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Starting Kisquali and Injections
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Paratroop1
in
SHARE Metastatic Breast Cancer
9 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
9 months ago
Ibrance and Letrozole
Has anyone had long term success with Ibrance and Letrozole for liver mets? I only have mets to my liver.
Has anyone had long term success with Ibrance and Letrozole for liver mets? I only have mets to my liver.
Frenchgirl68
in
SHARE Metastatic Breast Cancer
9 months ago
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Ibrance and your hair
It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, but now my hair is an absolute disaster . Any advice from anyone? Also I get easily short of breath and suffer dreadful fatigue. I feel I shouldn't complain cos I have no changes on my cat scans.
It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, but now my hair is an absolute disaster . Any advice from anyone? Also I get easily short of breath and suffer dreadful fatigue. I feel I shouldn't complain cos I have no changes on my cat scans.
Alnmouth
in
SHARE Metastatic Breast Cancer
9 months ago
Why do I feel so rundown on ibrance?
Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone positive.I was on Ibrance and letrozole for around 2 yrs. I was told the pills usually only last 9 months. Almost Depends on the person. Every time I have my labs done my white count and neutrophils were too low.
Hello, I am a breast cancer survivor, stage 4, her2- , estrogen and progesterone positive.I was on Ibrance and letrozole for around 2 yrs. I was told the pills usually only last 9 months. Almost Depends on the person. Every time I have my labs done my white count and neutrophils were too low.
Burtie1
in
SHARE Metastatic Breast Cancer
9 months ago
Long term survivors taking ibrance
I just started Ibrance and letrozole. I would love to hear from people that have had success with this combo for 4+ years.
I just started Ibrance and letrozole. I would love to hear from people that have had success with this combo for 4+ years.
Greatday2
in
SHARE Metastatic Breast Cancer
9 months ago
Scary - 3mm increase in tumour size
HI I would appreciate any help, encouragement😀 or comments . Feeling v panic-ed by this new development . Hoping to get much longer from my first line of treatment as it allows me continue life pretty much as normal I was diagnosed with MBC, Mar 2022 , several tumours in right pleura (first diagnosed
HI I would appreciate any help, encouragement😀 or comments . Feeling v panic-ed by this new development . Hoping to get much longer from my first line of treatment as it allows me continue life pretty much as normal I was diagnosed with MBC, Mar 2022 , several tumours in right pleura (first diagnosed
Kahe
in
SHARE Metastatic Breast Cancer
9 months ago
Genomics
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
HI all, After a progression 2 years on Arimadex, Ibrance my dear partner has had a liver biopsy and we are doing genomics testing, around $3.3k. 500 gene plate? Awaiting results but after a second opinion , (lady Onc, more caring, smart) Fulvescant has been prescribed. The other prescribed Tamoxifen
muzzatron
in
SHARE Metastatic Breast Cancer
9 months ago
Burned Nerves for Spinal Stenosis..
Morning everyone, I had a temporary nerve block the other day in 6 points around my spine. It seemed to work, the surgeon mentioned the next step would be to burn the nerves but this would only give 6 months - 1 year of relief. I just wondered if anybody here has had this done?
Morning everyone, I had a temporary nerve block the other day in 6 points around my spine. It seemed to work, the surgeon mentioned the next step would be to burn the nerves but this would only give 6 months - 1 year of relief. I just wondered if anybody here has had this done?
BertoBishop
in
Pain Concern
11 months ago
surgery or no?
hi all. I have been treated for stage 4 breast cancer with mets to the t2 and axillary node since 2016. Been on ibrance and faslidex since and doing well. I recently took a bad fall and fractured my upper arm in several places. From X-rays and Ct. scan so far it does not appear cancer related. Had two
hi all. I have been treated for stage 4 breast cancer with mets to the t2 and axillary node since 2016. Been on ibrance and faslidex since and doing well. I recently took a bad fall and fractured my upper arm in several places. From X-rays and Ct. scan so far it does not appear cancer related. Had two
Epinto
in
SHARE Metastatic Breast Cancer
9 months ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
9 months ago
Cold water!
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
I went swimming for the first time yesterday since my diagnosis of PAF 18 months ago. I'm on holiday in France at the moment. It was an outdoor pool and it's hot here so the water felt really cold. I went in waist deep and then ducked under. I swam for a few metres then realised I was in AF. I guess
Sandych55
in
Atrial Fibrillation Support
11 months ago
Ablation next Wednesday
Hi, Apologies, I’m dreadful at remembering terminology .. I’ve had racing and irregular heart beat intermittently for a decade of more. I have a resting heart rate of 50 and low blood pressure. My afib tends to be aggressive and I usually end up in hospital. ( rate of 240 not unusual) Last time had
Hi, Apologies, I’m dreadful at remembering terminology .. I’ve had racing and irregular heart beat intermittently for a decade of more. I have a resting heart rate of 50 and low blood pressure. My afib tends to be aggressive and I usually end up in hospital. ( rate of 240 not unusual) Last time had
Christmaspie
in
AF Association
11 months ago
Tachycardia
Hi. After six months clear of af it suddenly came back last month. It seems to bother me every day since. I’m on Bisoprolol 10 and flecainide 50.x 2. Also became tachycardic. Spoke to gp who agreed I could increase flecainide to 2 x 100. Made me very breathless so reduced it again. I’m mostly tachycardic
Hi. After six months clear of af it suddenly came back last month. It seems to bother me every day since. I’m on Bisoprolol 10 and flecainide 50.x 2. Also became tachycardic. Spoke to gp who agreed I could increase flecainide to 2 x 100. Made me very breathless so reduced it again. I’m mostly tachycardic
jd2004
in
AF Association
11 months ago
reduced EF and Left bundle branch block
I am 59 and have had left
bundle
branch
block
with no symptoms since 2016 , now have reduced EF of 43% It has gone down by 2% in the last 2 years so a bit worrying if it keeps dropping. Only just found this out as no one explained it to me 2 years ago so not sure yet how to take it.
I am 59 and have had left
bundle
branch
block
with no symptoms since 2016 , now have reduced EF of 43% It has gone down by 2% in the last 2 years so a bit worrying if it keeps dropping. Only just found this out as no one explained it to me 2 years ago so not sure yet how to take it.
WB59
in
British Heart Foundation
2 years ago
A question please
I had had bouts of Afib ranging on average of 12-18 hours a time for many years. I then had one of 55 hours 5 years ago. Then it was back to the usual pattern. Suddenly I’m into another long one? I have always self converted and never been to hospital, except twice in 18 years and that was with chest
I had had bouts of Afib ranging on average of 12-18 hours a time for many years. I then had one of 55 hours 5 years ago. Then it was back to the usual pattern. Suddenly I’m into another long one? I have always self converted and never been to hospital, except twice in 18 years and that was with chest
Frances123
in
AF Association
11 months ago
fulvestrant lung!!
Hi lovely ladies. I was wondering if anyone can tell me how they have done with Fulvestrant with a lung met? Or just in general? I got 5 years out of ibrance (first line) treatment. found a tiny 3mm lung met now switching to fulvestrant. many knowledge greatly appreciated💕
Hi lovely ladies. I was wondering if anyone can tell me how they have done with Fulvestrant with a lung met? Or just in general? I got 5 years out of ibrance (first line) treatment. found a tiny 3mm lung met now switching to fulvestrant. many knowledge greatly appreciated💕
Ppppopp
in
SHARE Metastatic Breast Cancer
9 months ago
Ibrance and Mouth Sores
I get mouth and/or tongue sores every month on Ibrance - i've tried everything - the prescription steroid, all the holistic and natural things, and it usually doesn't help at all. Some are wore than others, right now I have one so back on the back side of my tongue and I feel kind of sick all over an
I get mouth and/or tongue sores every month on Ibrance - i've tried everything - the prescription steroid, all the holistic and natural things, and it usually doesn't help at all. Some are wore than others, right now I have one so back on the back side of my tongue and I feel kind of sick all over an
Unicornuniverse
in
SHARE Metastatic Breast Cancer
9 months ago
Follow up on new bone met
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Follow up; starting 2 weeks of radiation therapy on the new bone met, It is one centimeter and not causing any pain yet so treating it and a small area around it on femur in case of micro mets. Radiation Oncologist said that SBRT is an option but harder to get approved and best used to direct only
Trissh
in
SHARE Metastatic Breast Cancer
9 months ago
Free ibrance
Hello, I live in the Uk and have a month supply of ibrance. if anyone would like it for free I’m happy to post anywhere! X
Hello, I live in the Uk and have a month supply of ibrance. if anyone would like it for free I’m happy to post anywhere! X
Ppppopp
in
SHARE Metastatic Breast Cancer
9 months ago
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