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Experiences with
Biliary atresia
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kasai procedure
Hi All, My 6 weeks daughter has done kasai procedure due to
biliary
atresia
. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
Hi All, My 6 weeks daughter has done kasai procedure due to
biliary
atresia
. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
kamranzaheer
in
Children's Liver Disease Foundation
6 years ago
Biliary atresia
My daughter is diagnosed with
biliary
atresia
when she was 8 weeks ( 9th July 2018 )old . Doctor has suggested the Kasai operation on 14th August. Earlier her bilirubin was 12 but now it is 7.5 . Doctor informed us success rate of this procedure is only 30%. I am very anxious .
My daughter is diagnosed with
biliary
atresia
when she was 8 weeks ( 9th July 2018 )old . Doctor has suggested the Kasai operation on 14th August. Earlier her bilirubin was 12 but now it is 7.5 . Doctor informed us success rate of this procedure is only 30%. I am very anxious .
Dharmprakash
in
Children's Liver Disease Foundation
6 years ago
Biliary Atresia- Kasai
Hi, my daughter was diagnosed with BA at 6+ weeks & had the Kasai procedure done at 7+ weeks. We have been in the hospital now 2+ weeks post op. Her liver labs do look better, more color in the poop too... greenish yellow, more or less but never acholic. A major concern is the fluid draining out of
Hi, my daughter was diagnosed with BA at 6+ weeks & had the Kasai procedure done at 7+ weeks. We have been in the hospital now 2+ weeks post op. Her liver labs do look better, more color in the poop too... greenish yellow, more or less but never acholic. A major concern is the fluid draining out of
Pencek
in
Children's Liver Disease Foundation
6 years ago
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Biliary Atresia 10 month Update
I was lead to this website when my son was first diagnosed with
Biliary
Atresia
at around 2 months of age. I asked questions on here and received tons of support from those who's children were in the same boat as mine.
I was lead to this website when my son was first diagnosed with
Biliary
Atresia
at around 2 months of age. I asked questions on here and received tons of support from those who's children were in the same boat as mine.
Leef
in
Children's Liver Disease Foundation
6 years ago
biliary atresia
Good morning, my son has been diagnosed with
biliary
atresia
, but his diapers have green poop, what are the reasons for the color of these poop? What can give this color to the poop beyond bile liquid?
Good morning, my son has been diagnosed with
biliary
atresia
, but his diapers have green poop, what are the reasons for the color of these poop? What can give this color to the poop beyond bile liquid?
FabioAveiro
in
Children's Liver Disease Foundation
6 years ago
Help needed
My daughter was born with
biliary
atresia
. She had a kasai surgery after 10 days of birth. She became fine and she's about 13 months now and she's having constant fever. I don't know what to do. She has been on IV for the past 10 days but still having this high fever.
My daughter was born with
biliary
atresia
. She had a kasai surgery after 10 days of birth. She became fine and she's about 13 months now and she's having constant fever. I don't know what to do. She has been on IV for the past 10 days but still having this high fever.
Jonesogb
in
Children's Liver Disease Foundation
6 years ago
Liver Functions Test Are Out Of Range
Hi Everyone My daughter is 16 years old and was diagnosed with
Biliary
Atresia
as a baby unfortunately the Kasai Portoenterostomy was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004.
Hi Everyone My daughter is 16 years old and was diagnosed with
Biliary
Atresia
as a baby unfortunately the Kasai Portoenterostomy was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004.
Passion123456
in
Children's Liver Disease Foundation
6 years ago
Weaning to solid foods
My baby has
Biliary
Atresia
and has started on baby food, is their anything that should not be given to her or is not good for the liver. I've read that as long as it's a balanced diet it should be OK but just thought I'd check.
My baby has
Biliary
Atresia
and has started on baby food, is their anything that should not be given to her or is not good for the liver. I've read that as long as it's a balanced diet it should be OK but just thought I'd check.
DanielleWhitfield4
in
Children's Liver Disease Foundation
6 years ago
Miracle baby with BA
3 weeks ago today my baby boy was diagnosed with
biliary
atresia
where the Kasai was performed. He was 10wks of age at the time of surgery. Before his diagnosis, my family and I had never heard of BA.
3 weeks ago today my baby boy was diagnosed with
biliary
atresia
where the Kasai was performed. He was 10wks of age at the time of surgery. Before his diagnosis, my family and I had never heard of BA.
Heyladydee
in
Children's Liver Disease Foundation
6 years ago
Elevated direct bilirubin and liver enzymes
They were convinced it was
biliary
atresia
and preparing us for that. After 11 days in the hospital ruling out test after test and eventually needing to opening my baby up to finally give us the news that is is not billiary atresia .
They were convinced it was
biliary
atresia
and preparing us for that. After 11 days in the hospital ruling out test after test and eventually needing to opening my baby up to finally give us the news that is is not billiary atresia .
Bartontif
in
Children's Liver Disease Foundation
6 years ago
Post biliary atresia
My baby done with kasai surgery at 76 days, dose anyone here same as my bby?
My baby done with kasai surgery at 76 days, dose anyone here same as my bby?
Yuie
in
Children's Liver Disease Foundation
6 years ago
Biliary atresia
My son has
biliary
atresia
. Had the Kasai procedure at 6 weeks old. He’s now 9 weeks old and his bilirubin level is still elevated. It’s higher than it was before the surgery. He completed 2 different antibiotic but it keeps going up.
My son has
biliary
atresia
. Had the Kasai procedure at 6 weeks old. He’s now 9 weeks old and his bilirubin level is still elevated. It’s higher than it was before the surgery. He completed 2 different antibiotic but it keeps going up.
Jmom17
in
Children's Liver Disease Foundation
7 years ago
BA - Kasai Procedure at age of 10 Weeks
Hello im from Pakistan and my first son/baby has liver issue
Biliary
Atresia
. Doctors has done kasai procedure at age of 2 Months and 15 days almost at age of 10 weeks.
Hello im from Pakistan and my first son/baby has liver issue
Biliary
Atresia
. Doctors has done kasai procedure at age of 2 Months and 15 days almost at age of 10 weeks.
NafeesEU
in
Children's Liver Disease Foundation
6 years ago
Biliary atresia
My baby was diagnosed with BA at 2 Months. We are a week post kasai and bili levels are higher than before surgery. Has any one had experience with this and not needed a liver transplant?
My baby was diagnosed with BA at 2 Months. We are a week post kasai and bili levels are higher than before surgery. Has any one had experience with this and not needed a liver transplant?
Leef
in
Children's Liver Disease Foundation
7 years ago
Biliary Atresia
Hi my son will be 18 years old next month. He had a dx of BA and had a kasai at 8 weeks. Was hospitalized 13 separate times before the age of 2 for cholangitis. After that he has thrived, is 6 ft and 145#, but last week was in patient for 5 days with cholangitis and home now with IV Antibiotics for 2
Hi my son will be 18 years old next month. He had a dx of BA and had a kasai at 8 weeks. Was hospitalized 13 separate times before the age of 2 for cholangitis. After that he has thrived, is 6 ft and 145#, but last week was in patient for 5 days with cholangitis and home now with IV Antibiotics for 2
Cmjohnson
in
Children's Liver Disease Foundation
7 years ago
Biliary atresia
Hello, my daughter is 11 weeks old and was just diagnosed with
Biliary
Atresia
... she was admitted into the hospital last night, and is scheduled for surgery today. First a colangeogram, followed by the Kasai. I am a total mess and just was looking for some words of encouragement.
Hello, my daughter is 11 weeks old and was just diagnosed with
Biliary
Atresia
... she was admitted into the hospital last night, and is scheduled for surgery today. First a colangeogram, followed by the Kasai. I am a total mess and just was looking for some words of encouragement.
Ktinsley90
in
Children's Liver Disease Foundation
7 years ago
Liver fibrosis biliary atresia
We just got biopsy back and were told he has stage two fibrosis anyone have any experience with this or can explain? He is one month now and one week post kasai
We just got biopsy back and were told he has stage two fibrosis anyone have any experience with this or can explain? He is one month now and one week post kasai
SethB21
in
Children's Liver Disease Foundation
7 years ago
Biliary atresia at 70 days
We came to know it's
biliary
atresia
and surgery was done at 67th day at chennai, India. After that we had several admission for cholangitis for almost 5 months and her direct bili came to .6.
We came to know it's
biliary
atresia
and surgery was done at 67th day at chennai, India. After that we had several admission for cholangitis for almost 5 months and her direct bili came to .6.
Dineshbatt
in
Children's Liver Disease Foundation
7 years ago
A little bit of hope
I believe my drive and determination has all stemmed from my diagnosis and if harnessed properly, there are no reasons whatsoever that any child diagnosed with
Biliary
Atresia
could not exceed their objectives both health wise and in their personal lives.
I believe my drive and determination has all stemmed from my diagnosis and if harnessed properly, there are no reasons whatsoever that any child diagnosed with
Biliary
Atresia
could not exceed their objectives both health wise and in their personal lives.
Jbuck1002
in
Children's Liver Disease Foundation
7 years ago
Elevated Liver Enzymes in a newborn
Biliary
Atresia
ruled out by hide scan.Liver enzymes remain elevated ALT, AST and GTT after 10 weeks but direct is now normal.What could cause this? and how to vaccinate if liver is impaired
Biliary
Atresia
ruled out by hide scan.Liver enzymes remain elevated ALT, AST and GTT after 10 weeks but direct is now normal.What could cause this? and how to vaccinate if liver is impaired
Arim56
in
Children's Liver Disease Foundation
7 years ago
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