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Hello š Does anyone here have Occipital Neuralgia?
I am new to this group. Iām 27. I have had chronic migraines and chronic neck pain for 15 years now. Iāve been on quite a few things with no luck of relief. Even all of the new once monthly injection preventatives. Most of my days in the month are included with migraines. My doctor told me there was
I am new to this group. Iām 27. I have had chronic migraines and chronic neck pain for 15 years now. Iāve been on quite a few things with no luck of relief. Even all of the new once monthly injection preventatives. Most of my days in the month are included with migraines. My doctor told me there was
Ubud2021
in
Pain Concern
4 years ago
Hello š Anyone here have Occipital Neuralgia?
I am new to this group. Iām 27. I have had chronic migraines and neck pain for 15 years now. Iāve been on quite a few things with no luck. Even all of the new once monthly injection preventatives. Most of my days in the month are included with migraines. My doctor told me there was no more she could
I am new to this group. Iām 27. I have had chronic migraines and neck pain for 15 years now. Iāve been on quite a few things with no luck. Even all of the new once monthly injection preventatives. Most of my days in the month are included with migraines. My doctor told me there was no more she could
Ubud2021
in
National Migraine Centre
4 years ago
Good news!
My bone and CT scans were stable. Looks like Ibrance is going to be my life for a while. Iām grateful for this positive news!
My bone and CT scans were stable. Looks like Ibrance is going to be my life for a while. Iām grateful for this positive news!
BluHydrangea
in
SHARE Metastatic Breast Cancer
4 years ago
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Ibrance - trying 1wk on 1wk off??
Hi! Iām new here, have had issues with Ibrance lowering wbc dangerously low. Weāve tried lowering the dose now to 100mg, but my body canāt safely handle that for two weeks. So, my Onc is trying me on 1wk on 1wk off, two weeks on per month. Wondering, has anyone else tried a Schedule like this? Iām having
Hi! Iām new here, have had issues with Ibrance lowering wbc dangerously low. Weāve tried lowering the dose now to 100mg, but my body canāt safely handle that for two weeks. So, my Onc is trying me on 1wk on 1wk off, two weeks on per month. Wondering, has anyone else tried a Schedule like this? Iām having
BBNYC
in
SHARE Metastatic Breast Cancer
4 years ago
Chemotherapy again!!! ššš
Hello ladies, I am now on chemotherapy after 6 years again. I did radiotherapy before 3 years cause of bone Mets, since then I took Ibrance for 2,5 years and Femara. Before 3 months at my 6months scans and labs, we found new Mets in bones so my doctor decide to start chemo and a new pill 'Aromestan'.
Hello ladies, I am now on chemotherapy after 6 years again. I did radiotherapy before 3 years cause of bone Mets, since then I took Ibrance for 2,5 years and Femara. Before 3 months at my 6months scans and labs, we found new Mets in bones so my doctor decide to start chemo and a new pill 'Aromestan'.
CharaMasiakou
in
SHARE Metastatic Breast Cancer
4 years ago
Advice from your experience please.
Hello again, Hope you are all doing okay. Iāve been really helped by the supportive posts that Iāve been able to read on here. Thank you! I just wanted to ask peopleās opinions really. I have a GP consultation in the morning, as Iām still having a lot of issues. Iāve been on flecainide 2 x 50mg
Hello again, Hope you are all doing okay. Iāve been really helped by the supportive posts that Iāve been able to read on here. Thank you! I just wanted to ask peopleās opinions really. I have a GP consultation in the morning, as Iām still having a lot of issues. Iāve been on flecainide 2 x 50mg
Apple88
in
AF Association
4 years ago
help paying for Ibrance
Pay 657.00 monthly need help paying this is with medicare
Pay 657.00 monthly need help paying this is with medicare
Wilkelant63
in
SHARE Metastatic Breast Cancer
4 years ago
Hi everyone unfortunately Iāve been told today that Ibrance hasnāt worked for me.
Ibrance not working
Ibrance not working
Sarahdellar45
in
SHARE Metastatic Breast Cancer
4 years ago
Left bundle branch block
Hi I'm Susie, have LBBB, and experiencing more than usual palpitations. I take Bisoprolol, but believe it can be contraindicated? Does anyone have any information? Thanks
Hi I'm Susie, have LBBB, and experiencing more than usual palpitations. I take Bisoprolol, but believe it can be contraindicated? Does anyone have any information? Thanks
Hidden
in
British Heart Foundation
4 years ago
Ibrance vs Piquray
I have been stable almost 2 years on Ibrance, Letrazole and Xgeva. My latest bone scan is stable. The CT showed that a "shadow" in my liver grew about 1cm (previous 7 tumors are gone). My Oncologist wants to change me to Piquray and Fuvestrant, because I have the mutation. But he has no patients currently
I have been stable almost 2 years on Ibrance, Letrazole and Xgeva. My latest bone scan is stable. The CT showed that a "shadow" in my liver grew about 1cm (previous 7 tumors are gone). My Oncologist wants to change me to Piquray and Fuvestrant, because I have the mutation. But he has no patients currently
klhowe
in
SHARE Metastatic Breast Cancer
4 years ago
Wondering if I am progressing after 2 years on Ibrance
Hello sister warriors. I've had good results on Ibrance since 8/18 and watched my CA15 markers decline from 200 to stabilize around 30-32 for almost 9 months. My labs today showed an increase of the CAT15 from 32 to 36. I fully realize that the numbers were very good and this is not a doubling or tripling
Hello sister warriors. I've had good results on Ibrance since 8/18 and watched my CA15 markers decline from 200 to stabilize around 30-32 for almost 9 months. My labs today showed an increase of the CAT15 from 32 to 36. I fully realize that the numbers were very good and this is not a doubling or tripling
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
Anxiety overload
Hello friends, I am on Ibrance 125mg/ Letrozole. Iām also on antidepressants and clonazepam for anxiety. I canāt seem to shake this anxiety. I canāt sleep, I have no appetite, no energy, I feel like an earthquake inside of me. Even therapy doesnāt work. Is anyone feeling the same way? What do you all
Hello friends, I am on Ibrance 125mg/ Letrozole. Iām also on antidepressants and clonazepam for anxiety. I canāt seem to shake this anxiety. I canāt sleep, I have no appetite, no energy, I feel like an earthquake inside of me. Even therapy doesnāt work. Is anyone feeling the same way? What do you all
Annadm
in
SHARE Metastatic Breast Cancer
4 years ago
Todayās EP Tele-health appointment
Iām grateful that I have such a good relationship with my EP. We had a phone catch up today and he reassured me that there was no AF on the recent Kardia tracing Iād sent through (which was 135 bpm and said āpossible AFā). He said there were runs of atrial bigeminy then a run of atrial tachycardia then
Iām grateful that I have such a good relationship with my EP. We had a phone catch up today and he reassured me that there was no AF on the recent Kardia tracing Iād sent through (which was 135 bpm and said āpossible AFā). He said there were runs of atrial bigeminy then a run of atrial tachycardia then
Kaz747
in
AF Association
4 years ago
Capecitabine
Is anyone taken capecitabine I started 4-9 have slight diarrhea stomach pain mouth sores sore hands and feet lack of appetite tired Dr stopped meds Monday 4/20 til my tele conference Tuesday the 28th ended up in er on Thursday 4/23 with dehydration passed out twice got fluids cat scan I was previously
Is anyone taken capecitabine I started 4-9 have slight diarrhea stomach pain mouth sores sore hands and feet lack of appetite tired Dr stopped meds Monday 4/20 til my tele conference Tuesday the 28th ended up in er on Thursday 4/23 with dehydration passed out twice got fluids cat scan I was previously
library2019
in
SHARE Metastatic Breast Cancer
4 years ago
Starting new treatment with Piqray
Hi all, Has anyone started treatment on Piqray? I was on Ibrance but I have a mutant on that will not work with ibrance. New treatment is faslodex ( used before), Piqray and aroasin. Please share your experience on the Piqray and aromasin!
Hi all, Has anyone started treatment on Piqray? I was on Ibrance but I have a mutant on that will not work with ibrance. New treatment is faslodex ( used before), Piqray and aroasin. Please share your experience on the Piqray and aromasin!
Gaily71
in
SHARE Metastatic Breast Cancer
4 years ago
Hi
Just found this group! 2nd round of breast cancerā this time it is in my scapula too. Just finished my 3rd round of Ibrance and Exemestane. Bone and CT scan yesterday.... Iām hopeful.
Just found this group! 2nd round of breast cancerā this time it is in my scapula too. Just finished my 3rd round of Ibrance and Exemestane. Bone and CT scan yesterday.... Iām hopeful.
BluHydrangea
in
SHARE Metastatic Breast Cancer
4 years ago
Treatment today
Hi lovely ladies. Went for my Denosumab jab and to pick up my Ibrance today. To my surprise my Denosumab wasnāt on my meds list, not to worry I thought. Then I was told I could have 3 months supply of Ibrance and not to worry about blood tests as my blood has been good. I was also told I could miss my
Hi lovely ladies. Went for my Denosumab jab and to pick up my Ibrance today. To my surprise my Denosumab wasnāt on my meds list, not to worry I thought. Then I was told I could have 3 months supply of Ibrance and not to worry about blood tests as my blood has been good. I was also told I could miss my
Hidden
in
SHARE Metastatic Breast Cancer
4 years ago
Apixaban
I have changed from Xarelto to Apixaban . I now have really upset gut and tight chest . Is it just me being neurotic or have others experienced this ? I don stand much chance of getting it changed now. I cMe iff Xarelto because of increasing joint pain. Hope you are all well.
I have changed from Xarelto to Apixaban . I now have really upset gut and tight chest . Is it just me being neurotic or have others experienced this ? I don stand much chance of getting it changed now. I cMe iff Xarelto because of increasing joint pain. Hope you are all well.
Luludean
in
AF Association
4 years ago
The blues :(
Hello fellow thrivers, Iām on Ibrance 125/Letrozole. Iām curious if any of you get the ābluesā sometimes on this med combo? I cry, Iām not hungry and could sleep all day curled up in a ball. And Iām on antidepressants. Thanks and God bless
Hello fellow thrivers, Iām on Ibrance 125/Letrozole. Iām curious if any of you get the ābluesā sometimes on this med combo? I cry, Iām not hungry and could sleep all day curled up in a ball. And Iām on antidepressants. Thanks and God bless
Annadm
in
SHARE Metastatic Breast Cancer
4 years ago
Susie
Hello, I have stage 4 breast cancer in my right lung and pleura. Iām new to ibrance and fasodex and Iām having many side effects such as joint pain, hot flashes and cold chills, and mouth sores. Does anyone know if these side effects get better with time?
Hello, I have stage 4 breast cancer in my right lung and pleura. Iām new to ibrance and fasodex and Iām having many side effects such as joint pain, hot flashes and cold chills, and mouth sores. Does anyone know if these side effects get better with time?
Likes
in
SHARE Metastatic Breast Cancer
4 years ago
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