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Caelyx
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Back from seeing Consultant
Was hoping to have some quality time and maybe a holiday but shall be going on
Caelyx
from 8th April so not much chance of anything now. Booked walking day, gardening club outings all will have to be cancelled. Feel down as I know
Caelyx
makes you very very tired.
Was hoping to have some quality time and maybe a holiday but shall be going on
Caelyx
from 8th April so not much chance of anything now. Booked walking day, gardening club outings all will have to be cancelled. Feel down as I know
Caelyx
makes you very very tired.
Taichipat
in
My Ovacome
9 years ago
Sinus pain
The pain I have is when I have had the
caelyx
, it is different than any other headache I have had, the whole head is painful and like with the sinus pain my whole head hurts even more if I need to lean over for anything, even my neck hurts.
The pain I have is when I have had the
caelyx
, it is different than any other headache I have had, the whole head is painful and like with the sinus pain my whole head hurts even more if I need to lean over for anything, even my neck hurts.
shirley61
in
My Ovacome
9 years ago
Caelyx and the Heart
Does anyone know why they carry out a heart echo before commencing
Caelyx
? My result came back btwn 45/50% , my Onc says ideally it should be above 50% but she still wants to go ahead with chemo.
Does anyone know why they carry out a heart echo before commencing
Caelyx
? My result came back btwn 45/50% , my Onc says ideally it should be above 50% but she still wants to go ahead with chemo.
lisarm5
in
My Ovacome
9 years ago
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caelyx side effects
Hi folks, I just had my first chemo with carbo and
caelyx
and feel quite anxious about possible side effects of this one. If you have any tips to help manage or avoid side effects please let me know. Had portacath fitted last friday and it worked fine today - so far so good. love francesca x
Hi folks, I just had my first chemo with carbo and
caelyx
and feel quite anxious about possible side effects of this one. If you have any tips to help manage or avoid side effects please let me know. Had portacath fitted last friday and it worked fine today - so far so good. love francesca x
francescahannah
in
My Ovacome
9 years ago
good & bad News
Hello, I've completed 6 mo. of Carbo/
Caelyx
with no real side effects (except usual nausea, weakness etc)thanks to large doses of Vit E & B6 and now I'm free from the never ending hospital visits, my beloved companion of 15 years had to be put to sleep on Monday.
Hello, I've completed 6 mo. of Carbo/
Caelyx
with no real side effects (except usual nausea, weakness etc)thanks to large doses of Vit E & B6 and now I'm free from the never ending hospital visits, my beloved companion of 15 years had to be put to sleep on Monday.
Veronique
in
My Ovacome
9 years ago
Caelyx rash
Started day 17. Now 2 days. How long does it last? This is cycle 1. Lovis x
Started day 17. Now 2 days. How long does it last? This is cycle 1. Lovis x
Lovis
in
My Ovacome
9 years ago
Caelyx started twelve days ago ...
Had the platinum conversation yet again , and this time , Onc looked back through notes , and agreed that we could have another go since Cisplatin last used two years ago : also assured me that there were other possibilities post
caelyx
.
Had the platinum conversation yet again , and this time , Onc looked back through notes , and agreed that we could have another go since Cisplatin last used two years ago : also assured me that there were other possibilities post
caelyx
.
angeladale
in
My Ovacome
9 years ago
More chemo!
Unfortunately the cancer has progressed and CA125 shot up so its 6th line chemo starting on 9th March with carbo and
caelyx
this time. I've never had
caelyx
so hopefully it will have a strong effect on the cancer.
Unfortunately the cancer has progressed and CA125 shot up so its 6th line chemo starting on 9th March with carbo and
caelyx
this time. I've never had
caelyx
so hopefully it will have a strong effect on the cancer.
francescahannah
in
My Ovacome
9 years ago
Platinum resistance .Am
Now , about to start fifth line , this time
Caelyx
: come March , I will have been away from platinum two years (Cisplatin )... And the assumption is that I am platinum resistant ...so after
Caelyx
, what ?
Now , about to start fifth line , this time
Caelyx
: come March , I will have been away from platinum two years (Cisplatin )... And the assumption is that I am platinum resistant ...so after
Caelyx
, what ?
angeladale
in
My Ovacome
9 years ago
Caelyx now
New disease on scan has prompted
Caelyx
which shall commence in a fortnight . The thinking is that the cancer has changed metabolically and no longer registering in the same way . A shape shifter .
New disease on scan has prompted
Caelyx
which shall commence in a fortnight . The thinking is that the cancer has changed metabolically and no longer registering in the same way . A shape shifter .
angeladale
in
My Ovacome
9 years ago
CA125 up to 2683 but I am asymptomatic - what to do???
The mixture is
Caelyx
and Carboplatin and I am booked for a PORT. Questions: Any advice on a PORT? How to look after it? Anything special needed? Did you have any problems? How long have you had it for? A gine know hoe long it can stay there for?
The mixture is
Caelyx
and Carboplatin and I am booked for a PORT. Questions: Any advice on a PORT? How to look after it? Anything special needed? Did you have any problems? How long have you had it for? A gine know hoe long it can stay there for?
Izzystep
in
My Ovacome
10 years ago
Disappointed
I am now starting chemo Liposomal doxorubicin (
Caelyx
) on the 25th February and will have this every 4 weeks. Obviously I am very disappointed.
I am now starting chemo Liposomal doxorubicin (
Caelyx
) on the 25th February and will have this every 4 weeks. Obviously I am very disappointed.
Niecey
in
My Ovacome
9 years ago
Stage 4 for 8 years, facing 5th Line treatment, welcome any input dear friends
I have an option of Cholrambucil oral chemotherapy (told 10% chance working), or
Caelyx
iv chemo (20% chance working) or no treatment.
I have an option of Cholrambucil oral chemotherapy (told 10% chance working), or
Caelyx
iv chemo (20% chance working) or no treatment.
nannacarol
in
My Ovacome
10 years ago
Any advice what next for my friend?
She had 6 months watch and wait before starting
caelyx
and carbo.... The thing is her ca125 has always reflected what is going on with the disease...highs of 34000 and a low of 19.
She had 6 months watch and wait before starting
caelyx
and carbo.... The thing is her ca125 has always reflected what is going on with the disease...highs of 34000 and a low of 19.
sammyH
in
My Ovacome
10 years ago
Side effects of Caelyx - neuralgia & tooth ache
For some time before starting this cycle of chemo I had a sensitive tooth but 3 wks after 2nd dose of
Caelyx
I developed neuralgia spreading from this tooth up to my ear and down my neck. The pain was unbearable and altho' dentist took x rays, she could find nothing wrong with tooth or gum.
For some time before starting this cycle of chemo I had a sensitive tooth but 3 wks after 2nd dose of
Caelyx
I developed neuralgia spreading from this tooth up to my ear and down my neck. The pain was unbearable and altho' dentist took x rays, she could find nothing wrong with tooth or gum.
Veronique
in
My Ovacome
10 years ago
caelyx
feel very tired and tearful on
caelyx
chemo, anyone else feel the same? x
feel very tired and tearful on
caelyx
chemo, anyone else feel the same? x
kerrybees
in
My Ovacome
10 years ago
Third line treatment imminent but not till the New Year.
Next plan is
Caelyx
plus yet another dose of carboplatin (this will be the third time). My Ca125 is now 983 which has risen slowly over the last few months.
Next plan is
Caelyx
plus yet another dose of carboplatin (this will be the third time). My Ca125 is now 983 which has risen slowly over the last few months.
Izzystep
in
My Ovacome
10 years ago
Post First Line Consultation Today
Reason being they took me off Pacltaxol after chemo 2 due to an allergic rash and switched to
Caelyx
. The Cancer Drugs Fund will only pay if had Carbo/Pacli firstline for Stage 4 which is what I am. No point appealing she said.
Reason being they took me off Pacltaxol after chemo 2 due to an allergic rash and switched to
Caelyx
. The Cancer Drugs Fund will only pay if had Carbo/Pacli firstline for Stage 4 which is what I am. No point appealing she said.
kazrazmataz
in
My Ovacome
10 years ago
Caelyx
I'm a little confused as to whether
Caelyx
makes you lose you hair not. Please can anyone that has been on it let me know. Lovis x
I'm a little confused as to whether
Caelyx
makes you lose you hair not. Please can anyone that has been on it let me know. Lovis x
Lovis
in
My Ovacome
10 years ago
CA125 on the up, CT scan shows new growth in/on liver and a spot next to the spleen. No more Avastin - what next?
I have another appointment in 2 weeks time, but she suggested
Caelyx
and carboplatin as a possible treatment. Maybe there will be a trial in the way I can look at. I left feeling devastated and downhearted and just need a bit of moral support.
I have another appointment in 2 weeks time, but she suggested
Caelyx
and carboplatin as a possible treatment. Maybe there will be a trial in the way I can look at. I left feeling devastated and downhearted and just need a bit of moral support.
Izzystep
in
My Ovacome
10 years ago
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