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Brain tumours (low-grade/mixed)
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Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
18 days ago
Interactive seminar on Garvan institute's work to improve the treatment of advanced cancers, including myeloma, breast and prostate cancer
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Garvan Institute of Medical Research Free Public Seminar - Giving cancer no place to hide SPEAKER/S Professor Peter Croucher and Associate Professor Christine Chaffer DATE 10:30am 21 Jun 2024— 11:30am 21 Jun 2024 (AEST) Join us for an interactive seminar on Garvan’s work to improve the treatment
Seasid
in
Advanced Prostate Cancer
18 days ago
Just Venting
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
I went to see my oncologist this morning. I live in a city and go to locally well known cancer clinic associated with an research hospital. I was there for a three month check in and blood work as I have been stable on AI and Ibance for the past year. The last six weeks had been rough, due to a cold
Suite1000
in
My Breast Cancer Community
19 days ago
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Overcoming anxiety about going out
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Since I started on immunotherapy in January, I've had a few setbacks. I've had episodes of really bad pain - diverticulitis, I've had to have fluid drained from my lung and around my heart - both made me feel very unwell. I now have atrial fibrilation which seems to be a side issue of lung cancer
Gingergus
in
The Roy Castle Lung Cancer Foundation
20 days ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
20 days ago
Pluvicto patient
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
74 yo male 3rd round of pluvicto PSA started at 9.8 down to 1.41 !! Been on Luprone for 18 months! Prostrate has been removed and cancer has spread to liver and spine. Surprisingly I feel good, no pain yet! I am a farmer still going 12 hours a day! I use quad-med shots for ED , but they don’t work as
Reltubs
in
Advanced Prostate Cancer
21 days ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
21 days ago
Test results 🤨🧐
Morning all, Thought I’d share latest results- In all honesty I’ve not felt so bad mentally in a long time- between this and being menopausal hormones are nightmare not to mention weight gain☹️😭I’ve just had enough since diagnosis I feel I’m on a hamster wheel part of me wants to stop medication as
Morning all, Thought I’d share latest results- In all honesty I’ve not felt so bad mentally in a long time- between this and being menopausal hormones are nightmare not to mention weight gain☹️😭I’ve just had enough since diagnosis I feel I’m on a hamster wheel part of me wants to stop medication as
J2506
in
Thyroid UK
7 months ago
Anyone have withdrawal symptoms when dropping a treatment?
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
ER/PR positive HER2- Diagnosed 2019 primary breast cancer. IIIB chemo/infection/mastectomy radiation. 2021 - MBC bone Ibrance /Faslodex 2023- primary Lung Cancer/RT upper lobectomy March 2024-progression Orserdu. May 2024- major POD bones & liver May 2024- to begin Tredolvy.
Elle713
in
SHARE Metastatic Breast Cancer
22 days ago
Ethanol Ablation
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Hi, I'm wondering if anyone has experienced Ethanol Ablation on thyroid lobe? The last post I can find was 2yrs ago. I guess it must be more in use now. My husband was scheduled for right lobe removal operation next Thursday then received a letter from his Consultant yesterday saying that on checking
Maggiesmum
in
Thyroid UK
22 days ago
Piqray/alpelesib. Oncologists. And various.
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Hello all. Photo of Stevie. My little girl is growing up. I’m popping in to say I’ve been told, as of last Friday, I’m doing well on Piqray/Alpelesib and Fulvestrant. (Denocumab/Xgeva monthly) For any of you wondering how this regime is. For me it is going quite well but I must say, I have lost a lot
Timtam56
in
SHARE Metastatic Breast Cancer
22 days ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
22 days ago
help determining stage
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
as many people are interested in the cancer stage, I would like to be answer them. I'm 63 Gleason 4+4 8 mri biopsy (Trans pireneal) 25 cores 12 positive 75% psma pet scan shows spread to exterior iliac lymph nodes is this stage IV, as all the literature appears to suggest it is. hopfully there is
blackchurch
in
Advanced Prostate Cancer
22 days ago
My diagnosis after 6 years, Lymphoma EMZL, AL Amyloidosis and Myeloma
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis
Pipido36
in
The Roy Castle Lung Cancer Foundation
22 days ago
Op update
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
georgiageorgia182
in
My Ovacome
23 days ago
Why do MO have one stop Zytiga and Prednisone during Cabazitaxel And Carboplatin treatment for pca Adenocarcinoma liver Mets?
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
I should have asked. But, we asked so many questions, plus hoping for a more detailed answer
Shorehousejam
in
Advanced Prostate Cancer
24 days ago
Does BID dosing of Low Dose Naltrexone (LDN) minimize side effects?
Does BID dosing of Low Dose Naltrexone (LDN) minimize side effects? Answered by Sebastian Denison, RPh https://youtu.be/06PVc8HkXio Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is
Does BID dosing of Low Dose Naltrexone (LDN) minimize side effects? Answered by Sebastian Denison, RPh https://youtu.be/06PVc8HkXio Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Is there a natural version of Low Dose Naltrexone (LDN)?
Is there a natural version of Low Dose Naltrexone (LDN)? Answered by Sebastian Denison, RPh https://youtu.be/lDJC9lAf768 Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with
Is there a natural version of Low Dose Naltrexone (LDN)? Answered by Sebastian Denison, RPh https://youtu.be/lDJC9lAf768 Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Constipation with Low Dose Naltrexone (LDN is that dose too high?
Constipation with Low Dose Naltrexone (LDN is that dose too high? Answered by Sebastian Denison, RPh https://youtu.be/UM2X-7rHmbg Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed
Constipation with Low Dose Naltrexone (LDN is that dose too high? Answered by Sebastian Denison, RPh https://youtu.be/UM2X-7rHmbg Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed
Shewulf
Administrator
in
LDN Research Trust
4 months ago
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation?
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
Shewulf
Administrator
in
LDN Research Trust
4 months ago
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