Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,944 public posts
Filter results
Gonna Do DBS in September (I think)
With a lot of encouragement and offers of care and assistance from my soon-to-be ex-wife, my sisters, my brothers, and more than a few doctors, I've decided to undergo DBS surgery in September. And as I sit here in my hot, dirty little apartment, hungry and bored kittens swatting my ankles as I shuffle
With a lot of encouragement and offers of care and assistance from my soon-to-be ex-wife, my sisters, my brothers, and more than a few doctors, I've decided to undergo DBS surgery in September. And as I sit here in my hot, dirty little apartment, hungry and bored kittens swatting my ankles as I shuffle
MichaelOM
in
Cure Parkinson's
12 years ago
HAS ANY ONE CHALLENGE YOUR RITE TO MORE L-DOPA ?
I uses to take 40 L-dopa 125mg tablets a day .Then i got bad dyskinsia which I don't want again. Since then I had the DBS op after the op. I cut the L-dopa to 16 my self and I was very happy with my lot . THEN MY OLD NEURO CUT ME DOWN to 4 L-dopa 62.5mg i said no way could i manage . After 8 weeks
I uses to take 40 L-dopa 125mg tablets a day .Then i got bad dyskinsia which I don't want again. Since then I had the DBS op after the op. I cut the L-dopa to 16 my self and I was very happy with my lot . THEN MY OLD NEURO CUT ME DOWN to 4 L-dopa 62.5mg i said no way could i manage . After 8 weeks
export
in
Cure Parkinson's
12 years ago
Thunderstorms and Parkinsons
I had noticed when thunderstorm are in the area or striking,Having the feeling of a off time or just not feeling well,I had post this on similar site like this for question and answer for parkinsons.I thought i would get negative responces from people,But I really do feel sick with thunderstroms and
I had noticed when thunderstorm are in the area or striking,Having the feeling of a off time or just not feeling well,I had post this on similar site like this for question and answer for parkinsons.I thought i would get negative responces from people,But I really do feel sick with thunderstroms and
caseyjones
in
Cure Parkinson's
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
post DBS
Several months have passed since I had deep stimulation of my brain. I ‘ve lost some in my speech but overall big improvements have been my gain. I can walk – almost run- like I have not been able to do in quite a few years, I am not freezing, stumbling, have no back aches and very few falling
Several months have passed since I had deep stimulation of my brain. I ‘ve lost some in my speech but overall big improvements have been my gain. I can walk – almost run- like I have not been able to do in quite a few years, I am not freezing, stumbling, have no back aches and very few falling
FifteenyearsPD
in
Cure Parkinson's
12 years ago
DBS adjusted as I had a spell in the doctor office
I must tell my good news, I have been having terriable freezing problems. SO upsetting . I saw my doctor and had a big spell in her office, as she adjusted the implants I gelt my right arm just unlock and i could raise it, then the left arm did the same thing, I have been spell free since 2 p.m yesterday
I must tell my good news, I have been having terriable freezing problems. SO upsetting . I saw my doctor and had a big spell in her office, as she adjusted the implants I gelt my right arm just unlock and i could raise it, then the left arm did the same thing, I have been spell free since 2 p.m yesterday
Kadie57
in
Cure Parkinson's
12 years ago
Had viral meningitis? Help us understand the real impact. Please take part in our survey >
We are conducting an online survey to find out more about viral meningitis and the impact it has on people’s lives. Calls to our helpline and experiences shared on health unlocked suggest that many people are experiencing long term problems after viral meningitis, but little is understood about it by
We are conducting an online survey to find out more about viral meningitis and the impact it has on people’s lives. Calls to our helpline and experiences shared on health unlocked suggest that many people are experiencing long term problems after viral meningitis, but little is understood about it by
ThomasMN
in
Meningitis Now
12 years ago
Is amitriptyline good to treat headaches after suffering from viral meningitis, as this is what has been prescribed to me by my GP.?
kirklington
in
Meningitis Now
12 years ago
Completely lost
Ok. So it's been a while since I last blogged How am I? crud! The doctors decided about 2 months ago that I have had Lyme disease for the last 4 years. So put on major anti bios and started getting better, although only a little. The doctors have now u turned and changed their mind. So now it feels
Ok. So it's been a while since I last blogged How am I? crud! The doctors decided about 2 months ago that I have had Lyme disease for the last 4 years. So put on major anti bios and started getting better, although only a little. The doctors have now u turned and changed their mind. So now it feels
fibrosam
in
Fibromyalgia Action UK
12 years ago
Mirapex 6 mg patch
Med problems can't get enough or the right combo to stop the freezing . I had DBS implants April 10 2012, yes it is still being adjusted I live 2 1/2 hrs. from the clinic and just started using a 6 mg patch I m fairly sure this is working because I know without my Mirapex I don't walk, then I take 2
Med problems can't get enough or the right combo to stop the freezing . I had DBS implants April 10 2012, yes it is still being adjusted I live 2 1/2 hrs. from the clinic and just started using a 6 mg patch I m fairly sure this is working because I know without my Mirapex I don't walk, then I take 2
Kadie57
in
Cure Parkinson's
12 years ago
The first step in the fight to ensure meningitis survivors are not suffering alone…
We have some good news to share with you today from the Trust - Young victims of meningitis have been recognised in a new quality standard for bacterial meningitis and meningococcal septicaemia, produced by the National Institute for Health and Clinical Excellence. The Meningitis Trust is committed
We have some good news to share with you today from the Trust - Young victims of meningitis have been recognised in a new quality standard for bacterial meningitis and meningococcal septicaemia, produced by the National Institute for Health and Clinical Excellence. The Meningitis Trust is committed
ThomasMN
in
Meningitis Now
12 years ago
Tinnitus! Anyone else developed tinnitus as a result of chemo?
I was warned that cisplatin could cause hearing damage and, true enough I developed tinnitus! It comes and goes but today it is bad!
I was warned that cisplatin could cause hearing damage and, true enough I developed tinnitus! It comes and goes but today it is bad!
MargaretJ
in
My Ovacome
12 years ago
I fall more now that I had DBS surgery
Every since the DBS I fall more, I m taking Carbadopa./ Leveadopa- reg and CR's Miripex reg and a CR. I m not sure what to think We having trouble find the right doasge with the meds and I am working weekly with the docotors I wondering if taking to much Mirapex could cause this?Wondering if anyone has
Every since the DBS I fall more, I m taking Carbadopa./ Leveadopa- reg and CR's Miripex reg and a CR. I m not sure what to think We having trouble find the right doasge with the meds and I am working weekly with the docotors I wondering if taking to much Mirapex could cause this?Wondering if anyone has
Kadie57
in
Cure Parkinson's
12 years ago
SWEATING A ROUND THE HEAD ?
HI I have started getting very sweaty a round my head . i was wondering if it my DBS ? your EXPORT
HI I have started getting very sweaty a round my head . i was wondering if it my DBS ? your EXPORT
export
in
Cure Parkinson's
12 years ago
follow up to DBS
It has been almost 3 months since I was "turned on" The difference is incredible. As my 5 year old granddaughter days - Mimi - "you are magical" On the other hand my 6 year old granddaughter asked me "how is your brain surgery going?" it tok me awhile to figure out that she though I had elected to
It has been almost 3 months since I was "turned on" The difference is incredible. As my 5 year old granddaughter days - Mimi - "you are magical" On the other hand my 6 year old granddaughter asked me "how is your brain surgery going?" it tok me awhile to figure out that she though I had elected to
FifteenyearsPD
in
Cure Parkinson's
12 years ago
I would like to know if anyone has had deep brain stimulation of the globus pallidus area instead of the subthalamic and results.
My doctors are recomending globus pallidus dbs for me to treat my parkinson's disease. I am 68 years old, and have tremors but no dyskinesias yet. I am on a lot of medication.
My doctors are recomending globus pallidus dbs for me to treat my parkinson's disease. I am 68 years old, and have tremors but no dyskinesias yet. I am on a lot of medication.
Jeanna
in
Cure Parkinson's
12 years ago
follow up to DBS
It has been almost 3 months since I was "turned on" The difference is incredible. As my 5 year old granddaughter days - Mimi - "you are magical" On the other hand my 6 year old granddaughter asked me "how is your brain surgery going?" it tok me awhile to figure out that she though I had elected to
It has been almost 3 months since I was "turned on" The difference is incredible. As my 5 year old granddaughter days - Mimi - "you are magical" On the other hand my 6 year old granddaughter asked me "how is your brain surgery going?" it tok me awhile to figure out that she though I had elected to
FifteenyearsPD
in
Cure Parkinson's
12 years ago
Has DBS helped your depression/anxiety?
If not have the antidepressants been helpful afterwards?
If not have the antidepressants been helpful afterwards?
etterus
in
Cure Parkinson's
12 years ago
Home made carbidopa-levodopa syrup
I had a hour long session with my MDS Neuro yesterday. The bulk of the time was discussing dbs. He did mention a technique of grinding up the c-l dopa and mixing with water making a syrup to be sipped through the day.... the idea is to smooth out the on off dyskinesias. Anybody try this?
I had a hour long session with my MDS Neuro yesterday. The bulk of the time was discussing dbs. He did mention a technique of grinding up the c-l dopa and mixing with water making a syrup to be sipped through the day.... the idea is to smooth out the on off dyskinesias. Anybody try this?
etterus
in
Cure Parkinson's
12 years ago
Anyone have dbs implants to treat parkison? ,
How do you regulate your meds and do you have freezing problems wirh your legs. I had surgry 4 10 2012 and have been told to hang in there the gift will be worth the confussion. I m so discourged.
How do you regulate your meds and do you have freezing problems wirh your legs. I had surgry 4 10 2012 and have been told to hang in there the gift will be worth the confussion. I m so discourged.
Kadie57
in
Cure Parkinson's
12 years ago
Has anyone on this website. who lives in United Kingdom had DBS
camper
in
Cure Parkinson's
12 years ago
1
...
92
93
94
...
98
Next page
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
797 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest