I need help and answers on meningitis pleas... - Meningitis Now

Meningitis Now
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I need help and answers on meningitis please!!!!

Isoke
Isoke

Hi my baby has meningitis and has been hospitalized for a week and two days now...she is eating and drinking but refuses to move her body and always cries out for pain in her feet anytime its touched or moved...how long does it take to recover from meningitis when will she be able to sit up and move again any answer? This has me so depressed

14 Replies
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I'm so sorry you all are dealing with this horrible illness! .. my experience is with Viral Meningitis that I got September 2019 (was hospitalized for 5 days). Just now, after a second opinion with a neurologist have I gotten some answers on lingering pain from VM. So, 6 months out and I still have neck pain, migraines, sometimes joint pain, dizziness, fatigue.... of course I'm 32 and little kids tend to recover quicker from certain things. But lots of patience and prayer ... has helped me through this. Like I said, I've been in constant pain since September 2019 since the VM so I can't imagine how a bacterial version recovery would be... just keep fighting for your baby and to get answers! Ask ask ask, and realize sometimes they won't have an answer, but keep asking ...

I prayed for you, your baby and your family.

Isoke
Isoke
in reply to Eli_Acct

Hi well my baby is 1yr and five months she's in the hospital 8 days now and she refuses to sit up and move her legs why is that is meningitis painful in the body

Eli_Acct
Eli_Acct
in reply to Isoke

Personally, with VM I was fatigued beyond belief. Also, massive headache and light sensitivity. My body joints hurt all over after meningitis... I was in the hospital 5 days and even when they released me I just stayed in bed for days.

euagelia
euagelia
in reply to Isoke

Yes, meningitis is painful for the body because the main part that aggects is the brain. So yes your daughter might feel pain, or might feel that she cant control her legs or other parts of her body. The fact is that noone can tell you when and how all this will end up. Take it step by step. As soon as the antiviotics finish their job(to kill tje bacteria that caused meningitis) then a big road begins for you and your baby. Mri, neurologist, eye tests, Hearing tests, physiotherapist and speech therapist evaluations... All according to mri findings and according to the picture that she has comparing before she got meningitis. Be strong and read, read read and ask ask ask for as muxj info you need to ask what is best for your child. Listen to doctors and listen to your child and listen to your enstinct asna mother. I hope your child is as lucky as mine and come out of this with little impact on her...

euagelia
euagelia
in reply to Isoke

Yes, meningitis is painful for the body because the main part that aggects is the brain. So yes your daughter might feel pain, or might feel that she cant control her legs or other parts of her body. The fact is that noone can tell you when and how all this will end up. Take it step by step. As soon as the antiviotics finish their job(to kill tje bacteria that caused meningitis) then a big road begins for you and your baby. Mri, neurologist, eye tests, Hearing tests, physiotherapist and speech therapist evaluations... All according to mri findings and according to the picture that she has comparing before she got meningitis. Be strong and read, read read and ask ask ask for as muxj info you need to ask what is best for your child. Listen to doctors and listen to your child and listen to your enstinct asna mother. I hope your child is as lucky as mine and come out of this with little impact on her...

Isoke
Isoke
in reply to euagelia

Thanks alot that gives me alot of comfort

I am so sorry your baby got meningitis. Must be so absolutely scary for you. If your baby felt anything like I did, you are extremely weak and have a very big headache. You can barely move. I still get fatigued but am doing much better now. Don't expect too much from your baby just yet, it's very early days. The nerves in her legs are most probably affected and inflamed too. Time will reveal all. Keep asking the Drs questions and keep seeking for support for your baby. Sending you a very big hug and a reminder that you must look after yourself too. Take care. <3

Isoke
Isoke
in reply to menchild

Thanks alot...everytime she is sleeping she cries out for pain but how long does it take to over one come all this.

menchild
menchild
in reply to Isoke

Recovery time is different for everyone. No one can predict how long. PLEASE speak to Drs about better pain management for yr baby. It took a couple of months before my headaches eased. However I am 63 yrs age and babies and children bounce back much faster. I personally chose natural therapists to help me as Drs didnt have answers. Craniosacral massage helped a LOT after I left hospital and finished antibiotics. If yr baby has bacterial meningitis the antibiotics wd be making them miserable. I have regular Bowen therapy every 2 weeks or so now and that has been a lifesaver. I finally return to my part time job today on half days to begin. I am 6 months post bacterial meningitis and septicemia.

Isoke
Isoke
in reply to menchild

Well she had done a brain surgery she had Hydrocephalus also and it's so frustrating and painful just watching her lying in pain do you have a contact number

Isoke
Isoke
in reply to Isoke

Since after her antibiotics half of her body isnt moving as well and her head leans on one side why is that and how can I treat it

Bless your little baby. It’s so worrying as a parent having to see your child so poorly. My 14 year old is 3 weeks post Meningitis B. She was Very poorly hospitalised etc.... She still experiences dizziness, photphobia, memory loss , tiredness and weakness,. We are seeing small improvements each day however, with other usual childhood conditions kids usually recover within a few days, this is certainly not the case with Meningitis it’s a slow recovery and we have had to be patient, she has good days and bad days. Don’t worry it will take time. Just loads of TLC and patience.

first u should tell whether it is viral meningitis or bacterial meningitis

The doctor here doesn't even know

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