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Our Annual PD Symposium
Saturday was our Annual PD Symposium. The main topic of the day was surviving a hospital stay. We all know the best way is to stay out of one but there are times when it is unavoidable. All PD people received the Aware in Care Kits. They are black cases which contain an ID bracelet, Hospital Action Plan
Saturday was our Annual PD Symposium. The main topic of the day was surviving a hospital stay. We all know the best way is to stay out of one but there are times when it is unavoidable. All PD people received the Aware in Care Kits. They are black cases which contain an ID bracelet, Hospital Action Plan
wifeofparky
in
Cure Parkinson's
12 years ago
PARKINSONS CURE WHIT ,IM QUITE RAATTY LOOKING
FOR MANY YEARS PARKINSONS RESEARCH HAS PLAYED AT RESEARCHING,.NO SWEAT NO RUSH , NO HEAT TO GET A RESULT PARKINSONS RESEARCH EMPLOYS ALOT OF PEOPLE, BANG,, SUDDENLY A CURE, IS ANNOUNCED, LIKE THE HORMONE PUMP FROM BRISTOL UNIVERSITY, THEN IT WAS REVERSE GEAR THE HORMONE /DRUGSWERE WITHDRAWN
FOR MANY YEARS PARKINSONS RESEARCH HAS PLAYED AT RESEARCHING,.NO SWEAT NO RUSH , NO HEAT TO GET A RESULT PARKINSONS RESEARCH EMPLOYS ALOT OF PEOPLE, BANG,, SUDDENLY A CURE, IS ANNOUNCED, LIKE THE HORMONE PUMP FROM BRISTOL UNIVERSITY, THEN IT WAS REVERSE GEAR THE HORMONE /DRUGSWERE WITHDRAWN
professor
in
Cure Parkinson's
12 years ago
When to decide to get DBS ?
Hidden
in
Cure Parkinson's
13 years ago
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Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Finally joining the fight, a brief history of my life with parkinson's dbs before during and after
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Captsteve
in
Cure Parkinson's
13 years ago
Can PD symptoms remain on one side of the body?
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
jazzfan53
in
Cure Parkinson's
13 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
13 years ago
DBS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
paloma
in
Cure Parkinson's
13 years ago
When is it time to have DBS surgery?
merlethegirl
in
Cure Parkinson's
12 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
13 years ago
To have or to have not
I have had PD (diagnosised) since 2002. In 2004, I was so bad that I taught my self how to write lefthanded, I walked with a cane and my right side had constant tremors. In the summer of 2004, I started having complications from one of the many medications I was taking. So it was determined that I would
I have had PD (diagnosised) since 2002. In 2004, I was so bad that I taught my self how to write lefthanded, I walked with a cane and my right side had constant tremors. In the summer of 2004, I started having complications from one of the many medications I was taking. So it was determined that I would
Sadiesadie
in
Cure Parkinson's
13 years ago
Letting Go-The daughter of a Parkinson's patient urges her Dad not to give up.
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Maryt1967
in
Cure Parkinson's
13 years ago
HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
13 years ago
DBS
Dear forum members this was published in Lancet Neurology online this week. Lancet Neurol. 2012 Jan 10. [Epub ahead of print] Subthalamic deep brain stimulation with a constant-current device in Parkinson's disease: an open-label randomised controlled trial. Okun MS, Gallo BV, Mandybur G, Jagid
Dear forum members this was published in Lancet Neurology online this week. Lancet Neurol. 2012 Jan 10. [Epub ahead of print] Subthalamic deep brain stimulation with a constant-current device in Parkinson's disease: an open-label randomised controlled trial. Okun MS, Gallo BV, Mandybur G, Jagid
Hidden
in
Cure Parkinson's
13 years ago
When all you have is luck... but then you loose hope for luck
I am one of the lucky ones amongst us ... PWP... but I am stuck in a rut of depression I can't shake. Dx'd (diagnosed) when I was 30, married with 2 kids. At the time I was traveling the world and racing ahead in my career. I thought all was well. In 2003 I ran a marathon by 2006 and
I am one of the lucky ones amongst us ... PWP... but I am stuck in a rut of depression I can't shake. Dx'd (diagnosed) when I was 30, married with 2 kids. At the time I was traveling the world and racing ahead in my career. I thought all was well. In 2003 I ran a marathon by 2006 and
NoSringsAussie
in
Cure Parkinson's
13 years ago
Newly diagnosed and a concept called 48...
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
Hidden
in
Cure Parkinson's
13 years ago
Many pieces-no puzzle
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
paulaw
in
Cure Parkinson's
13 years ago
DBS Wires
Those with DBS, would you comment on your experiences with the leads--that is, do you feel them? do they interfere with any daily activity? Would you do it again?
Those with DBS, would you comment on your experiences with the leads--that is, do you feel them? do they interfere with any daily activity? Would you do it again?
Jash
in
Cure Parkinson's
12 years ago
DBS Programming Coming Up
I have doctors appt. on January 23 for DBS programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
I have doctors appt. on January 23 for DBS programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
jeffjennings
in
Cure Parkinson's
13 years ago
My DBS Story
How did it go? I'll tell you... After a 20 hour drive, we pulled in to Phoenix in time for my MRI. We thought, since we were about an hour early we'd check in first, but as we waited for the help desk in the hotel, we glanced at the clock and realized we were operating on Pacific time and my
How did it go? I'll tell you... After a 20 hour drive, we pulled in to Phoenix in time for my MRI. We thought, since we were about an hour early we'd check in first, but as we waited for the help desk in the hotel, we glanced at the clock and realized we were operating on Pacific time and my
SherriW
in
Cure Parkinson's
12 years ago
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