Hogging HU at the moment, especially after my midwifery in helping to deliver my grandson.
However during my last oncology appointment on Thursday I was told that my CA125 has risen to 2683 and that I have small volume disease in the liver and spleen and also in the lymph nodes.
The oncologist said that it's not a question of IF I need chemo its a question of WHEN!
The mixture is Caelyx and Carboplatin and I am booked for a PORT.
Any advice on a PORT? How to look after it? Anything special needed? Did you have any problems? How long have you had it for? A gine know hoe long it can stay there for? I had a PICC 2ns line, but it was soooooo itchy I had it removed at the end if treatment.
My CA125 went up to 6600 when I had my 2nd line - what do you think about CA125 and the number? I don't want to start chemo but worried about the high number. I know some ladies have had very high CA125 levels.
Some sites advise start a.s.a.p. and others advise to wait until you become symptomatic. I must admit I am feeling well at the moment and don't want I spoil it.
What a dilemma.
Thanks for helping, Irene xxx