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Brain arteriovenous malformation (AVM)
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Huge win for me
After DBS i called my wife into the bathroom...she said what? I said look... she said WHAT?? I said I am peeing standing up again!! We laughed :) but that is actually a big deal for guy with PD
After DBS i called my wife into the bathroom...she said what? I said look... she said WHAT?? I said I am peeing standing up again!! We laughed :) but that is actually a big deal for guy with PD
JeffroC
in
Cure Parkinson's
4 years ago
My experience with DBS (Deep Brain Stimulation) Surgery
First, a little about me. I am 47 years old and was diagnosed early onset PD at 35 or so. I grew up on a farm in a small town in central FL. I played sports my whole life. Baseball, Wrestling, Softball, and even a little football. I married my high school sweetheart, have a great job, and two sons
First, a little about me. I am 47 years old and was diagnosed early onset PD at 35 or so. I grew up on a farm in a small town in central FL. I played sports my whole life. Baseball, Wrestling, Softball, and even a little football. I married my high school sweetheart, have a great job, and two sons
JeffroC
in
Cure Parkinson's
4 years ago
FDA Approves Medtronic’s Percept PC Deep Brain Stimulation System
https://parkinsonsnewstoday.com/2020/07/02/fda-approves-medtronic-percept-pc-deep-brain-stimulation-system-for-parkinsons/ 'While this device is the fourth deep brain stimulation (DBS) system to be approved in the U.S., it is the first system able to sense and record brain signals while therapy is delivered
https://parkinsonsnewstoday.com/2020/07/02/fda-approves-medtronic-percept-pc-deep-brain-stimulation-system-for-parkinsons/ 'While this device is the fourth deep brain stimulation (DBS) system to be approved in the U.S., it is the first system able to sense and record brain signals while therapy is delivered
pvw2
in
Cure Parkinson's
4 years ago
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Study: Deep brain stimulation may slow Parkinson's disease
OK, here is a reason to get DBS without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
OK, here is a reason to get DBS without waiting until meds don't work. https://www.upi.com/Health_News/2020/07/01/Study-Deep-brain-stimulation-may-slow-Parkinsons-disease/6891593556182/
pvw2
in
Cure Parkinson's
4 years ago
Tumor stress
I can’t get out of my head that I have a tumor. I have body twitches constantly. In my face, arms, legs. Just discovered that if I press on a certain part of my lip, it’ll hurt my head past my temple, like nerve damage? I haven’t had any issues. I get headaches like I’ve had them the last 5 years. But
I can’t get out of my head that I have a tumor. I have body twitches constantly. In my face, arms, legs. Just discovered that if I press on a certain part of my lip, it’ll hurt my head past my temple, like nerve damage? I haven’t had any issues. I get headaches like I’ve had them the last 5 years. But
DoggieLoverbon
in
Anxiety Support
4 years ago
So I finished the book...
I didn't know what to expect, maybe a primer on running and PD. Lots of aphorisms similar to Just Do It and Git 'er Done. Learned that standing is more difficult than running because it uses more dopamine. And Steve Evans was the first marathon finisher to have had DBS treatment. He finished
I didn't know what to expect, maybe a primer on running and PD. Lots of aphorisms similar to Just Do It and Git 'er Done. Learned that standing is more difficult than running because it uses more dopamine. And Steve Evans was the first marathon finisher to have had DBS treatment. He finished
kaypeeoh
in
Cure Parkinson's
4 years ago
Hi, has anyone had orbital decompression surgery
Hi everyone, I had orbital decompression 2 years ago and I still have numbness on both sides of my face, my eyes still wobble as I eat and they've become increasingly sensitive to light and I often feel as though I have something stuck in my eye (like a hair) but the reality is, there is nothing there
Hi everyone, I had orbital decompression 2 years ago and I still have numbness on both sides of my face, my eyes still wobble as I eat and they've become increasingly sensitive to light and I often feel as though I have something stuck in my eye (like a hair) but the reality is, there is nothing there
Sejem
in
Thyroid UK
4 years ago
Fighting as much as I can
For the past couple of days, I have been determined to flip the script. Instead of assuming the absolute worst about any weird things in my body, I choose to think the absolute best. It has been going well honestly. But tonight I got/have this awful headache. Which because I have a fear that I have
For the past couple of days, I have been determined to flip the script. Instead of assuming the absolute worst about any weird things in my body, I choose to think the absolute best. It has been going well honestly. But tonight I got/have this awful headache. Which because I have a fear that I have
Islande_King
in
Anxiety Support
4 years ago
Shingles and cll
I have been on ibrutinib since aug 2019 and now that things have opened up a bit my sister was going to come for a visit. Only problem is she now has shingles. If we eat outside and she uses the downstairs washroom are we ok? I have had the shingles vacine...but then again so has she and got it anyway
I have been on ibrutinib since aug 2019 and now that things have opened up a bit my sister was going to come for a visit. Only problem is she now has shingles. If we eat outside and she uses the downstairs washroom are we ok? I have had the shingles vacine...but then again so has she and got it anyway
Imbub
in
CLL Support
4 years ago
Rice researchers create tiny, magnetically-powered neural stimulator
It seems this could improve DBS. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
It seems this could improve DBS. https://www.news-medical.net/news/20200608/Rice-researchers-create-tiny-magnetically-powered-neural-stimulator.aspx
pvw2
in
Cure Parkinson's
4 years ago
Ticks/Lyme disease and hypothyroidism
I have just removed two ticks, two others broke off and the mouth part remains stuck in me. I have seen things on here before about ticks in relation to thyroid, but have never read them because I’ve never had one attached before. I presume I need to see a nurse to get the remains removed? Will it be
I have just removed two ticks, two others broke off and the mouth part remains stuck in me. I have seen things on here before about ticks in relation to thyroid, but have never read them because I’ve never had one attached before. I presume I need to see a nurse to get the remains removed? Will it be
CornishChick
in
Thyroid UK
4 years ago
Anxiety. I'm taking this win.
For the past five days, I've had this fear that I have a brain tumor, due to bad headaches after I had a cold and neck pains. Today, depsite being much better, the headaches seemed to have moved to the front of my head and I feel a little weak and nauseous. I don't if I do or do not have a brain tumor
For the past five days, I've had this fear that I have a brain tumor, due to bad headaches after I had a cold and neck pains. Today, depsite being much better, the headaches seemed to have moved to the front of my head and I feel a little weak and nauseous. I don't if I do or do not have a brain tumor
Islande_King
in
Anxiety Support
4 years ago
Anxiety Spiraling Out of Control
Shakiness. Nausea. Trouble breathing from the noment I open my eyes to the moment I go to sleep. It feels like I’m drowning, despite my oxygen saturation reading 100% on my oximeter. I wake up and the feeling is immediately there with me. Lungs feeling tight, chest heavy and sore, throat closing sensation
Shakiness. Nausea. Trouble breathing from the noment I open my eyes to the moment I go to sleep. It feels like I’m drowning, despite my oxygen saturation reading 100% on my oximeter. I wake up and the feeling is immediately there with me. Lungs feeling tight, chest heavy and sore, throat closing sensation
toast122
in
Anxiety Support
4 years ago
Anxiety or a brain tumor?
Hey, I’ve posted here before, I’ve been struggling with strange symptoms for almost 3 weeks, but it seems to get worse, For the last two days I’ve had this headache that wont stop, I have moments when I feel like I’m collapsing, Nausea sometimes... I’m just scared
Hey, I’ve posted here before, I’ve been struggling with strange symptoms for almost 3 weeks, but it seems to get worse, For the last two days I’ve had this headache that wont stop, I have moments when I feel like I’m collapsing, Nausea sometimes... I’m just scared
Barakbet
in
Anxiety Support
4 years ago
I wanna live bro.
This probably sounds narcisistic as hell. But 2020 was going to be my year. I had soo much plans of how I was gonna blossom and relaunch myself and then boom. Corona. So now I can't do all the amazing things I'd planned. Now, I'm terrified I have a brain tumor. I have struggled with headaches all my
This probably sounds narcisistic as hell. But 2020 was going to be my year. I had soo much plans of how I was gonna blossom and relaunch myself and then boom. Corona. So now I can't do all the amazing things I'd planned. Now, I'm terrified I have a brain tumor. I have struggled with headaches all my
Islande_King
in
Anxiety Support
4 years ago
Is there a limit on Dopaboost intake?
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
My dad is on a surgery waitlist for DBS here in Canada (probably next year) and we could potentially do FUS in Switzerland... But in the meantime, we have been trying to figure out the best dopamine sources to help him on the daily. Mucuna is much more effective than his Sinemet, which barely works anymore
pdkid
in
Cure Parkinson's
4 years ago
Sand volleyball after DBS
Does anyone play sand volleyball after having DBS? My programming nurse said I should be fine to play...I had DBS in October/November 2019. I guess I'm concerned about getting hit in the battery.
Does anyone play sand volleyball after having DBS? My programming nurse said I should be fine to play...I had DBS in October/November 2019. I guess I'm concerned about getting hit in the battery.
Jlloy5
in
Cure Parkinson's
4 years ago
Immune System Discovery Could End Chronic Organ Rejection.
Chronic rejection of transplanted organs is the leading cause of transplant failure, and one that the field of organ transplantation has not overcome in almost six decades since the advent of immunosuppressive drugs enabled the field to flourish. Now, a new discovery led by researchers at the University
Chronic rejection of transplanted organs is the leading cause of transplant failure, and one that the field of organ transplantation has not overcome in almost six decades since the advent of immunosuppressive drugs enabled the field to flourish. Now, a new discovery led by researchers at the University
2greys
in
Lung Conditions Community Forum
4 years ago
Scared of having brain tumor
Hey there:), I’m 17 years old, and for about a week and a half I’m suffering some really bad dizziness, unbalanced walking, and nausea. I’m really scared that it’s a brain tumour, Also I suffer from severe anxiety for about a 4 years, lately I had panic attacks that last for all day, and I’ve even developed
Hey there:), I’m 17 years old, and for about a week and a half I’m suffering some really bad dizziness, unbalanced walking, and nausea. I’m really scared that it’s a brain tumour, Also I suffer from severe anxiety for about a 4 years, lately I had panic attacks that last for all day, and I’ve even developed
Barakbet
in
Anxiety Support
4 years ago
New to all this
Hi, I start chemo next week after being diagnosed two weeks ago with peritoneum cancer. I suppose I’m still in shock, I didn’t even know what a peritoneum was until that point and now it seems to have taken over my life!! I feel like I need to get prepared, by a wig, at least get my hair cut short or
Hi, I start chemo next week after being diagnosed two weeks ago with peritoneum cancer. I suppose I’m still in shock, I didn’t even know what a peritoneum was until that point and now it seems to have taken over my life!! I feel like I need to get prepared, by a wig, at least get my hair cut short or
Farawla
in
My Ovacome
4 years ago
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