DBS adjusted as I had a spell in the doct... - Cure Parkinson's

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DBS adjusted as I had a spell in the doctor office

Kadie57 profile image
7 Replies

I must tell my good news, I have been having terriable freezing problems. SO upsetting . I saw my doctor and had a big spell in her office, as she adjusted the implants I gelt my right arm just unlock and i could raise it, then the left arm did the same thing, I have been spell free since 2 p.m yesterday I m almost afriaid to enjoy the fact that I feel really good!! I just thought it would be wonderful to put some good news out to you all. Have a wonderful day!!

KADIE

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Kadie57 profile image
Kadie57
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7 Replies
jupiterjane profile image
jupiterjane

Congrats Kadie! May each and every day ahead be "freeze free"!

etterus profile image
etterus

Thats GR8! How long ago did you get the dbs? How would you rate it?

Kadie57 profile image
Kadie57 in reply toetterus

I had dbs Apriil 10th 2012 it is like a switch was flipped and after 9 yrs I sropped shaking it was an awesome feeling the surgery was hard but you look towards the reward at the end. I have a a huge support team friends, family church, people who don't know me call just to encourage me after a news paper article came out.

Jash profile image
Jash

Awesome news. I was wondering about you after reading your earlier posts. I too had DBS surgery on June 15 -and the first programming on June 28. I know it's early in the game; and like you, I started issues I didnt have before-- like freezing. I was great when they finished programming the first time, but it went away after about 2 days. So happy for you and encouraged BY you. How long does it take to get your stamina back?

PatV profile image
PatV

Good to exhibit your worst symptoms in front of neuro!

Kadie57 profile image
Kadie57

I feel good but I m learning my meds all over again, seems trail and error could be a better way to figure this out, But I will take what I can and deal with rest. My eyes are an issue and I always think I spell thing correctly and i know i have looked right at a word, then when i re read what i wrote later there is the tpyo I really did not see it before. The stamina comes and goes I have found to much sleeping makes it worse so I make myslef get up if i had a bad med day it makes me tired i sleep you just need to find your way of doing things.

wifeofparky profile image
wifeofparky

How wonderful! I'm glad they could see your freezing episode. It is a lot easier to adjust when you are having the symptoms than guessing. I pray for continued success.

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