Miracle baby with BA

[Heyladydee]

3 weeks ago today my baby boy was diagnosed with biliary atresia where the Kasai was performed. He was 10wks of age at the time of surgery. Before his diagnosis, my family and I had never heard of BA. I felt like my world was crumbling since my only child that I longed for for nearly 5yrs, had been “blessed” with this rare liver disease. I find myself wondering “what did my baby do to deserve this”? But as a child of God, I believe there is a reason and a mission for my son and I to fulfill in this lifetime with this rare disease which has been called upon us.

I am accepting everything as the days progress and I am so glad to have found this site for the support I need to overcome the bad days that creep upon me. The waiting game is the hardest now that surgery is over. But we are strong.

[Yuie]

I know exactly how it feels like, my baby also being diagnosed with biliary atresia at 78days of life and got the kasai surgery about 1 month already, even though most of the doctors say the kasai must be done before 60days of life then the chances for the kasai to be successful is high but I believe in miracles even if her age is already beyond 60days, I believe that god will always there to help our little angle. Just kept in mind that we are blessed enough to have such a strong little baby, spent more time with her, take lots of pictures so that in the future u can show her how strong she was and hoping that she will continue to be strong.

[Heyladydee in reply to Yuie]

I can’t agree with you enough! I too believe in miracles!! Thank God for our strong babies! And I am taking so many pictures and short video clips to show him in the future 💪🏼👶🏻

[Jmom17 in reply to Yuie]

Congratulations yuie on your bundle of joy. My son has biliary atresia too and other things going on. I’m feeling all you are feeling and more. I still don’t understand why God allow innocent kids to suffer. I really don’t.

I wish you the best and pray the kasai works for your beautiful angel.

[Yuie in reply to Jmom17]

Thank you for the prayer, how your baby doing now?

[Hidden]

Hi there, Congratulations on the birth of your baby.

I hope you have had the opportunity to go on the Children's Liver Disease website where you will find information on biliary Atresia and more support information.

You can find the information at: childliverdisease.org/

with best wishes - Jacquie

[Heyladydee in reply to Hidden]

Thank you Jackie. I have also visited CDL website. It is very helpful!