Thiamine
2. Vitamin D-3
3. Topical and oral magnesium
4. NAC
5. Pine Bark Extract or Melatonin depending on the individual. If constipation is an issue, then probably melatonin. If sensitive to melatonin, then PBE. EGCG could also be in the top 5! Now brand makes a pine bark extract that has EGCG in it so that would make a nice number 5!
Regarding calcium, yes it works well with vitamin D, magnesium, vitamin K-2 and boron. They are cofactors, but senior men likely get enough calcium from food intake. Women may need to supplement, but smaller doses of calcium at more frequent intervals are more useful than many of the high quantity supplements that give more calcium at once, which the body does not handle well.
Art
…daily supplementation with 1200 IU vitamin D3 for 12 mo significantly prevented the deterioration of PD….academic.oup.com/ajcn/artic.... as measured with the HY stage, UPDRS part II and total, and some domains of the PDQ39, with no apparent increase in risk of hypercalcemia or other adverse events during the study period. A point estimate of the number needed to treat was 6 patients for no worsening or improvement in the HY stage, which was considered very effective. To the best of our knowledge, this is the first randomized trial to examine the effects of vitamin D3 in patients with PD. However, a meta-analysis showed that supplemental vitamin D for older adults who participated in randomized controlled trials consistently showed beneficial muscle effects on strength and balance (27). Therefore, it cannot be distinguished whether vitamin D supplementation specifically delays the progression of PD or whether it just nonspecifically improves muscle strength and balance in older adults.
That was quite a study, don't you think! Vitamin D has so many health benefits and studies to back it , that it makes a lot of health sense to be replete!
Art
Actually i m not sure what this UPDRS is? Is it a special program?
As for constipation my husband does to suffer from this as he has a high fibre diet.
Shall i recommend it to anyone?
No special program
I mean does not suffer from constipation.
Chow much vB1 did you take please
Roy
I seem to have lost dr c email . There’s been so much mail. Can I have it again?
nclude your weight sending to Dr Antonio Costantini, carapetata@libero.it
Thank you Roy.Found it!
Dont quite understand what he wants in the video
Is it just the facial expression and the walking?
All
What dosage and where do you buy it please?
See my profile for dose. Buy, vitacost.com
High Dose of B vitamins (B1, B2, B3 and B5) in Parkinson Disease
My husband's Thiamine journey update.
Interview of Daphne Bryan following the publication of her book: “Parkinson’s and the B1 therapy”.
Visiting Dr. Costantini?
B1 Journey
