caelyx

[kerrybees]

feel very tired and tearful on caelyx chemo, anyone else feel the same? x

[kazrazmataz]

No, I felt OK on Caelyx to be honest but everyone is different. Not sure emotions are a side effect but I am not an expert. That said feeling low, tired, and possibly low blood counts on top of dealing with the psychological impact of the underlying reason for the chemo could be the cause. I would speak to your GP and/or specialist nurse. Hope you feel better soon, take care x

[vipervictoria]

I haven't had caelyx, but I was very emotional - scared stiff - on chemo, and I had counselling and relaxation exercises from a wonderful nurse. I am a great believer in the gentle talking therapies. I hope you can find some help. It's better to cry than bottle it up. Best, Vx

[MargaretJ]

I had caelyx from April to August this year abnd had the worst possible side effects of severe mouth ulcers (17 at one point) peeling hands and feet, sores all over my body and serious skin blisters. I ended up in hospital with septicaemia on I/V antibiotics. I was utterly exhausted and did not have any energy! I am just getting back to normal as the scar from removal of lymph nodes in my left armpit (removed when I had a breast lump removed in 2011) has been infected so I have had massive doses of antibiotics and cannot have more chemo until I clear it. I have also been very down and had trouble sleeping and interference with my bowel and so my colostomy has been more difficult to regulate. My next chemo is likely to be Topotecan which has fewer side effects and there is another. Patient in York who is not suffering with that! I had my last Caelyx in August and am just getting back to normal.

Margaret

[cerise]

Ah, Kerry, it's all a bit of a roller coast ride isn't it? I'm sorry you feel as you do. How many have you had? I'm on it at present, fifth of six Monday just gone for second recurrence of PPC diagnosed April 2012. I'm doing okay. I had oral thrush and some ulcers last month but also came down with nasty virus beforehand so that wouldn't have helped. My skin peels a bit, like paper cuts so annoying more than anything else. Tiredness can be an issue midway through mainly, but I do have high expectations of myself. I did find that I felt really low following the first couple of doses. Not like me at all and, I also believe in talking, visualisation etc which I still do. Eat well, rest when you can, have a laugh or three and be kind to yourself. This is such a helpful site to use with lots of great advice and kindness flowing through it.

All the very best,

Sue x

[Celtic6648]

I had number two just last week , a drain , three weeks into it I was very down last week and that is unlike me , as this is my second round of Clemo , cancer always wins thoughts , what's the point realize I'll never ho back to work I'm feeling o k now but can see where your coming from hope your happy today xx

[thesilent1]

Hi Kerrybees. Welcome to our club. I haven't had Caelyx but it has been mentioned as a possible treatment option to me. I have a first recurrence and am not on any treatment yet for it. I remember feeling quite tearful and down 2 into my first line treatment. I was suffering from bad side effects at that point though and I think that's what caused me to feel so low. Are you on first line treatment or is this treatment for a recurrence? Do you have any side effects from treatment other than feeling down? It really is an emotional rollercoaster that we are on (I hate rollercoasters lol). I suggest you let your oncologist know how you are feeling. They may be able to help. Keep posting, the members of this forum are very understanding and there will always be somebody who will reply to you. We are all here to help each other through this difficult time and it does help to know that you are not the only one feeling this way or suffering with a particular chemo drug etc. Big hugs. Ann xo

[rjhs]

Hello Kerrybees, I have three sessions of carbo/caelyx for first recurrance and have been relatively lucky not to have had too many side effects. I don't think it makes me feel down although perhaps on a shorter fuse than usual (hard to tell LOL) so it may be mood altering. What I have noticed is that I have been having really vivid dreams which I don't normally have and which I have quite enjoyed.

Rita xxxxx

[Di16]

Hi, I haven't had caelyx, but I did feel a bit down & weepy for a while in the middle of a course of carboplatin last winter, also tired, & fed up with my lack of energy, & discouraged when my mid-chemo scan showed it was making little difference, even though I'd been warned that may be the case. I've been on weekly Taxol since the end of July, (5 more doses to go), & though it's been a longer course, I feel I've coped better emotionally.

DI

[Hidden]

I havent been on this drug but sometimes I do feel tired from the Avastin, you can be fine and then down all in one day just like a change in the weather. Please feel free to post here and we are all here to help you cope. The whole idea of chemo is overwhelming anyway because it is a new normal, we are out of our little safety net once we start. That is rather unnerving actually if you think of it. Try to balance rest with a little fresh air even go to a local shopping centre for a walk around or a coffee. Sometimes I just prefer my own company and I do that. Wishing you well as the treatment goes on your body learns to cope and you will feel a bit better, please come on here any time

[kerrybees]

Thank you for your kind words. I am just so scared and lonely with this being my 3rd recurrance. X

[Jorja]

I had caelyx and carbo this year from February to July, 1st time on caelyx but third round of chemo, I found I was very emotional in first three months, I am normally in control person but these feelings threw me a bit, had sore hands and feet and just a couple of ulcers, started having trouble with blocked bowel, ended up in hospital 3 times to fix, now their recommending surgery for scar lesions on bowel, not sure about that will see how I feel after seeing specialist? I was waiting for feelings to kick in on fourth month again but never got them, actually felt ok emotionally, really well in fact, (husband was worried thought treatment not working cos I was easy going on him lol!) other issues were easy to deal with, my markers have gone down to 13 so very happy with that, now having 3 monthly checks so hopefully ok for a while, before this year my last chemo was 2010, before that 2008 when first diagnosed so feeling pretty lucky so far, I am a really positive person and try to live my life as I used to before diagnosed, I don't dwell on my problem too much, tiredness main issue, and I know this can be hard for some people, I find my family get on with their life better when they see I'm good, but they are always there for me if needed, I hope you get through this ok, we all handle things differently, the other ladies on here are great and you will always have some one in the same situation who can give you ideas on what you could do to help, talk to a counsellor if it really starts to affect you badly.

Take care x

[Celtic6648]

Glad someone mentioned the dreams I the same Also was very down last week second hit , second lot of Clemo , try to just get on with it S we all do xxx

[JPTjpt123]

I have just started Caelyx last week and this week am feeling teary and painful in my stomach region. is this normal?