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Brain arteriovenous malformation (AVM)
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Should I have DBS or not?
I was diagnosed about 10 years ago. May 2011 I was in Lund to be accessed by a neurosurgeon. I have the shakes quite bad AT TIMES, not all the time, I take only about 1/3 of the total amount of Stalevo and Requip. Because of the waiting time I have begun to worry - do I really need DBS, the thought
I was diagnosed about 10 years ago. May 2011 I was in Lund to be accessed by a neurosurgeon. I have the shakes quite bad AT TIMES, not all the time, I take only about 1/3 of the total amount of Stalevo and Requip. Because of the waiting time I have begun to worry - do I really need DBS, the thought
Aussie
in
Cure Parkinson's
12 years ago
Have you heard about a new Levadopa Gel?
' From the European Parkinsons Disease Association (EPDA) "A gel form of medication implanted in the smal intestine is more successful in reducing 'off' time in people with advanced Parkinson's, according to a new study at the University of Maryland. This may prove to be an alternative for more
' From the European Parkinsons Disease Association (EPDA) "A gel form of medication implanted in the smal intestine is more successful in reducing 'off' time in people with advanced Parkinson's, according to a new study at the University of Maryland. This may prove to be an alternative for more
Cerelia
in
Cure Parkinson's
12 years ago
Interesting article “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?”
An interesting read: “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?” We have jointly written an article, now published in the influential medical journal 'Vaccine', exploring the critical role the patient groups play within the UK in the fight against meningitis. There
An interesting read: “Towards a Meningitis-free world, can we eliminate meningococcal meningitis?” We have jointly written an article, now published in the influential medical journal 'Vaccine', exploring the critical role the patient groups play within the UK in the fight against meningitis. There
ThomasMN
in
Meningitis Now
12 years ago
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Shingles And Meningitus!
My name is Ana and I am 50 year old English lass. I am currently working in Atlanta Georgia (USA). When I was back in England in march I had indigestion pains in my upper chest. They came and went. Then on April 13th I had a wee itch on my right shoulder blade. I thought it was a thread from my shirt
My name is Ana and I am 50 year old English lass. I am currently working in Atlanta Georgia (USA). When I was back in England in march I had indigestion pains in my upper chest. They came and went. Then on April 13th I had a wee itch on my right shoulder blade. I thought it was a thread from my shirt
Vespalover
in
Meningitis Now
12 years ago
We're urgently trying to raise awareness to those who don't know of this terrible disease.
Hi everyone, At the Meningitis Trust we urgently need help to raise vital awareness of meningitis. Would you be willing to share your story? We are concerned to find in a recent study that 5.3m adults in the UK cannot name a symptom of meningitis. Your stories cannot only help others who have
Hi everyone, At the Meningitis Trust we urgently need help to raise vital awareness of meningitis. Would you be willing to share your story? We are concerned to find in a recent study that 5.3m adults in the UK cannot name a symptom of meningitis. Your stories cannot only help others who have
EmilyMN
in
Meningitis Now
12 years ago
Do people successfully return to work following Bacterial Meningitis?
It is a tough world out there to find work. And I guess for us with residual damage from the meningitis to return to employment is also limited or not possible. I am wondering if many people post Bacterial Meningitis successfully return to work or find alternative employment and successfully manage to
It is a tough world out there to find work. And I guess for us with residual damage from the meningitis to return to employment is also limited or not possible. I am wondering if many people post Bacterial Meningitis successfully return to work or find alternative employment and successfully manage to
StrawberryCream
in
Meningitis Now
12 years ago
A good day so far?
I've managed to go shopping with my partner! (Hooray!) To be honest though, I only made the entrance to Morrisons but I managed Asda Living, Tescos, Farm Foods and Home Bargains. Started in Farm Foods, and I was dizzy but kept doing my deep breaths, pulse was a bit fast. Managed to get around
I've managed to go shopping with my partner! (Hooray!) To be honest though, I only made the entrance to Morrisons but I managed Asda Living, Tescos, Farm Foods and Home Bargains. Started in Farm Foods, and I was dizzy but kept doing my deep breaths, pulse was a bit fast. Managed to get around
davjon
in
Anxiety Support
12 years ago
Have you had viral meningitis? Article on VM is on meningitis research foundation website today.
Thought this might interest folks.
Thought this might interest folks.
daffodil
in
Meningitis Now
12 years ago
Just a quick update
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Do my symptoms sound like it could be APLS? Just sent bloodwork in. Trying to figure out what has been wrong with me for over 3 years!
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
Tighidden
in
Hughes Syndrome APS Forum
13 years ago
Poem No. 3
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
FifteenyearsPD
in
Cure Parkinson's
13 years ago
Newbie w/DBS
I'm not a newbie to PD, buy this is my first day (and first post) on this site.. I've was diagnosed w/PD about 15yrs ago, but, gratefully, it progressed very slowly... until about 3 yrs ago when I went downhill at an alarming rate. I had DBS surgery in 2009 and would be happy to share my experience
I'm not a newbie to PD, buy this is my first day (and first post) on this site.. I've was diagnosed w/PD about 15yrs ago, but, gratefully, it progressed very slowly... until about 3 yrs ago when I went downhill at an alarming rate. I had DBS surgery in 2009 and would be happy to share my experience
Thumbpick
in
Cure Parkinson's
13 years ago
My Experience With Deep Brain Stimulation
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
jeffjennings
in
Cure Parkinson's
13 years ago
DBS HORRIBLE SENSATION(further)FITTED2004, LIKE ELECTROCUTED, and I WAS REJECTED AS A TRIALIST BECAUSE OF DBS, IS THAT UNFAIR OR WHAT?
professor
in
Cure Parkinson's
12 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
13 years ago
Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
Captsteve
in
Cure Parkinson's
13 years ago
Something new
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
DANIEL
in
Cure Parkinson's
13 years ago
Is it really a disease?
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
dalo
in
Cure Parkinson's
13 years ago
Happy days ... re-implantation date in site
I can't remeber if I shared my story with this forum or not so to offset my absent mind here is the short version. I am 36 now. Symptoms started at 30, with Dx at 32 (my better half corrected me). C/L-Dopa etc was working ok until mid-2010 when it kept switching off on me. I was upto ~9 sinimet /day
I can't remeber if I shared my story with this forum or not so to offset my absent mind here is the short version. I am 36 now. Symptoms started at 30, with Dx at 32 (my better half corrected me). C/L-Dopa etc was working ok until mid-2010 when it kept switching off on me. I was upto ~9 sinimet /day
NoSringsAussie
in
Cure Parkinson's
13 years ago
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