Speaking from experience, having been diagnosed with Biliary Atresia at 8 weeks of age, growing up attending countless hospital visits and having countless 'what ifs' and uncertainties running through your mind I just wanted to out my experience out there and give at least a little hope to those who need it that there is always light the end of the tunnel.
I'm 23 now and to anyone I know, I appear to be just as fit and healthy as any of them. As I was growing up I always questioned whether I would have the same opportunities as my brother, be able to reduce my visits to the hospital or even be able to plan for the future which is what I'm sure a lot you and your children think at times.
Now, as a 23 year old me I can confidently say I have had an abundance of opportunities which allowed me to complete my A Levels, go on to be a retail store manager at 20 and now even done a U-turn back to the hospital environment to manage an Outpatient department in my home area. I believe my drive and determination has all stemmed from my diagnosis and if harnessed properly, there are no reasons whatsoever that any child diagnosed with Biliary Atresia could not exceed their objectives both health wise and in their personal lives.
Anyway, I hope that reading this will help to give a little bit of hope and comfort to a none going through what myself and my parents went through when I was so much younger as I know this would have helped us so much at times.