Experiences with

Bladder conditions

not yet tested for prostate cancer (I think) but still… “But two years after starting a treatment regimen that combined ruxolitinib with the checkpoint inhibitor nivolumab—a current standard of care—87% of patients were still alive, and 46% stopped exhibiting signs of cancer progression altogether.”

Hi all,I've been taking 1,sometimes 2 laxido sachets daily for the past 3 months and this has helped.My gastroenteritis has suggested swapping for prucalopride 1mg but this gives me all day stomach ache.My question is,is laxido safe to use daily long term?

I just updated my Bio and just received my PSMA Gallium scan results. Appointment is tomorrow to review but from what I see even with a low PSA of 0.052 a lymph node lit up which is rare. Is this correct and given this my guess SOC is whole pelvic adjuvant radiation and higher dose to lymph nodes or?

Afternoon fellow warriors, after a recent Pet scan they have found 2 spots one on my upper spine and the other on my neck.My Oncologist is worried having radiotherapy on my neck maybe to close to the spinal cord should I be worried that this is the case. She is suggesting I just move into a different

Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually

Since my horrific experience of urinary sepsis I am understandably concerned that it could return, to that end I am neurotically testing it with a dip stick. No infection as yet however I am not convinced that the bladder sedative I was prescribed Solifenacin 5mgs, is doing anything. Does anyone else

I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation

Hi everyone, I had surgery (ovarian cystectomy & excision of endometriosis) on 18/02/24 One of my wounds seems to be open. I feel ‘fobbed off’ by doctors who state it will close on its own. Did anyone else’s incisions look like this? Did they heal okay? Also, my belly button scab has now fallen

I had a terrible flare up about 5 years ago. I was put on a biologic , which was like a miracle. I had to stop this in May as I have bladder cancer it is now October and I havnt been out of the house for 3 weeks so much pain in shoulders neck and hands. I’ve take paracetamol and ibrufen but nothing

My plan is to have salvage brachytherapy or cryotherapy. The thing is these treatments will take time to be scheduled, especially brachytherapy as this would be with Dr Zelefsky in New York and I don’t have an interview with him until Nov 19. I meet with my urologist on Oct 29 to go over the recent

For those who have yet to be treated, are considering RT (vs surgery), and are getting treatment at a center with both IMRT and Proton Beam capabilities. * * * [u][i]Quality of Life Similar With Proton Beam Therapy vs IMRT for Prostate Cancer[/i][/u][i] — "It really shows us that we have

Hi everyone, I have a question for Sue and Jools as just left Doctors and wanted to check if the meds she's given me will be OK to take with RLS. I have had no choice but to go back on some tablets nd increase one, but have told her I did not want Statins again, she has given me Fenofibrate 200mg daily

Bit strange to post this here but bear with me please. It seems that many of the med's for OAB have a side effect of high heart rate. I've been diagnosed with Paroxysmal Tachycardia and am trying Tolterodine for my OAB (which increased my comfort level considerably) but have had to stop as my monthly

Radiation therapy is commonly used in the treatment of prostate cancer, but it is a carcinogen itself. Five years ago before my radiation no one told me about the risk of radiation-associated rectal cancer (RARC) . Those of us who have had EBRT have an additional problem in treatment if we get rectal

Basically, even if there was a prolonged progression-free survival, OS was not statistically different in the two arms. BUT a strong survival advantage was seen in patients with liver metastasis! https://www.urotoday.com/conference-highlights/esmo-2024/esmo-2024-prostate-cancer/154863-esmo-2024-cabozantinib-plus-atezolizumab-versus

Only an invitro study but Hemin is already used to treat acute porphyria. “Given that hemin has been safely administered as a daily infusion at doses ranging from 1 to 4 mg/kg for 3 to 14 days in the treatment of porphyria [32], it holds significant promise for drug development.” Anticancer Effect of

When my urologist did my biopsy he also removed bladder stones by breaking them in pieces and retrieving them thru my supra pubic catheter portal. Unfortunately all of them could not be be retrieved and they moved down my urethra to the point where the enlarged prostate pinched off urine flow. They

Hi all,I would really appreciate some support and guidance as I have a hypertonic pelvic floor muscle (for about 8-9 years). I have tried many approaches over the years but recently return to focus on physiotherapy and dilator stretches - on an intensive approach this time- completing a passive stretch

FK-PC101, another step in the right direction it seems! https://www.prnewswire.com/news-releases/cellvax-therapeutics-announces-fda-clearance-of-ind-application-for-fk-pc101-a-novel-personalized-cancer-immunotherapy-302046986.html

Hello community - hoping for some guidance post-Lutetium + Olaparib for my dad, which hasn't been working and has been extremely hard on his body (has needed blood transfusions practically every other week) and his markers are all going up. This is a rather long summary but grateful for any thoughts/